Best Of
5 years today since my surgery ....
Celebrating my 5 year anniversary (today) since my surgery .... This would be the first year that I didn't 'remember' my 5 year 'diagnosis date' of January 5 as well!
Up til 'that' phone call, I'd still convinced myself it was just cysts .....
LOTS of water under the bridge since then - and many thanks to those on BCNA who've offered support and constructive information on getting thru the surgery, Rads & Tabs - I was very lucky that I didn't need chemo. And also for your support during the last 2 years when my husband was so ill ....
So .... take care - and remember - if you are suffering extreme side effects from your treatment - make sure you check with your Onc if they can reduce the dose or try something else .... and if they aren't supportive of you .... you can always change Oncs! (I did!!)
Take care & all the best with your ongoing treatment xx
Up til 'that' phone call, I'd still convinced myself it was just cysts .....
LOTS of water under the bridge since then - and many thanks to those on BCNA who've offered support and constructive information on getting thru the surgery, Rads & Tabs - I was very lucky that I didn't need chemo. And also for your support during the last 2 years when my husband was so ill ....
So .... take care - and remember - if you are suffering extreme side effects from your treatment - make sure you check with your Onc if they can reduce the dose or try something else .... and if they aren't supportive of you .... you can always change Oncs! (I did!!)
Take care & all the best with your ongoing treatment xx
arpie
5
Re: Lack of info/communication from healthcare providers
Thanks so much that is very helpful
Re: 5 years today since my surgery ....
Congratulations on your 5 years. How amazing. You're an inspiration to many and I really appreciate all your words of wisdom to me and to others.
Cath62
2
Lack of info/communication from healthcare providers
Hello, I am feeling very frustrated by the lack of information. Referred to Royal Perth Hospital Breast Clinic for invasive breast cancer stage 2 after biopsy in November. Received a letter 2 weeks ago advising of appointment at the breast clinic in February, then a message left saying the appointment is now next week. Called for information as to process and procedures and possible time lines, there is nothing, told nothing. I understand every treatment is individual and every hospital is totally overloaded, but I have no idea whether I will have surgery this month or next, what other tests I might have, whether I should be planning for time off work - when and for how long. It all seems so blase, I feel like just not bothering about it to be honest. I will, of course, but I'm not going to put my life on hold. I'm a community nurse and I always try to support my clients to the best of my ability and knowledge. I'm feeling regretful that I let my private health insurance go, I would have answers and been treated by now.
Re: Public vs private cost info
I was diagnosed early December and in Melbourne. I started with chemotherapy and went private as my GP recommended it and through my own research found going public would be approx 2 month wait. And due to Christmas I just didn’t want to get stuck waiting. I’ve now had two rounds chemo and hd to be admitted to the ward for dehydration as I was vomiting which would’ve been more difficult public.
Many people in my ear saying go public go private. I just wanted to start. I found it unhelpful. I am unsure if I will continue private for surgery and radiation but will keep going for chemotherapy. I have PH and my PET scan and biopsies were free.
DaisyJ
1
Re: Diagnosis and breastfeeding
Thanks @Rowey
My MCHN mentioned they could link me in, she is following up with me this week, so I'll ask her about this.
Thank you for your advice, my hubby/mum can attend appts with me (whilst juggling care of my 2yo and baby).
My MCHN mentioned they could link me in, she is following up with me this week, so I'll ask her about this.
Thank you for your advice, my hubby/mum can attend appts with me (whilst juggling care of my 2yo and baby).
CarlyJR
1