Triple Positive HER2+
Hi everyone BCNA Online Network established a Group with Triple Positive breast cancer which is useful also for people who might be HER2+ but not positive for oestrogen or progesterone. This post is also to alert previously accepted Triple Positive Group members: you might not have been automatically transferred across to the Triple Positive Group with the recent upgrade to the new BCNA Network site. Please do request to rejoin the Group (I did)! Ned01CheriSukiCheriAnna15FeRnurserachMareealsoTriplebreast240Number2CaitySXC1947665ViewsSign in to react to this post19Comments
New diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first mammogram 18 mths previous which was clear. I felt unwell at work & went to hospital and they found it looking for something else. It has been such an overwhelming process. My family & friends have been amazing but am feeling so very alone.1.8KViewsSign in to react to this post29Comments
Post surgery Rehab options
Hi all, hope you all are doing fine. I wanted to share my experience in y BC journey and also want to get some expert advice/ help if you have been thru this already. I was diagnosed with a stage 3 Triple positive BC last July. Since then I have been going through Chemotherapy and targeted therapy as advised my Breat surgeon and Oncologist. I recently completed my 6th cycle of Chemo and have my surgery scheduled this Saturday on. 6Dec. I will need to undergo full Mastectomy on my left. This will be followed by immediate reconstruction- will be a lengthy process I have been told. While understandably we are all nervous , I am also hopeful that I have been thru half of my battle. I am also a mother of two, and younger one is only 2.5 years old. I am also really anxious about the post surgery situation. My Doctor has told that I should not be taking stairs post surgery after I go back home. Given that I have little kids at home and none of our bedrooms are at downstairs, I am really keen to see if I can stay at a Rehab after I am released from the hospital. This would allow me to heal for few more days and would not endanger myself with the little one ( she jumps on to my lap anytime she wants). That would also help my husband who is my only carer at this stage. Love to get some ideas and advice how can I avail the Rehab facilities. I was also told by my Insurance provider that I have restrictive coverage for Rehab. I am in a tricky situation ( and am sure many of you are ) and wanting see what support can I get at this very difficult time. Many thanks and wish me luck!189ViewsSign in to react to this post1CommentLooking for IVF specialist who knows menopause/tamoxifen
Hello! First time poster here. I was diagnosed with triple positive BC in 2022. We welcome our first baby born via surrogacy in 2023 but have one more embryo that I’m going to transfer myself because I’ve had 2.5 years on tamoxifen and no sight of reoccurrence. My Oncologist said okay yesterday! I am hoping to find an IVF specialist in Australia- preferably Bris that has dealt with my situation before - medical menopause and 2.5 years tamoxifen. Has anyone heard of a doctor like this? I’m happy to do Telehealth. My current doctor is Tiana Ernst at City Fertility Brisbane (where our embryo is) who is lovely but want to be sure I research for our best chance. Thank you!159ViewsSign in to react to this post2CommentsTriple positive invasive lobular carcinoma
Hi everyone Having been diagnosed February 2025 I have had surgery and now have my medical oncologist and radiation oncologist this week. My surgeon chose not to do neoadjuvent treatment . This is my second cancer diagnosis with the first being a grade 3 melanoma some years ago. My surgeon suggests radiation and chemo+ targeted therapy and the five year hormone blocker. I see alot of women had treatment before surgery and I am wondering if anyone is similar to me and went straight to surgery? What was your treatment after surgery? How did you pull through? Any advice or information is so appreciated Donna592ViewsSign in to react to this post8Comments
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