Going flat with pride
When diagnosed with early HER2+ DCIS in August (right breast), my decision was immediate. Bilateral mastectomy for me. No reconstruction. Why? I'm 61 years old, have been married twice and have had another 15 year relationship. I'm not looking for a man and furthermore, I don't care whether a man would find my flat chest attractive or not! :) Another factor was the many stories I've read here and elsewhere regarding multiple surgeries and failed reconstructions. Not for me. I also didn't want to throw radiation into the mix of treatments. On the 18th August I underwent the surgery, with no problems. Testing of the removed breasts found another tumour in the left breast, which made my bilateral decision a good one. Four weeks later I began chemotherapy through a port in the chest (Taxol, Herceptin) and finished the Taxol yesterday (YAY for me!). :) I've stuck to my exercise regime throughout and have been able to keep working. To date I have only missed two days of work (touch-wood) which were post surgery, but only because I could do so from home. Brain fog has been probably the biggest issue, due to the level of concentration needed for work. Modafinil has helped with that. I purchased the Medicare-funded prosthesis, but haven't worn them so far. My go-to breasts for everyday are seamless, padded crop tops that you can get in any department store for around $15.00. They are light and comfortable, but I wish they came in natural fibres. In the future I will need to navigate the whole anti-estrogen hormone thing. Hmm. I have a long red scar across my chest, but I don't feel like it's unsightly. I'm bald, but that's temporary. I feel like I'm in a good place. :)
Home from surgery Ann's staying positive
I had surgery yesterday with wide lobal excision and sentinal node biopsy. No nodes removed. I am home in less than 24hrs. The amount removed was the size of an orange. Full results next week. Doing well feeling strong but weary. Just the next waiting game for the full results. Need to keep myself positive. I am in awe of all the beautiful women who have gone through this before me.
Post op skin relief (yay)
Hello, I just wanted to let others know of some products that have really helped my post op *itch*. I heard of MooGoo on this site and have purchased some items in readiness for my radiotherapy that starts next week. For six weeks I have also had a ghastly, compelling itch around my SNL scar in my armpit. Despite using respected pharmaceutical products, and taking great care in deodorant application, (steering clear of the suture line, and not applying deodorant at all when at home), to no avail. I purchased the MooGoo natural milk body wash, skin milk udder cream and fresh cream deodorant and started using 2 nights ago. *VOILA*, in two days, the itch has gone! I can't even coerce the itch to be itchy! Another itch I have had for years has also gone in two days. I wouldn't have believed it unless it was me! I am certainly not connected to MooGoo, nor will receive any benefits, I just hope this information may help someone else. Best wishes to everyone, Suzanne
Post op
Well ladies, my surgery went well yesterday (unilateral mastectomy & axillary clearance). Came out of anaesthesia well and was fine last night. I had a nerve block in and when that wore off this morning, was in excruciating pain 😕 A rare complication where the drains rub against a nerve - if I move or breathe deeply I get a terrible sharp pain and burning sensation. Fortunately I’ve just seen a pain specialist whose put together a pain plan, so just waiting for that to start kicking in. Hopefully that helps settle it and I can go home tomorrow (was going to be today). Other than that, I’m a bit surprised at how I’ve reacted to the surgery emotionally. Before surgery I was very sad about losing a breast, and anxious about waking up to see nothing there anymore. Once I’d woken up and gathered the courage to take a peek under my gown, I just felt this huge relief that the cancer wasn’t in me anymore and had an overwhelming feeling of happiness. So I’m another step closer to overcoming this and feeling hopeful 😊
Up coming Mastecomy update
Hi all, I posted back in February about my up coming Mastecomy and the decisions ahead. Update. Had the surgery Thursday 8th. I had a skin saving double mastecomy with immediate reconstruction direct to implants. Surgery went for 2 hours longer than planned as I lost a lot of blood and my blood pressure plummeted. I was feeling pretty wrecked afterward and had to have a blood transfusion at 1am on Friday, 4am and a third later that day. I have yet to see my new boobs but am told they are looking good. The pain is bearable for day 3 and I'm able to walk around today without feeling wobbly. Hoping the drains come out tomorrow but could be Tuesday. I'm really busting to go home. My blood pressure is back to normal thankgod. Really looking forward to my own bed to recover.Home from Surgery
Hi, I'm home now (yesterday) and it's over. On the morning of my mastectomy surgery (Monday 18 May) I was feeling quite anxious but trying to remain positive at the same time. The staff were lovely but I found not as friendly as my first lot of treatment for wide local excision with nodes removal or perhaps it was me with more major surgery to have and super aware of everything around me! In recovery I had quite a bit of pain they had trouble getting me to a pain free point. Then taken back to a room to stay overnight. I was advised to peek at my scar as soon as possible and not to avoid looking as I would feel worse if I delayed looking. I could see a line of stitches when I looked down through my gown and thought well that's it! Snoozed in and out a bit with some pain relief. But didn't sleep much through the night. Doctors and Nurses saw me on Tuesday morning and asked how I felt and said they would perhaps look at sending me home on Wednesday and I could stay Tuesday night and sort out the pain relief issues. Nurse said to have a shower and see if this made me feel better. Well being a bigger girl getting dressed and undressed in front of a stranger is something I have struggled with. I married my first boyfriend! Young female Nurse was lovely and said she would help me. Being an independent person and sometimes stubborn I said I would try myself. Managed to get undressed - not easy I tell you. Someone needs to invent Velcro undies so I don't have to bend down to remove undies. I managed to fling them off around the room avoiding looking at myself. I turned the water on. Put my heavy drain tube bottles on the floor. Turned the water on and looked in the mirror. Well the sobs came loud and hard. The running water didn't drown them out as I had hoped. I knew I had to let it all out so I could deal with it and move on. Lovely nurse called out. Are you crying. I said nooooo. Sobbed louder. She said it's OK if you are, are you crying and I said yesssss. She said do you want a hand. God no, because now I was a hideous deformed beast! Stayed in the shower a long time and was ready to attack anyone who said it's time to get out. Someone else would like some hot water! Took a long time drying myself and put my brain back into gear with well - bad boob gone, want to live. It will heal. The hardest thing now was how do I get my legs through my undies! Wrapped myself in a towel and asked the nurse for some help. She was lovely. Wishing I had packed a lipstick because I wanted a bit of colour of my face. Nurse said I would feel better after breakfast. Had a few bites of breakfast and then threw it all up. Waste of a good shower. Got cleaned up again and had black tea and savoy biscuits
Partial mastectomy & Tdap flap experience
Thought I would share my experience here for future users as I didn't find many examples for partial mastectomy and Tdap (thracodorsal arterial perforator) flap reconstruction. I was diagnosed at 43 with stage 1 idc of 3.5cm in my right breast. It was found in my first ever mammogram which I only had as baseline because I was starting HRT for perimenopause. Thank god it got caught early. My Surgeon was very thorough and ordered CT, bone scan and MRI, which didn't show any spread to lymphs or beyond. The tumour was located at about 10o'clock between the nipple and armpit. Due to its largish size of 3.5cm the Surgeon recommend partial mastectomy but indicated would be able to spare my nipple and key sensation nerves. Understanding the options available to me was really important including the pros and cons of each. In particular I wanted to understand options that would maintain sensation. My breast surgeon put me in touch with the plastic surgeon to talk through options. I strongly recommend you ask for this consult if it isn't offered to you. Given the size and location of my tumour if I had opted for a reconstruction only the breast size would be very small, and then I would have needed to consider reduction of the healthy left breast for symmetry. The Plastic surgeon identified I was a good candidate for a TDAP flap reconstruction as part of a single surgery. While there are some risks a flap might not take, I felt it was the best first choice option for me. And I was positive that if everything went well I would only need one surgery rather than subsequent later reconstruction surgeries. Involving both breast surgeon and plastic surgeon did add a few weeks and a number of appointments to the first month after diagnosis. Luckily for me with my particular diagnosis the surgeon wasn't concerned it would impact on my prognosis. I am very aware how lucky my circumstances have been to allow me these choices. My surgery was about 4 hours I'm told. The breast surgeon removed the tumour, x-rayed to check the margins and then handed over to the plastic surgeon. In the end the flap needed to be taken from between Tdap and ldap area on my back close to my armpit area in order to have suitable arteries for blood connection. 1 lymph node removed. Thankfully when I came out of surgery I didn't have any nausea and ate a meal that evening! I was in hospital for 6 nights afterwards as you have two drains for flap surgery and the plastics team like to Closely monitor the flap and drains. The main discomfort I had for first few days was a sore shoulder because my arm had to be above my head for the four hours surgery. So anti-inflammatory cream was in high use. I was able to walk from day 2 and pretty much just on Panadol for pain. The bruising all over the entire breast was epic so arnica cream was essential. After 6 nights in hospital I was allowed to go home with my drains and have daily nurse visits to check. I also had direct mobile number for my specialist nurse if I had any questions. Being home in a quiet bedroom was a relief after the noisy nights of hospital ward. Currently on day 10 post surgery and still have the two drains, although I think they will be out in next few days. Flap surgery can also mean longer period of recovery before you can drive-up to six weeks. Although that is very individual and I'm hoping I might be able to drive in another week or so. Still early days but thought I would share my experience so far. SMastectomy/Diep flap reconstruction - What to prepare for
Hello, I am heading into hospital shortly for a Mastectomy with a DIEP flap reconstruction at same time. I am starting to prepare everything now, ie stocking freezer, ensuring I have everything at home ready and staying to look at what to pack for my stay in hospital (5 days). My Plastic Surgery has asked that I bring in post op bra and if I have spanx or similar bring that in. The bra was no issue I got ones from Kmart and Berlei. In terms of compression pants, I am at a lose. So much on the market, Any recommendations, do I go for underwear type, shorts or just stomach ones. I would be grateful for any tips.
