Newly Diagnosed WA
Hi, I have just been diagnosed with invasive ductal carcinoma. I have decided to have a double mastectomy. I live in a regional town in WA so I will be flying to Perth for the surgery. Any advice for preparation for surgery. Will I need propping pillows to sleep post surgery. I am staying in Perth post op for 14 days to allow for the nurse care of drains. Has anyone else done this in Perth?
Not sure
I was diagnosed with invasive ductal BC stage 2 ER+PR a couple of weeks ago lymph nodes do not seem affected for now ( biopsy was negative). My breast are small and MRI showed ~4cm cancer. I was wondering if mastectomy + reconstruction and possibly no radiation therapy was better than lumpectomy + radiation. Not sure what to doš¤Emotional speed bumps
Hi, I'm trying to figure out how to prepare for life post-mastectomy. I got my diagnosis a week ago and have been managing well, but then I tried to join a FB group for people going flat and got hit hard by a gatekeeper question. The question was something like, "Have you had a mastectomy?" Options: 1. Yes 2. No, but I'm looking at my options 3. No, but I am supporting a loved one who has. The curious thing is that I felt completely left out by this option list. I wanted the option: No, but I am about to. I got all teary and had to write about it. Funny what sets us off. Anyway, I would love some tips about clothes to wear during recovery that are easy to manage and don't make me stand out.DIEP reconstruction or going flat
Good morning, I'm new to this site and I'm so glad I was referred to it. I've been diagnosed with HER2 positive last week and need to have a complete mastectomy on my left breast. Everything is moving quickly with my various appointments which I'm really thankful with. I'm now faced with the decision whether to have a DIEP reconstruction or going 'flat'. I realise this is a personal choice and everyone is different but I'm keen to hear how you made the decision to go flat and if you have any regrets as I'm leaning towards this option. I'm fairly active with swimming at the beach in Summer, weekly aqua aerobics, gym, walking. Thanking you for your support š
Looking at the 3rd surgery in 1 month
Hi all, I have been diagnosed with Stage 1 breast cancer with two less than 2cm but fast growing grade 3 tumor in mid Sept and had the lumpectomy surgery to remove the tumor . however pathology report came back saying they found DCIS cells at the margin. So I quickly done a re-excision surgery in mid Oct. The second surgery hit me really hard for not only I felt more pain but also i felt way weaker. But this tues, the surgeon told me they find IDC cancer cells at another margin. Now the surgeon is saying you should do another lumpectomy re-excision surgery. Emotionally I am devastated. But I cannot understand why can't they do a MRI to double check the margin? Or is this newly grown mass? My surgeon was not very open in sharing information. I am now seeking 2nd opinion. But i am so worry it will delay my whole treatment process. Anyone has similar experience to go through multiple surgeries?
Newbieā¦long story
Hi everyone, Newbie here. Never dreamt I would be joining this club, but who does ?! This forum and website have been so helpful to me over the past month. My journey started last June when I decided to speak with my GP about a tender spot right on the inside edge of my left breast. She reassured me that tenderness isnāt typically a symptom of breast cancer, but we would check it out. Got an ultrasound and mammogram. US identified a small mass, mammo some calcifications. Got an us biopsy around October, all clear. Then around Christmas I noticed some brown nipple discharge (took a while to accept it was coming from the nipple, thought I had spilt somethingā¦. Every few days in the same spot!!!). Back to the GP, another ultrasound. The report said there was ādebrisā in the duct, couldnāt exclude papilloma, MRI would confirm, surgical consult recommended. So off for the consult, after which I was told the discharge was due to trauma to the breast from the biopsy (they didnāt send me for the MRI). This was purely based on discussion and very brief examination. In hindsight and knowing what I do now, I would have pushed back and demanded the MRI regardless. Relief! But my GP wasnāt convinced. She sent me for an MRI then a consult with a specialist breast surgeon who, after looking at the MRI, immediately sent me for some MRI and stereotactic biopsiesā¦2 in my left and one in the right. That was a bit of a marathon! I was convinced it was all a waste of time and money! I turned up to the surgeon for results unconcernedā¦obviously rather naive! āYouāve got a lot going on in your breasts!ā were her first words. LCIS and papilloma in my right breast, DCIS and invasive Mucinous carcinoma in my left. I was speechless. Shocked. Bewildered. Confused. We briefly discussed next steps, but I couldnāt get out of there fast enough! I called my husband in tears. We went back together to the surgeon the following Monday, after doing a bit of research, lots of reading, and chatting with a wonderful McGrath Breast Care Nurse. After asking more questions, I decided on a left mastectomy and right lumpectomy. Plus sentinel node biopsy on the left. But I was so angry. How could the first surgeon send me away without really being sure??!! I went through all the feelings, disbelief, anger, sadness, grief, a bit more anger, and finally acceptance (mostly anyway!!). I realise I have to let go of the anger, and am taking it on as a learning - itās important to advocate for our own health and not accept something too easily if it doesnāt seem right. Hubby and I had a two week holiday booked up north the following week, which the surgeon said was fine, so we booked surgery for August 13, ten days after we would get home. The holiday was great, we hadnāt told anyone at that point (except my mum and work). We were able to not think about it and had some really special time together. It was good to have the space and time to process what was happening. so now Iām one week post surgery, contemplating the future, keen to get back to everything I used to do. I had been training for a half marathon in September, which of course now wonāt be happening. We are hiking the Overland Track in February, so thatās what Iām aiming for. Iām so very lucky to have an amazing, competent, supportive partner. He has taken the same time off work as me to support my recovery. He even washed my hair for me yesterday :-) Recovery is going pretty well, although Iām often still uncomfortable in bed. Getting the drain tube out a couple of days ago was wonderful! We go back to the surgeon next week (two weeks after surgery) for dressings etc and results. Fingers and toes are all crossed! Thanks for getting this far, thereās something a little cathartic in writing this down. Iāve really appreciated reading others stories, it helps with knowing we are not alone and the feelings are valid. Thank you :-) Belinda xx
Double mastectomy and immediate reconstruction
Hi all, new member of this exclusive club nobody wants to be a part of! Just found out the lump in my right breast is cancer 5 days ago. Iām 43 and considered young for cancer (how niceā¦ been a while since Iāve been called young š ) I am still in shock so have gone into plan mode. I Still donāt know what stage type or grade yet but scheduled for a breast MRI and biopsy tomorrow. My question is if anyone has ever been through Peter Mac as either a public or private patient? What was the experience like? How long was the wait for surgery and reconstruction? Iām not sure if my private will cover all costs of surgery as my surgeon (who operates privately) so far says Iām a candidate for a double mastectomy but is waiting on biopsy report and MRI. Ideally I am leaning towards an immediate DIEP reconstruction. Anyone had that before? Thank you š
Do I stay or do I go?
Not your average post. Originally a backpacker from the UK, been in Aus 5 years and have moved onto a work sponsorship visa with my employer. I live in a very remote area and it is a 4 hour flight to my nearest 'treatment centre'. Two weeks ago it was confirmed (via biopsy) that in my left breast I have a 2mm invasive mass, and 10cm of non invasive DCIS. I had a contrast mamo and PET scan (no result yet) and scheduled for an MRI on the 6th June, and appointment with the surgeon to discuss options on the 10th June. My breast dr said the surgeon will recommend a mastectomy due to the large area of DCIS. Possibly chemo, radio and hormone therapy. They are also talking about what I want to do with my eggs. I am so scared, and I am not sleeping. I am only 34 years old without children. I don't know what to do, do I stay here in Australia and undergo the treatment recommended and stay near the hospital with the mother of a friend (who has also had breast cancer and has said she is more than happy to support me through required treatment). I love my life here that I have built over the past 5 years, and I love my job. I am scared I will lose my job with the next few months of treatment coming up (very little can be done remotely), my visa is tied to my job. I may get deported mid way through treatment? I dont know? I know I should speak to an immigration lawyer but I am already inundated with administration from cancer. My family back home are very supportive and will support whichever decision I make. They and I am also wary of the health care system back at home (which isn't in great shape). If I go home, I will take all my diagnosis letters and scans, but I will still have to start this process again from the start and basically be told twice I have cancer and they want to chop my breast off. I wont be able to get a job due to appointments and treatment, and wont be entitled to benefits as I haven't paid tax in my home country for 5 years. Its not just cancer anymore, I am not scared of the cancer as such as my whole life here being ripped away from under my feet. Sorry for the long post. I just don't know what to do for the best. Either way, I need to stay here until I have the full picture and know what the surgeon wants to do.Where it all started
In February I had weight loss surgery and in may I turned 50 and with that came the mammogram reminder. About 6 weeks ago and with a 40kg weightloss I was diagnosed with a stage1, 1cm malignant lump. It hit me like a tonne of bricks. If it wasnt for my weightloss they may never have found it. I got my referral to see the surgeon who wanted me to have a bilateral ultrasound prior to seeing her. At my appointment she told me I had 2 additional lumps in my right breast and 1 in my left. My head was spinning out of control. Started thinking the worst. She sent me for a biopsy and those additional lumps turned out to be cysts. Fast forward a month and today I have had my breast surgery to have the cancer removed as well as a therapeutic mamoplasty to make them symmetrical. I am absolutely beyond thankful to Dr Poon for the amazing job she has done. I have gone from an F cup to a small D large C with 450g removed from left and 380g removed from right. I dont m so thankful to this site it has given me alot of information and answers to the questions I needed answeredOncotype Dx test
Hello everybody, I'm new to this webpage. Sadly 3 weeks ago diagnosed with BC, I'm 47. I decided for full mastectomy and my results were good for to be able to do Oncotype DX test. I'm having first app. with oncologist this Thursday, will go ahead with the test and hope all goes well. I'm having couple questions, if somebody will be so kind to help me. How long it takes get results back? If good results and I don't have to have chemo, is there anybody who had this test done many years ago and still cancer free? I'm just so scared if I don't have chemo that cancer will come back..... I'm bit mess atm. especially every time I look on my kids or start to think about the future. hank you very much
