No reconstruction after double mast
im looking to hear from women who have had a double and chose No reconstruction. iv had a double, temporary implant ( which are s pest) I was considering DIEP hence the implants...... but not sure if the surgery/ reconstruction is worth the $16,000 and Another BIG surgery and recovery. ( yes the tummy tuck and nice breast would be great..... no doubt there at all and I’m sure it’s worth it but anyone not reconstruct and still feel content and happy. my husband I’d supportive of what ever I choose. I’m quite active, I like to run and exercise and I want to be able to do handstands and cart wheels with my daughter before she gets over it. I just hate these implants, I could get them out quickly. But have to wait for DIEP as I had radiation in dec. 🤷♀️ Just interested to hear others experience with no reconstruction. Or anyone like me and want or removed these stupid uncomfortable implants?
Grade 3 Triple Negative
hi!! I just wanted to say my first hello and what an amazing place this is to come for loads of wonderful advice and info!! I was diagnosed on 6th Nov with Grade 3 Triple Negative IDC and am having a double mastectomy with reconstruction next wed 4th Dec. I’m a mum of 3 (19,16 & 7) and had only just turned 40 when I experienced a sharp pain in my breast and went to have it checked. No staging as of yet, I had one swollen lymph node biopsied which came back clear and CT was clear apart from pre existing liver hemangiomas (just something else to add to the mix) but still waiting on bone scan results.........if that isn’t the most anxiety endusing thing on the planet I don’t know what is, Ive been hyper sensitive to every ache and pain I get!! Chemo is planned for the new year. Anxious but eager to get into it, all the waiting is the worst 😣
Getting ready for Chemo, any advice?
Hi beautiful women, I’m new here, I’m a 33yo mum with 3 kids, recently diagnosed with hormone +, stage 3, grade 3. Had a double mastectomy and lymph nodes removed on the 30/3, going to see the oncologist next week and start Chemo. Would love some advice on preparing for this, recovery from surgery has been hard but chemo is more daunting to me...
"Its up to you!!! "
I am soooo tired of hearing "Its up to you!" I turn to the brains trust here to give me constructive advice about a problem that I have to ( or want to is nearer the truth) address. I have been through the (L) mastectomy followed by Chemo and Radiotherapy (oh the horrors!! :) ) I want to hear about what you did or didn't do, whether it was worth it or not and pro's and cons of having a second mastectomy . I have spoken with so many people including GP's and surgeons, family and friends. I even had a family friend, a recent graduant from Uni with Counselling Diploma start to counsel me...and they ALL said...well really its up to you!! I KNOW its up to me....arggghhh!! :) But no one could give me personal experiences and expectations....just second and third hand stories - you know the sort...friends of friends, mothers/sister/aunt or niece of friend three times removed..:) I had a lumpectomy 25 years ago in (R) breast - it was encapsulated...no further treatment given. I had bilateral lumpectomy last March - the right was benign and the left breast went for the mastectomy. I have been told my problem is NOT in the genes so I have no reason Health wise to have it removed. It is purely psychological (and up to me!! :) ) I will of course be obliged to have regular mammograms :s and oncology follow-ups. Breasts are for feeding babies and giving someone else a thrill!! At 68 I am over both! I haven't got into the habit of wearing prosthetic bra yet because of radiation burns (and infection!!) that took ages to heal and of course this horrid hot sticky summer heat! I have worn it a couple of times and I feel so lopsided lol I know comfort will come with practise and further fittings. I have looked at myself in a mirror and thought about "To do or not to do!" Does dressing become easier, buying clothes, wearing swimwear ? Are you sorry it was done? Regret not having it done? I think a lot of this is to make me think about it as I wrote....didn't help - lol - I still don't know what to think about to help me make a decision. And please....don't tell me "Its up to you" :p <3
bilateral mastectomy then immediate reconstruction results
I have just finished chemo and now deciding on surgery. I am having a bilateral mastectomy with nipple removal and then immediate reconstruction with implants. Has anyone had this with the implant over the muscle? Did they look ok? Also then had radiotherapy after? Where you happy with the result? How many other surgeries did you have? I am having a hard time picturing it and aligning my expectations with what can be done. Worried I will not be satisfied and it will affect me emotionally as I have been coping ok with breast cancer diagnosis until now.
Mastectomy this Thursday..
I am booked in for a single mastectomy (followed by chemo and radio) this Thursday. I tried to discuss with my surgeon the possibility of removing both breasts at the same time, one being preventative (as this is what I would really want) but she dismissed it. I have asked again yesterday and she said she wouldn’t do it as it may delay treatment and because of covid, there is a need for beds in hospital.. plus there is double the risk for complications. While I originally accepted her reasoning, I am now working myself up as I am upset that this option was not fully considered and the reasoning do not make all that sense to me. There are pros and cons of course.. Anyone been in a similar situation and/or had a second mastectomy later? How long after you finished treatment were you able to have another surgery? I do not want to delay surgery this week, but I also want to do the right thing for myself..
Looming double mastectomy
im having a double mastectomy with auxiliary lymph node clearance on the 1st November. Finding it hard to believe it’s happening even though I’ve had 6 months of chemo! Wondering how to get my head around it. How have others dealt with it? Going from a 10G to nothing seems so extreme!
Bilateral Mastectomy and no further treatment
Just wondering if there is anyone out there who has had either a mastectomy or bilateral mastectomy who then didn't need any further treatment at all? I had this earlier this year but everywhere I look everyone talks about treatment following surgery.Mine required none which is fabulous but I have this feeling I don't quite fit anywhere. It seems there was this sudden rush of activity after diagnosis, a quick surgery and then a sudden stop it all. I was never sick, another thing to celebrate.
Bilateral Mastectomy - please share your experiences and views.
I am planning on having a prophylactic bilateral mastectomy in the next few weeks. I have previously posted in the category of issues with dense breasts and ongoing surveillance. Thank you to all of you who responded to that. I have HER2+/ ER+/ PR- breast cancer. I was diagnosed in September last year and have very dense breasts. I have already undergone a lumpectomy and have just finished chemo with taxane. The sentinel lymph nodes were clear so I will not need to have any more lymph nodes removed. i have read all the previous posts relating to bilateral mastectomy and spoken to the breast surgeon. While she does not think I need a bilateral mastectomy, she is happy to do the procedure. I would be extremely grateful if anyone can tell me about their experience after having a bilateral mastectomy with regards to hospital stay, any issues, infections or complications. Can one manage alone at home post surgery. How long did you have to keep the drains, is it easy to manage the drains. Any other significant issues days, months or years after surgery. Your responses will be much appreciated.
I am new to the network and have metastasis
Posted on behalf of JLea Hello everyone, I am new to the network. I was diagnosed with metastatic breast cancer in 2016. I had a double mastectomy and axillary clearance and chemo. Six months ago I was found to have mets in my bones. Including skull, spine down to T10, scapulae, ribs, sternum, pelvis and femoral head. So quite extensive. I’m on Palbociclib and Letrozole. As Palbociclib is a 3 week cycle with one week off. The bone pain builds up over the 3 weeks, particularly in skull and spine, as my entire skull is riddled with mets. Has anyone got a similar diagnosis? I have major depression and feel very bleak about my prognosis. Regards