Endocrine Therapy and Pelvic Floor
Hi all I had one dose of goserelin 2 months ago and within a week of reducing oestrogen levels, my pelvic floor had given way!! I had my second baby months ago so it was always weak. Gynaecologist said my uterus has come way down like a prolapse and a hysterectomy will relieve my symptoms. I went off the goserelin and my pelvic floor return to normal. Oestrogen is very important for the strength of the pelvic floor. My question is, has anyone had pelvic floor issues when they went on endocrine therapy and what did u do to relive it all?
Some ideas on ‘keeping busy’ - a ‘Coping Calendar’ - during Covid but relates to any time, really!
I found this Calendar a little while ago - and thought it was quite good (even tho it related to Covid Lockdown!) Even if you only do a few of the things on the list …. It may help create new routines and hobbies!! And No - you don’t have to do one each day - just as you feel up to it!! Keeping busy & trying new things really helps to pass the time …. They have a new calendar every month with new suggestions! https://actionforhappiness.org/calendar#download-block-anchor And if helping others …. It’s a real win/win there for both of you ;)
Baring all
News story about showing off the scars doesn’t consider the trauma of seeing this. There’s a lot of discussion about bringing breast cancer to the attention of the public. With one in seven women likely to experience this disease I’d think it was already noticed, without having women undress to show scars. Also some of us don’t appreciate being reminded. And some think their medical history is a private matter. I was having a coffee with a dozen people in a cafe when my friend casually announced to everyone that I’d had breast cancer. Why is this okay?
What books helped you? Opportunity to suggest and/or review books
Hi everyone, We are excited let you know about a new page on the BCNA website for book reviews. On this page, we will publish reviews of books that may be helpful to people affected by breast cancer. There are a number of book reviews up already, which you can have a look at here: https://www.bcna.org.au/news-events/book-reviews/. What books helped you? We would love for you to tell us what books helped you when you were diagnosed. You might like to write a review of the book for possible inclusion on the webpage. Reviews should be between 300 and 500 words. Your review might discuss things like: - Did you find it helpful? If so, how? - Is it best suited for particular people, circumstances or situations (e.g. women newly diagnosed, young women, women with metastatic breast cancer, men with breast cancer, partners or others supporting those with breast cancer? - How did you feel when you read it? What parts appeal to you? Alternatively, you might just like to tell us the name of the book and we can try to find someone to read it and write a review. How to submit a review or let us know what books helped To submit a review for possible inclusion on the page, please email your review to the Policy Team on policy@bcna.org.au. Please include your name and contact details in your email so that we can be in touch with you. If you would like to tell us the name of a book that you found helpful, please also email the Policy Team on policy@bcna.org.au.
New diagnosis triple negative BC
Hi all, I'm having a bit of difficulty reaching out to talk to anyone going through a similar experience - I'm 27 and just diagnosed with triple BC. I've joined the young persons group and awaiting to join triple negative group. I'm in the limbo period of waiting to be referred to oncologist and awaiting appt with the surgeon, so I really don't know anything yet. I suppose I'm just wanting reassurance and support from someone that has go e through a similar experience or maybe if anyone has any recommendations for other places I can go to for support, I've contacted a breast cancer nurse, but I haven't heard back yet. Thank you! Oops posted twice!
post op exercise question?
Hello all, I have a question, I have also emailed this off to my bc nurse, however they are busy and can not get back to me for a few days, so I thought I would ask here for a general idea, I was diagnosed on the 14.12.2022, today I have had my PPET-CT Scan, yuck, what an ordeal, If that is all good for my surgeon, I'm booked for next Friday for the lump removal. I understand everyone journey is personal to them and everyone's cancer is different from the person beside them. However as a general idea, once surgery is over, I need to get back to exercise, I enjoy my yoga, but am also looking at adding walking laps in a pool with my adult son, after he torn his ACL on our family holiday last week down in TAS, (that's a hole another nightmare of a story, he went face first down Cataract Gorge in Launceston) As he can not drive, I am planning on driving him to the pools when he can start his recovery treatment, so I was thinking I should also get in the pool and start off with light exercise. Has anyone done any form of aqua exercise, I know I have to have radiotherapy after the surgery, again I'm not a wear for what length of time, is is safe to go in pools, I live over an hour away from the beach, so that would be out of the question. Thanks for your time Cheer's
FOODS TO AVIOD DURING CHEMO
So i have just stated chemo for breast cancer and i have read different things of what to avoid. Sushi Raw Seafood - Raw soft cheeses honey Alcohol It feels like Iam pregnant all over again !!!! no good food, morning sickness, insomnia Can anyone tell me if these are correct and have i forgotten anything?
Tattoo Questions
I’m over a year out of mastectomy, and 6 months since corrective surgery on the dog ear I ended up with. I’m in regional WA, and looking for recommendations for a tattoo artist who has worked on scar sites. I know I will have to travel to Perth or maybe further. Has anyone in WA had a tattoo over their mastectomy site and who do you recommend? With thanks! cle
Feeling very isolated
I am 35, and was diagnosed last year on July 12th with triple negative inflammatory breast cancer. I started AC double dose chemo on the 27th of July and then paclitaxal 21st of September. Early November it became clear the pacli had stopped being effective on the cancer in my breast so I was zoomed into surgery and had a unilateral mastectomy and auxiliary lymph node removal November 25th. I started Carboplatin December 20th and have it again January 11th, before switching to radiotherapy five days a week for five weeks January 31st. After that I’m being told two more Carboplatin, then capecitabine for six months. I’ve had allergic reactions, side effects and difficulties throughout. I think due to covid there has been no support groups that I’ve been put in touch with and the only people I already know who’ve been through breast cancer are in their 60’s and have had a very different journey and experience and support network. I’m single, living in share accomodation in the inner west of Sydney and am currently disabled due to my mental health (and was before my cancer diagnosis). Some friends have been amazing and some have been so selfish and awful it’s hard to believe. I’m just wondering if there are support groups that I’m just not finding. Either for younger people or for LGBTQIA+ people. Covid has made everything harder and I’m really finding it all very exhausting and overwhelming- especially since the world keeps on burning and normal everyday life nonsense keeps happening. I’m exhausted and struggling. Any help much appreciated.
