New diagnosis
Well , just diagnosed yesterday now . My head is still spinning . It has been a very stressful long week awaiting biopsy results following my 2 yearly routine mammogram. Age 60 , recently retired , how often did you hear that and think , well that sucks , well here I am …….. ER Positive Invasive Carcinoma . Finding the waiting the hardest , GP follow up on Wednesday to organise my follow up referrals for surgery expected within the next four weeks , dependent on Lymph node involvement treatment options . Seemed quite positive that I have been lucky to have caught it early22ViewsSign in to react to this post2Comments
Bayside Melbourne
Hi everyone, Just diagnosed sadly. It's a little lump so this whole situation should just end up a another campfire story. Hopefully. My family has never experienced anything to do with the big C word. It's very foreign to any of us and I was just wondering if there is any one base I'd Melbourne who was experiencing the same thing? If so it would be really nice to meet up for a coffee or something and just chat about what's to come next. Love and hope, Sim x101ViewsSign in to react to this post4Comments
Recently diagnosed
It's been a week!! Breast screen contacted me Tuesday with my biopsy results. Currently on holidays visiting a sick friend in Canberra so my conversation with Breast screen was in a video link. Had not expected to hear Breast Cancer. Dr advised lumpectomy and I now have an appointment with a breast surgeon back in my home town, Adelaide. Seeing her 26th Oct. I am approaching my 69th birthday and feel my girls have served me well. I am seriously considering double mastectomy, no reconstruction, going flat. Has anyone else had these thoughts? I have a maternal history of breast cancer and have been having breast screening every 12 month. I have always referred to my screenings as Russian Roulette....74ViewsSign in to react to this post1Comment
Just diagnosed - it's all moving so fast
Hi everyone, I was just diagnosed yesterday (Wednesday) with DCIS, plus a focal area of invasive carcinoma NST, provisional grade 2, ER and PR positive and HER2 negative. I meet with the surgeon tomorrow and it all just feels like it is happening so fast my mind is swirling. Very thankful to have found this site as I have already found so much useful information!125ViewsSign in to react to this post4Comments
Advice on how to prepare for TC chemo?
Hello everyone! First time of me starting a thread on here, hoping to get some advice from someone who’s had experience going through TC (Doxetaxel & Cyclophosphamide) chemo recently? I’ve just had a mastectomy with an implant reconstruction on my left breast after I had a recurrence after going through lumpectomy followed by radiation in 2024. It’s been very traumatic to say the least! Now I’m really freaking out about having to go through chemo as I’ve already been swapped to letrozole and Zoladex instead of tamoxifen which I was on before and I’m already having loads of hot flushes etc so adding other side effects on top of that feels very daunting! If anyone have any advice how to manage side effects that would be amazing! I’d love to at least attempt to not lose all my hair and eyelashes, eyebrows and maybe there’s some supplements I could take to make sure my skin doesn’t get too damaged during treatment? I’m going to bring in ice cubes/lollies to suck on as I’m having the treatment done but wondering also if there’s anything else I should be doing or bringing with me to the appointment? Thank you so much!97ViewsSign in to react to this post7Comments
DCIS diagnosis last friday
I found out Friday afternoon that I had DCIS, thought nothing of it till later in the evening when I was doing a bit of research . Totally overwhelmed & unsure what to do now, surgeon is having a team meeting Wednesday & then having a telehealth with me. AtM I’m trying to put together a few questions based on the pathology results I have. I want to be proactive & aggressive in confronting this disease. Any commments or ideas? I have had MRI, needle biopsy, ultrasounds, & then excision. This was all following my sister diagnosis of invasive lobular breast cancer recently. I had no symptoms prior & a negative mammogram last November .151ViewsSign in to react to this post2CommentsJust diagnosed
Hi, I thought I would introduce myself here. I am 49 years old and have just been diagnosed (two days ago) with an Invasive Ductal Carcinoma in my left breast. HR+ HER 2 negative, provisional grade 1, 4 small lumps. Will be meeting my surgeon at RBWH next week on Wednesday. The last 11 days, since the Breast screen recall feel like a blur. So much has happened and of course I didn’t anticipate any of that (lumps aren’t palpable). I have been directed here by the wonderful nurse from the Breast Screen and am very grateful to find so much support and information. I haven’t told my kids or friends yet so it feels good to be able to open up here.346ViewsSign in to react to this post14Comments
Waiting, waiting, waiting….
Hi all, diagnosed 1st September, multifocal invasive lobular carcinoma. Surgeons appt scheduled for 17 September. Surgeon has referred me for an mri with contrast. The surgeon completed my biopsies (3) in breast screen clinic, so I’ve met her. My biggest question now is how long do you wait for the mri apointment? They acknowledge receipt of ‘urgent referral’ on 2nd of September and now it’s the 10th, they’re telling me they are waiting on ‘protocols’, my breast care nurse is wonderful and is following it up along with me, how long did you all wait? I thought I was coping not too bad, but today it all just seems really cruel……?305ViewsSign in to react to this post15Comments
Feeling lost
I am newly diagnosed and just feel lost. My appointments and tests have been so close to each other. I have had mammogram, ultrasound, biopsy of the breast, FNA of my lymph node, a pet scan and having a mri tomorrow. My diagnosis is invasive carcinoma NST (invasive ductal carcinoma), grade 3, triple-positive (ER+/PR+/HER2+), with associated high-grade DCIS. The ki-67 is 60%. I have been told the I will have 4 months of Chemo, then surgery, radiation and long term medication after. I met with the breastcare nurse and found her extremely unhelpful. I just don’t know what to expect and how to feel at the moment. Has anyone been on a similar journey who can tell me what to expect?222ViewsSign in to react to this post3CommentsMaitland Public or Private Hospitals?
Has anyone here had treatment in Maitland Private or Maitland Public Hospitals? Financial constraints are pushing me towards the Public System but we do have Private Health Insurance so could go Private but the out of pocket expenses are huge or unknown.110ViewsSign in to react to this post7Comments
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