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Ctoo

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Joined 6 years ago

13 Posts4 LikesLikes received

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Re: Letrozole
Thank you. My GP gave the same advice.
6 years ago Place General
4Views
1like
0Comments
Letrozole
Hello I am about to start taking Letrozole and after reading the side effects I am concerned. I've come so far after chemo, mastectomy and radiation and now feeling really good and enjoying life. The last thing I want is to go back to feeling unwell again! What symptoms did you experience or are experiencing?
6 years ago Place General
anxiety
hormone-therapy
letrozole
483Views
0likes
23Comments
Re: What to expect with radiation treatment
Thank you
6 years ago Place General
5Views
0likes
0Comments
Re: What to expect with radiation treatment
Ctoo said: I have been told I am borderline but Dr recommends radiation treatment due to original size of tumour ($28,000 per treatment I'd recommend it too (although Medicare do cover $23,000). I finished chemo on 28 Jun 2019, had a mastectomy on 13 August 2019. Pathology shows only 3mm of the tumour remained in breast after chemo. I am quite anxious about radiation and not sure what to expect...so many different opinions, experiences and burns! I didn't realise there is a cost involved although most covered by Medicare still a huge gap! Not sure how we will afford it either. Feeling stressed!
6 years ago Place General
12Views
0likes
0Comments
Re: What to expect with radiation treatment
arpie said: Hi @Ctoo - sorry to see you here, but you'll get the best advice & support from those who've been thru it before you! That was Terrific that the tumour size reduced so well prior to the surgery!! And well done on getting thru your chemo! Whereabouts are you? (Town/city) as our members will be able to point you to specific areas for your radiation treatment - and as everyone else has said! GO PUBLIC! That suggested $28,000 is outrageous & whoever suggested it without advising you of the Public option as well - needs to be disciplined &/or even reported to the health authorities for misleading information! I had my surgery private but went public for my radiation. I even stayed 'on the premises' as the hospital was over 1.5hr drive (each way) from home. The Isolated Patients Travel Assistance Scheme (which each state has) will help subsidise any travel to & from appointments (if more than 100k away) and in my case, also virtually paid for my accommodation at the hospital Lodge, as treatment is usually every weekday. (I went home for weekends.) Towards the end of my treatment (4 weeks) I went quite pink and the boob was very 'warm' (which continues for another 4 weeks+ after treatment finished.) I had a little bit of rash/skin breakdown, but nothing major - and to be honest, I found it to be quite 'easy' - as I am sure you will too. All the best xxx The total cost is $28000, medicare pays $23000! I have been having treatment at Tweed NSW but live on Qld border. Radiation will be at GenesisCare at John Flynn in Tugan.
6 years ago Place General
3Views
2likes
0Comments
Re: What to expect with radiation treatment
CRM said: You have to pay $28,000?? It makes me so angry that the costs involved with treatment vary so much across Australia. I dont have to pay the full amount, just the gap of $5400. Medicare cover the difference.
6 years ago Place General
5Views
0likes
0Comments
What to expect with radiation treatment
I have been told I am borderline but Dr recommends radiation treatment due to original size of tumour ($28,000 per treatment I'd recommend it too!). I finished chemo on 28 Jun 2019, had a mastectomy on 13 August 2019. Pathology shows only 3mm of the tumour remained in breast after chemo. I am quite anxious about radiation and not sure what to expect...so many different opinions, experiences and burns! I didn't realise there is a cost involved although most covered by medicare still a huge gap! Not sure how we will afford it either. Feeling stressed!
6 years ago Place General
anxiety
financial-pressures
radiation
430Views
0likes
19Comments
Re: Recent mastectomy pain
Thank you <3
6 years ago Place Surgery
1View
0likes
0Comments
Recent mastectomy pain
I had a mastectomy in early August 2019 and I have had fluid building up after the tubes were removed. It looks like part of my breast is still there! My surgeon is pleased with the result of her work and informed me the fluid will go. But now it's painful and aching, although not red or swollen. Is this pain and fluid normal?
6 years ago Place Surgery
mastectomy
65Views
0likes
3Comments
Re: Mastectomy
I have multifocal breast cancer so surgeon wants to do mastectomy. The lump and tumour has shrunk to the point it can't be seen on mri and ultrasound.
6 years ago Place General
7Views
0likes
0Comments

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Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.
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Ctoo

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