User Profile
Barks34
Member
Joined 7 years ago
User Widgets
Contributions
- 4Views0likes0Comments
- 33Views0likes0Comments
Support
I was diagnosed in 2018 and had a double mastectomy and chemo, as a side effect of the chemo I have neuropathy pain in my feet and I have tried everything and the latest doctor told me there is nothing left to try and I will always have it. How long can BCN provide support, I am really struggling and sometimes wish the cancer was terminal and then I would suffer every day and be reminded of what happened and all the consequences. 😢246Views0likes9CommentsRe: Peripheral neuropathy - getting worse despite ending Taxel after 6 treatments
I finished chemo in Oct 2018 and still suffer from severe PN and I have tried everything. By the end of the day I am reduced to tears. Would do anything to have a respite from the constant pain. Walking makes it worse, duloxetine doesn’t help, neither did acupuncture, massage, various creams. Have been told I will probably have it always. Cancer the disease that keeps on giving......41Views0likes0CommentsCheckups
I was diagnosed in March 2018, mastectomy April 2018, chemo May- Oct 2018, now on Toremifene, had a second mastectomy Oct 2019, my choice, when I had reconstruction, waiting for another reconstruction. I dont have any checks or tests planned as I have finished treatment and when I queried I was told as per national guidelines there is no need. So do I just take the toremifene until the 5 years is up, is that from when I started on it or when I was diagnosed? Last appointment I had with oncologist was April 2019 and was told i was going longer than usual but I had extremely bad neuropathy pain and a reaction to tamoxifen. How do you cope knowing the cancer may be back but dont know? My breast care nurse is FABULOUS as is my surgeon, just confused and concerned. I dont have a GP as where I live only has locum doctors so its a different doctor every time I go.297Views1like3Comments
Groups
Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.