-
Lymphedema - working with keyboard and mouse
Been awhile since I have been here but looking for some advice. I was diagnosed with Lymphedema in my hand and lower arm 13 months after breast and auxiliary clearance due to the cancer spreading to the nodes. The last 12 months I have been using compression garments, massage the area regularly and have a lymphatic massage…
-
Freaking out a bit
Hi, It’s been a while since I’ve been on here....mainly because I cope best by not thinking about the cancer. (Diag dec 2017...stage 2. +Hormone -Her - Lumpectomy, radiation and tamoxifen) But, over the past 6 weeks, I’ve developed tinnitus, dizziness and bad headache) I’ve been to the ENT who has referred me for a head…
-
life after tamoxifen
Hi All, This is my first time posting. I was one of those that coped better trying to forget about breast cancer. I had a breast removed, chemo, radiation and currently in my 6th year of Tamoxifen. (It was originally prescribed for 5 years then almost flippantly my surgeon said lets make it 10 years).Tamoxifen has…
-
Lymph nodes under the arm and neck area.
Hi to you all. I am interested in knowing if anyone has had Radiation to the neck area and what was the outcome. I have been on Letrozole for two and a half years to shrink the BC and the nodes. Has been working up to now.??? Last scan showing an increase in size of all. Neck area has always been inoperable. 90% Estrogen…
-
Kisqali - an opportunity to influence the drug company
I have the opportunity to talk to the manufacturers of the newly listed drug, Kisqali. I would love it if it if you could think about anything you’d like the company to provide you when you take Kisqali. For example - I’d like smaller tablets and I think a phone helpline to answer questions about the drug would be good.…
-
Swelling in the reconstructed breast
Hi all, this is my first post. September 2017 I was diagnosed with 6cm tumour with node involvement - not visible on ultrasound or mammogram. May 2018 I had a skin sparing mastectomy ‘L’ breast with a spacer. In July 2018 I had the reconstruction done. Since then I have been just getting on with life. This included taking…