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life after tamoxifen
Hi All, This is my first time posting. I was one of those that coped better trying to forget about breast cancer. I had a breast removed, chemo, radiation and currently in my 6th year of Tamoxifen. (It was originally prescribed for 5 years then almost flippantly my surgeon said lets make it 10 years).Tamoxifen has…
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Lymph nodes under the arm and neck area.
Hi to you all. I am interested in knowing if anyone has had Radiation to the neck area and what was the outcome. I have been on Letrozole for two and a half years to shrink the BC and the nodes. Has been working up to now.??? Last scan showing an increase in size of all. Neck area has always been inoperable. 90% Estrogen…
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Kisqali - an opportunity to influence the drug company
I have the opportunity to talk to the manufacturers of the newly listed drug, Kisqali. I would love it if it if you could think about anything you’d like the company to provide you when you take Kisqali. For example - I’d like smaller tablets and I think a phone helpline to answer questions about the drug would be good.…
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Swelling in the reconstructed breast
Hi all, this is my first post. September 2017 I was diagnosed with 6cm tumour with node involvement - not visible on ultrasound or mammogram. May 2018 I had a skin sparing mastectomy ‘L’ breast with a spacer. In July 2018 I had the reconstruction done. Since then I have been just getting on with life. This included taking…
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Hello -question about auxiliary clearance
hi, I’m new to the forum - I had a lumpectomy two weeks ago along with an auxiliary clearance- I get my path results tomorrow! Can anyone advise how long it took their arm to feel half normal again? Just a slight touch on the back of my arm is very sensitive and my under arm can feel like it’s on fire sometimes. The area…
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What to expect when coming off tamoxifen - your experience?
In a few months time I come off the hormone blocking drug, tamoxifen, which I'll have been on for ten years. What withdrawal symptoms can I expect to feel and how long may they last before returning to 'normal'? I ask because a few years ago, I forgot my drugs while on holiday, and didn't have it for a couple of weeks and…
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Feeling frustrated
One week tomorrow since I finished radiation treatment. I was told it would peak this week and they wore not wrong. It has been a very trying time. Wednesday, Thursday and Friday were the worst and now the tiredness has kicked in. Feeling very low today. I am over being sore and uncomfortable but it is the tiredness that…