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NEW Private Group - Triple Positive Breast Cancer (TPBC)
Hello members, If you have been diagnosed with 'Triple Positive Breast Cancer' (TPBC) or supporting someone with this breast cancer type, you may have asked whether we have a private group available for people. Currently we do not have a dedicated group, however there are several members who would like to see a specific…
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Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying…
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Extreme weakness!
Ladies please tell me this won't last ,, im only a week into my first cycle and im struggling to be on my feet for more than a minute or two. Thursday I could barely lift my head to drink. Is it the Docetaxel, Cisplatin and Herceptin? My Oncologist must think im a super hero.. No nausea as yet, but mild belly pain and…
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On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully
I’ve been on H&P for over 12 months -experiencing itchy skin for last 4 months or so. Mostly red spots on chest and shoulders/back Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a…
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Tips and recommendations during Taxol
I am starting my TH regime on the 22nd of August. I am looking for any tips or recommendations to make this part of my journey as less unpleasant as possible. Cancer centre has cold caps and cold gloves… do they actually help or are they worth the discomfort? Please hit me with your top tips. Anything from shampoos,…
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26 & in complete shock
I never thought I would hear the words.. let alone at 26. I have been recently diagnosed with Stage 2 Triple Postive beast cancer after finding a 3.5cm lump in my left breast & lymph node spread after further testing. Although I have family history, my Aunty & grandma were diagnosed with estrogen Postive breast cancer. I…
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Going flat with pride
When diagnosed with early HER2+ DCIS in August (right breast), my decision was immediate. Bilateral mastectomy for me. No reconstruction. Why? I'm 61 years old, have been married twice and have had another 15 year relationship. I'm not looking for a man and furthermore, I don't care whether a man would find my flat chest…
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Herceptin 11 years on
hi everyone long time since I have been on here as things were going as well as can be expected but now I have this cough which I have now had for approx 10 months that just won't go. My GP says my lungs (which is where my mets are) sound fine but the cough is heavy and loud with a high pitch - it even scares my dog lol.…
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How do you decide on treatment?
Hi, this is soo not a me thing to do - I'm basically a very private person and struggle to ask for help, but I was filling in some sleepless hours reading some posts and decided I should bite the bullet... I was diagnosed late May initially ER/PR+ HER2- grade 2 from biopsy, so suggested treatment was BCS followed by…