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Newly diagnosed
the waiting is a bitch, I only found out on Wednesday, I have US and CT tomorrow and stressing to the max, the not knowing is quite awful. Ductal carcinoma In situ and metastatic carcinoma in lymph gland, no family history and I’m scared
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Psoriasis flare up!
I have had six weeks of Paclitaxel and had a flare up of psoriasis. The first lot of chemo treatments cleared it up completely. It was so good not having red angry patches to deal with. The psoriasis isn't responding to treatment. Does anyone have any suggestions?
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What I wish I had understood 4 months ago.
I wish I had trusted that I would get knocked down but I would get up again. That my fears of chemo were real but exaggerated. Yes AC was tough but Paclitaxel less so. That I should just listen to my body and rest. Woolies online shopping was a godsend when energy was low. Have a project: I'm a family history nut and…
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Menopause + triple negative
What treatment is there for menopause symptoms after triple negative bc? I’m struggling with weight, Joint pain, sweats, lack of sleep, dry painful vagina. Help please?
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Triple Negative - persistent cancer cells after mastectomy.
Hello 👋 I am currently in hospital after having a double mastectomy, axillary clearance & reconstruction. The operation was quite a bit more intense than I imagined, so it’s thrown me around a bit. I’m coming good though after 7 days in hospital. The disappointing part is the pathology results.. Obviously I was hoping for…
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Positivity
I have been reflecting on positivity and what it means to me. I know that the word gets thrown around with fervour or with scorn but I'm feeling a little philosophical, so here goes... I think there is are two major types of positivity (and maybe more but it's 7am on a work morning so I've not explored too deeply). The one…
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I need a hug
Hi everyone, I thought I was coping pretty well considering the sucky state of my family's health at the moment. But today I've been thrown yet another curve ball. My surgery is on Friday 24 th and I was scheduled for the lymphoscintogram and needle localisation procedures to be done on the same day - pre my afternoon…
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Mets in brain & liver after 5 yrs feeling good.
Just before Xmas I was diagnosed with Stage 4 breast cancer. To see my GP & later my oncologist so upset I knew it wasn't good. I have 40 tumours in my brain...after only having very slight headaches & 5 or so tumours in my liver...again only slight pain in my right side. My whole world was turned totally inside out. I…
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Brainless
I'd hoped that two years would be long enough for me to get my act together. But, no. I continue to forget what I'm doing, forget what I've done, forget how-to do things and where I've put things. I've actually given up doing stuff I like because I think I'm a danger to myself. Bandsaws are a bad idea in my current head…
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Phone Contact with Eastern Health Breast and Cancer Centre
Just wondering if anyone else has had difficulty contacting the Eastern Health Breast and Cancer Centre by phone? Maybe it's just me but every time I call I get transferred to an answer machine, either for appointments OR to speak to a Breast Care Nurse and am told someone will call back. And they usually do, however, I…
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6 years and counting my blessings!
Six years ago today I received a phone call from the nurse at my GPs saying that my GP would like to see me that morning. I knew that this was probably not good news about the mammogram and ultrasound I had had the Thursday before. It was a very brief visit where I was to hear the words suspicious for malignancy and the…