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Peta_Kaye's avatar
Peta_Kaye
Member
12 years ago

Scared of recurrence!!

HI there Ladies,

In March I had a lumpectomy and sentinal node biopsy for my grade 3 TNBC.  Then 3 Rounds of FEC and 3 Docetaxol followed by 30 sessions of rads and BRCA testing.  

 

The testing came back inconclusive, which I am aware is very common, but now I have this nagging fear, I am sure you all have it.  Reccurrence rates are floating around in my head, day and night.  

I can't help but keep hearing, aggressive ... aggressive.... aggressive.  I now wish I had gone the bilateral mastectomy and reconstruction for my original plan.

Have any of you out there had a lumpectomy and treatment and then decided to go back for a mastectomy?  Have any of you made it past the dreaded 5 year mark and gained the all clear?

 

23 Replies

  • Hi Peta,

    I found out half way through treatment that I was BRCA1 positive. My onc did tell me before the results came back that even if they were negative, I still may be positive......MENTAL!!!! 

    I had a lumpectomy before chemo.

    My decision....the ovaries are coming out in January & the  bilateral mastectomy and lat dorsi reconstruction is booked in for 25th Feb. I didn't even think twice once my oncologist threw some scary numbers at me. I actually called my PS yesterday to see if we could pull the surgery fwd into late January. 

    It's never too late to talk to your Drs

    Sam xoxoxox