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kel016's avatar
kel016
Member
14 years ago

Profilatic mascetomy

Just wondering how many ladies have opted to have a double mastectomy with cancer only in one breast to try and eliminate the possibility of it coming back. Also was your choice based on a genetic factor or purely prevention and peace of mind?? Thanks kel xxxxxx

80 Replies

  • Hi Emma , I think we r in the identical boat!! Minus me having boys and yourself girls. I must admit when I read your post I read it through teary eyes. I think mostly because having someone with exactly the same experience, fears etc is for one thing sad because u know what they r going through, and secondly the fact that your own emotions r validated. I'm going down to c my surgeons on the 4th of April to discuss my options and to talk about what I should expect. Because I had rays I will have to have a lat dorsi which is using your back muscles, but I'm hoping they can just put a implant on the other side to save cutting into my back twice. I'm nervous that's for sure but like I said to my husband, if it was internal there would b nothing I could do about it. But it's not, it's on the outside so I feel to give me the best outcome and chance of it not coming back, I owe it to myself and my family to through everything at it. I finished my last rays b4 Xmas 2011, so it's been just over 14mths. After I finished everything I said I wasn't doing a recon, but I think it was more to do with having enough of everything!!! Gradually I've grown sick of the high necks and chicken fillets, I'm sure u sympathize!!! So I started firstly with my fitness, I was always a healthy eater, never smoked or drank so I didn't need to change those. So I started boxfit / cross fit , which has been great for not only my fitness but my peace of mind to know that I can get through these next lot of ops. If u want to keep writing that's cool and it does help ALOT . I'll let u know what the docs say, I can barely wait to c them. I'm also having my second yearly mammogram, it will b 2yrs in June since I had the mastectomy . Hopefully that's all ok too.. Love to u and your family .xxxx
  • Hi Kel,

    Thank you for your post as I too am thinking about having my other breast removed.  I was diagnosed in June last year (at the age of 34) and had an immediate mastectomy and following this surgery I had my lymph nodes removed, as cancer was detected.  I went on to have 6 sessions of chemo, 5 weeks of radiation and am now on Tamoxifen.

    My next goal is reconstructive surgery.  I am giving my body a good 7/8 months break (I finished radiation in January) and hope to have my other breast removed and a double reconstruction at the same time.  I have 2 little girls and I also want to eliminate the risk factor.

    I know exactly how you are feeling right now - so many decisions.  I have started the gene testing process and will find out my results around July however despite the results, I know that I will still have my other breast removed.  It is more out of fear than anything else - just don't want it to come back ever!

    Thinking of you

    x

     

  • Hi Kel,

    Thank you for your post as I too am thinking about having my other breast removed.  I was diagnosed in June last year (at the age of 34) and had an immediate mastectomy and following this surgery I had my lymph nodes removed, as cancer was detected.  I went on to have 6 sessions of chemo, 5 weeks of radiation and am now on Tamoxifen.

    My next goal is reconstructive surgery.  I am giving my body a good 7/8 months break (I finished radiation in January) and hope to have my other breast removed and a double reconstruction at the same time.  I have 2 little girls and I also want to eliminate the risk factor.

    I know exactly how you are feeling right now - so many decisions.  I have started the gene testing process and will find out my results around July however despite the results, I know that I will still have my other breast removed.  It is more out of fear than anything else - just don't want it to come back ever!

    Thinking of you

    x

     

  • Hi Kel

    I had a bilateral mastecomy and reconstruction (by expanders) in April last year.  The lump I found was identified in one breast,  however I elected to have them both removed as my mum is also a bc survivor and she only had one removed.  She is 7 years remission - which is fabulous, however she still stresses about it returning .  My choice proved to be the right one for me.  The pathology post surgery was that there was another small tumor in the same breast 2mm, and there were pre-malignant cells in the other breast.  I have had no regrets whatsoever.  But this is a very personal choice, it is not for everyone. My relationship with my old sagy breasts was not fabulous and I shed no real tears about losing them.  I think that seeing my mum (who had chemo and has not been reconstructed) contributed to this. I was 40 when diagnosed and my cancer was stage 2 and there was no lymph node involvement.  I have been so very lucky to have escaped chemo - however am on Tamoxifen for 5 years.  At the end of this month is my first anniversary since diagnosis.   I can't believe almost a year has gone.  I am fully reconstructed now and are very happy with the result.  I wish you all the best on your journey.  I am happy to answer any questions you may have - just ask

    Hugs

    Liz x 

  • Hi Kel,

    I had a mastectomy in June and next month I am going to see my surgeon for a referral to a plastic surgeon for reconstruction.  At the same time, I will be having the other breast off.  I have not had any genetic testing and do not know if there has been anyone in forebears with it as they have all died.

    I am having it to reduce my worry about it coming back in other one and also as the one I have left is large and saggy and it would be hard to match up.  There have been many women on this site who have had a breast reoccurance and that scares me.

    My surgeon says that I will probably have a DIEP flap which is a long op.(10 hours or more for two breasts)but he says they have been getting good results and is happy to support my decision.

    I have heard that medicare only pays for cancerous one and that health funds dont give much back but have not enquired yet.

    Julia

     

  • Hi Kel,

    I had a mastectomy in June and next month I am going to see my surgeon for a referral to a plastic surgeon for reconstruction.  At the same time, I will be having the other breast off.  I have not had any genetic testing and do not know if there has been anyone in forebears with it as they have all died.

    I am having it to reduce my worry about it coming back in other one and also as the one I have left is large and saggy and it would be hard to match up.  There have been many women on this site who have had a breast reoccurance and that scares me.

    My surgeon says that I will probably have a DIEP flap which is a long op.(10 hours or more for two breasts)but he says they have been getting good results and is happy to support my decision.

    I have heard that medicare only pays for cancerous one and that health funds dont give much back but have not enquired yet.

    Julia

     

  • No worries, Kel. We don't mind creative spelling. :)  But if you do want to change what you've written (any time), you can just click on the 'edit' tab at the top of your post, make the changes, then scroll down and save.