I am not a medical professional but my reading of the latest Queensland Health Order is that only urgent elective surgery can proceed at the moment . This is the same position in NSW due to the hospitalisation rates as a result of Omicron compounded by the number of hospital staff who are off work as a result of contracting Covid as well as being close contacts. My understanding is that a mastectomy of the non cancer breast would be classed as non urgent elective surgery so it may be that your surgeon has no choice in the matter. But communication is important and emailing the surgeon and asking the question is worthwhile. All the best.","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:203871"},"author":{"__typename":"User","login":"Julez1958"},"postTime":"2022-01-25T20:26:02.000-08:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":203894,"body":"Hi @Fernweh that is great news. Assuming you want to proceed with the double. I initially was going with the single but ended up with the double after my breast cancer surgeon ( who was private) raised it with me as an option to consider given my cancer was lobular and that had a higher chance of appearing in the other breast. He said it was a 10 percent chance and how risk averse was I? The answer was “ very”. He said the decision was very personal and there was no wrong or right answer. I spoke to my breast care nurse, my female GP and a lady who had the double who was a friend of a friend. I didn’t want the anxiety of wondering if I had to go through the whole shiftest again especially as my cancer never showed up on the mammogram .There is of course the other argument why remove a perfectly healthy breast and 10 percent is pretty good odds. As I said it’s a decision only you can make but having made it I am very happy I did.","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:203871"},"author":{"__typename":"User","login":"Julez1958"},"postTime":"2022-01-25T20:36:04.000-08:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":203910,"body":"I agree, I think also it would be hard to match up the same size also. There was a thread in here about that a while ago.","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:203871"},"author":{"__typename":"User","login":"Keeping_positiv"},"postTime":"2022-01-25T22:09:02.000-08:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":203917,"body":"Where there is a will, there is a way. So pleased you have got a new surgery date. Good you just didn't accept what you have been told, but you have determination, and got some good examples from others that have stood their ground, that is what we can help people with in here. Some members have helped others wade through the bureaucracy, and we have some gutsy members that do not shy away from that. Keep us posted if you would like to.","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:203871"},"author":{"__typename":"User","login":"Keeping_positiv"},"postTime":"2022-01-26T01:48:11.000-08:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":203872,"body":"Here in Victoria I heard a lady on the radio talking about her breast cancer as elective surgery is banned here at present with no suggested end date. She wanted a double Mastectomy but can only have a single. The single breast is Category 1 (breast cancer) the other is a good breast and cannot be done now as it's considered elective COVID hurts in lots of ways.
The comment your surgeon made about COVID rings true
The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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this Thursday..","id":"message:203871","revisionNum":1,"repliesCount":55,"author":{"__ref":"User:user:23593"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:203871"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:203871"},"body":"I am booked in for a single mastectomy (followed by chemo and radio) this Thursday. I tried to discuss with my surgeon the possibility of removing both breasts at the same time, one being preventative (as this is what I would really want) but she dismissed it. I have asked again yesterday and she said she wouldn’t do it as it may delay treatment and because of covid, there is a need for beds in hospital.. plus there is double the risk for complications.
While I originally accepted her reasoning, I am now working myself up as I am upset that this option was not fully considered and the reasoning do not make all that sense to me. There are pros and cons of course..
Anyone been in a similar situation and/or had a second mastectomy later? How long after you finished treatment were you able to have another surgery? I do not want to delay surgery this week, but I also want to do the right thing for myself..
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While I originally accepted her reasoning, I am now working myself up as I am upset that this option was not fully considered and the reasoning do not make all that sense to me. There are pros and cons of course..
Anyone been in a similar situation and/or had a second mastectomy later? How long after you finished treatment were you able to have another surgery? I do not want to delay surgery this week, but I also want to do the right thing for myself..
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I do not want to delay surgery this week, but I also want to do the right thing for 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right breast doesn't feel the same anymore ... Is this the new norm post lumpectomy, chemo & rad?","conversation":{"__ref":"Conversation:conversation:222689"},"id":"message:222689","revisionNum":1,"uid":222689,"depth":0,"board":{"__ref":"Forum:board:surgery"},"author":{"__ref":"User:user:19982"},"metrics":{"__typename":"MessageMetrics","views":279},"postTime":"2018-08-20T08:25:51.000-07:00","lastPublishTime":"2018-08-20T08:25:51.000-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"I had my lumpectomy in June 2017 and lymph nodes in right arm removed in July. Chemo stopped at Xmas and rad in March. Now I am just on Herceptin until Oct. I have been noticing changes over the past...","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":17,"readOnly":false,"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:lumpectomy","text":"lumpectomy","time":"2025-02-12T19:23:18.414-08:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:lymph-nodes","text":"lymph-nodes","time":"2025-03-25T05:02:13.735-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:side-effects","text":"side-effects","time":"2025-03-25T05:01:42.742-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"videos":{"__typename":"VideoConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"Conversation:conversation:149982":{"__typename":"Conversation","id":"conversation:149982","topic":{"__typename":"ForumTopicMessage","uid":149982},"lastPostingActivityTime":"2025-02-22T14:56:19.000-08:00","solved":false},"User:user:1287":{"__typename":"User","uid":1287,"login":"Perks","registrationData":{"__typename":"RegistrationData","status":null},"deleted":false,"id":"user:1287"},"ForumTopicMessage:message:149982":{"__typename":"ForumTopicMessage","subject":"Nerve pain with expander","conversation":{"__ref":"Conversation:conversation:149982"},"id":"message:149982","revisionNum":1,"uid":149982,"depth":0,"board":{"__ref":"Forum:board:surgery"},"author":{"__ref":"User:user:1287"},"metrics":{"__typename":"MessageMetrics","views":212},"postTime":"2023-03-25T23:14:07.000-07:00","lastPublishTime":"2023-03-25T23:14:07.000-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"Hi there, I had a mastectomy 3 weeks ago now and had my first saline fill last week, since then I have had terrible pain where my nipple should be like someone is squeezing it tightly. 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@Fernweh don’t worry, she’ll definitely get it. Remember that the nurse would have to contact you about the surgery tomorrow if they think it’s going through, and they usually do it the night before. If they do contact you tonight, let them know that plans have been changed, and they can follow it up with the surgeon. If they don’t contact you, it means the surgeon definitely got the email. You sent the email, there’s written proof, so you’ve done everything correctly 🙂.
\n
\nThank you! :) The nurse called me yesterday as today is public holiday.
I am sure she got the email.. I am treating today as a normal day for bc related stuff not an holiday..","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":0,"postTime":"2022-01-25T22:59:16.000-08:00","lastPublishTime":"2022-01-25T22:59:16.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203916","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"957","rawBody":"
@Fernweh don’t worry, she’ll definitely get it. Remember that the nurse would have to contact you about the surgery tomorrow if they think it’s going through, and they usually do it the night before. If they do contact you tonight, let them know that plans have been changed, and they can follow it up with the surgeon. If they don’t contact you, it means the surgeon definitely got the email. You sent the email, there’s written proof, so you’ve done everything correctly 🙂.
\n
\nThank you! :) The nurse called me yesterday as today is public holiday.
I am sure she got the email.. I am treating today as a normal day for bc related stuff not an holiday..","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203916_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22664":{"__typename":"User","id":"user:22664","uid":22664,"login":"FLClover","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-04-24T18:52:46.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/R8SGRHCT6997/pNWX7U3FFSVM4.jpeg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22664"},"ModerationData:moderation_data:203915":{"__typename":"ModerationData","id":"moderation_data:203915","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203915":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22664"},"id":"message:203915","revisionNum":1,"uid":203915,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203915"},"body":"Thanks @Keeping_positive1 😊.
@Fernweh don’t worry, she’ll definitely get it. Remember that the nurse would have to contact you about the surgery tomorrow if they think it’s going through, and they usually do it the night before. If they do contact you tonight, let them know that plans have been changed, and they can follow it up with the surgeon. If they don’t contact you, it means the surgeon definitely got the email. You sent the email, there’s written proof, so you’ve done everything correctly 🙂.
@Fernweh don’t worry, she’ll definitely get it. Remember that the nurse would have to contact you about the surgery tomorrow if they think it’s going through, and they usually do it the night before. If they do contact you tonight, let them know that plans have been changed, and they can follow it up with the surgeon. If they don’t contact you, it means the surgeon definitely got the email. You sent the email, there’s written proof, so you’ve done everything correctly 🙂.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203915_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22307":{"__typename":"User","id":"user:22307","uid":22307,"login":"Keeping_positiv","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-10-31T04:31:03.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-7.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22307"},"ModerationData:moderation_data:203914":{"__typename":"ModerationData","id":"moderation_data:203914","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203914":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22307"},"id":"message:203914","revisionNum":1,"uid":203914,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203914"},"body":"@Fernweh I have sent you a private message. You can find it at the top of the page. click on the envelope icon.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"117","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-01-25T22:30:59.000-08:00","lastPublishTime":"2022-01-25T22:30:59.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203914","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"117","rawBody":"@Fernweh I have sent you a private message. You can find it at the top of the page. click on the envelope icon.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203914_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:203913":{"__typename":"ModerationData","id":"moderation_data:203913","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203913":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22307"},"id":"message:203913","revisionNum":1,"uid":203913,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203913"},"body":"Don't worry @Fernweh sometimes our determination gets flown out the window in the beginning as we in a whirlwind, and need to gather our team. Thankfully you took that step and got in touch with your surgeon by email today. I am all for not being complacent when it comes to our health concerns. Too late if you didn't make contact today and dreaded tomorrow's surgery. I hope some of us didn't come across as too pushy, but I believe you were not happy until you had more discussions with your surgeon. Now you have a new surgery date, yippee, and some breathing space. :)
@FLClover is a good role model for helping people to get their determination back in tact. :)","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":0,"postTime":"2022-01-25T22:22:37.000-08:00","lastPublishTime":"2022-01-25T22:22:37.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203913","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"720","rawBody":"Don't worry @Fernweh sometimes our determination gets flown out the window in the beginning as we in a whirlwind, and need to gather our team. Thankfully you took that step and got in touch with your surgeon by email today. I am all for not being complacent when it comes to our health concerns. Too late if you didn't make contact today and dreaded tomorrow's surgery. I hope some of us didn't come across as too pushy, but I believe you were not happy until you had more discussions with your surgeon. Now you have a new surgery date, yippee, and some breathing space. :)
@FLClover is a good role model for helping people to get their determination back in tact. :)","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203913_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:203912":{"__typename":"ModerationData","id":"moderation_data:203912","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203912":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23593"},"id":"message:203912","revisionNum":1,"uid":203912,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203912"},"body":"One last question from me.. I have emailed the surgeon around midday and she replied in a few minutes. I have then only went back to her to confirm I wanted to postpone an hour ago and she has not yet acknowledged it.. it is silly, but being a public holiday can I go on with my day knowing I will not be going to hospital tomorrow or can something change? ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-01-25T22:17:57.000-08:00","lastPublishTime":"2022-01-25T22:17:57.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203912","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"362","rawBody":"One last question from me.. I have emailed the surgeon around midday and she replied in a few minutes. I have then only went back to her to confirm I wanted to postpone an hour ago and she has not yet acknowledged it.. it is silly, but being a public holiday can I go on with my day knowing I will not be going to hospital tomorrow or can something change? ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203912_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:203911":{"__typename":"ModerationData","id":"moderation_data:203911","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203911":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22664"},"id":"message:203911","revisionNum":1,"uid":203911,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203911"},"body":"I’m glad you did too 😊. I hope you feel better about your decision. We need all the support we can get during this time. Let us know if anything else is ever bothering you 🙂💟. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"184","kudosSumWeight":1,"repliesCount":0,"postTime":"2022-01-25T22:09:28.000-08:00","lastPublishTime":"2022-01-25T22:09:28.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203911","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"184","rawBody":"I’m glad you did too 😊. I hope you feel better about your decision. We need all the support we can get during this time. Let us know if anything else is ever bothering you 🙂💟. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203911_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:203910":{"__typename":"ModerationData","id":"moderation_data:203910","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203910":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22307"},"id":"message:203910","revisionNum":1,"uid":203910,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203910"},"body":"I agree, I think also it would be hard to match up the same size also. There was a thread in here about that a while ago.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"127","kudosSumWeight":2,"repliesCount":0,"postTime":"2022-01-25T22:09:02.000-08:00","lastPublishTime":"2022-01-25T22:09:02.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203910","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"127","rawBody":"I agree, I think also it would be hard to match up the same size also. There was a thread in here about that a while ago.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203910_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:203909":{"__typename":"ModerationData","id":"moderation_data:203909","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203909":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23593"},"id":"message:203909","revisionNum":1,"uid":203909,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203909"},"body":"
It’s actually not strange at all that you’re overthinking it. I do the same. It’s the fear. You never know if you’re making the right decision, and you doubt yourself every time in case things go wrong. But things can go wrong no matter how much you plan and no matter how much something could be the right decision. We’re not in control of that. And you’re even more scared because you’re going against the surgeon’s wishes. But that just shows how little control we have over decisions about our own bodies. We feel guilty and doubtful whenever we go against the doctor, and it shouldn’t be like that. We should always be given full control by our doctors, so we never have to feel doubtful. This is why I’m so annoyed by your surgeon’s initial hesitancy to do a double. She now has you feeling doubtful and scared, even though those options were given to women for years prior.
I was diagnosed at 39, no family history and no reason to suspect I had it. I had had an ultrasound in 2016 which showed a little cyst and nothing more. I asked for another one in 2018 and was denied. (Waste of resources). I found a lump end of 2019, which then turned out to be 2.5 lumps in my right, AND another lump in my left. All positive. I had the mri with contrast before surgery, which basically showed every possible type of lump under the sun in my breasts, including DCIS. So my surgeon opted for the double. It was not that much riskier as I said, plus I had expanders inserted. I recovered quite quickly and didn’t need too many painkillers either. I did all the physio exercises I was given in hospital. I also did qigong prior to surgery and as much as I could afterwards. I took long walks, even with those dreaded drains, and put music on and danced to it as much as I could, even one day post surgery. Prep and mindset are very important. You’re young, and there’s no reason you shouldn’t reach very old age. Heaps of women in our situation have. But you have to be your own advocate, and always listen to your intuition. It always knows best for you.
\n
\nI love your determination! I am usually the same and I am so glad I reached out today about my situation as it helped me a lot 🌻","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-01-25T22:01:36.000-08:00","lastPublishTime":"2022-01-25T22:01:36.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203909","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"2428","rawBody":"
It’s actually not strange at all that you’re overthinking it. I do the same. It’s the fear. You never know if you’re making the right decision, and you doubt yourself every time in case things go wrong. But things can go wrong no matter how much you plan and no matter how much something could be the right decision. We’re not in control of that. And you’re even more scared because you’re going against the surgeon’s wishes. But that just shows how little control we have over decisions about our own bodies. We feel guilty and doubtful whenever we go against the doctor, and it shouldn’t be like that. We should always be given full control by our doctors, so we never have to feel doubtful. This is why I’m so annoyed by your surgeon’s initial hesitancy to do a double. She now has you feeling doubtful and scared, even though those options were given to women for years prior.
I was diagnosed at 39, no family history and no reason to suspect I had it. I had had an ultrasound in 2016 which showed a little cyst and nothing more. I asked for another one in 2018 and was denied. (Waste of resources). I found a lump end of 2019, which then turned out to be 2.5 lumps in my right, AND another lump in my left. All positive. I had the mri with contrast before surgery, which basically showed every possible type of lump under the sun in my breasts, including DCIS. So my surgeon opted for the double. It was not that much riskier as I said, plus I had expanders inserted. I recovered quite quickly and didn’t need too many painkillers either. I did all the physio exercises I was given in hospital. I also did qigong prior to surgery and as much as I could afterwards. I took long walks, even with those dreaded drains, and put music on and danced to it as much as I could, even one day post surgery. Prep and mindset are very important. You’re young, and there’s no reason you shouldn’t reach very old age. Heaps of women in our situation have. But you have to be your own advocate, and always listen to your intuition. It always knows best for you.
\n
\nI love your determination! I am usually the same and I am so glad I reached out today about my situation as it helped me a lot 🌻","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:203909_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:203908":{"__typename":"ModerationData","id":"moderation_data:203908","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203908":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23593"},"id":"message:203908","revisionNum":1,"uid":203908,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203908"},"body":"
I have never ever seen any comments in here of women regretting having a DMX. Some even choose to stay flat afterwards and some choose reconstruction. I am not sure about what is required regarding expanders etc and later a person is choosing reconstruction, nor the regime around radiotherapy. Has your surgeon discussed this with you?
\n
\nThat is what I am reading too. I have not discussed reconstruction, but I was told it will be possible. The right breast needs to be fully removed (including nipple) and was looking to keep the nipple on the other one I guess In my mind.. I want to stay flat and have a nice big tattoo across my chest. However now that I have some extra days I will do some research on reconstruction and what needs to be done now, just in case.
I am also thinking that if I do a reconstruction it would be good to do both breasts from scratch rather than having to match them plus I can have both a slightly smaller size if I want to, which I assume would not be possible if I had a SMX only..","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"218","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-01-25T21:57:27.000-08:00","lastPublishTime":"2022-01-25T21:57:27.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203908","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"1309","rawBody":"
I have never ever seen any comments in here of women regretting having a DMX. Some even choose to stay flat afterwards and some choose reconstruction. I am not sure about what is required regarding expanders etc and later a person is choosing reconstruction, nor the regime around radiotherapy. Has your surgeon discussed this with you?
\n
\nThat is what I am reading too. I have not discussed reconstruction, but I was told it will be possible. The right breast needs to be fully removed (including nipple) and was looking to keep the nipple on the other one I guess In my mind.. I want to stay flat and have a nice big tattoo across my chest. However now that I have some extra days I will do some research on reconstruction and what needs to be done now, just in case.
I am also thinking that if I do a reconstruction it would be good to do both breasts from scratch rather than having to match them plus I can have both a slightly smaller size if I want to, which I assume would not be possible if I had a SMX only..","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203908_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:203907":{"__typename":"ModerationData","id":"moderation_data:203907","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:203907":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23593"},"id":"message:203907","revisionNum":1,"uid":203907,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:203871"},"conversation":{"__ref":"Conversation:conversation:203871"},"subject":"Re: Mastectomy this Thursday..","moderationData":{"__ref":"ModerationData:moderation_data:203907"},"body":"
I love a bit of scientific evidence base for decision making and a research so much in my spare time. However when making surgery decisions for myself, it goes beyond quantifiable benefits/risks.
I had a cancer than would typically be removed by lumpectomy. But I chose a skin sparing mastectomy (and immediate recon).
I had a few reasons, but first and foremost was anxiety. Thankfully my care team were respectful of this being a valid reason for my choice.
I know that I only reduced my recurrence risk by a tiny amount and that the mortality rate is essentially the same with either option. But stress is scientifically shown to cause disease. No one would be able to easily quantify the overall health benefits of me sleeping peacefully each night, versus constant thoughts of doubt and worry had a chosen a lumpectomy instead. I knew the statistics, I knew a lumpectomy would be adequate, but anxiety is a fickle beast who doesn't tend to like logic!
\n
\nYes to this! 🌸 I have been reading the same that it is unnecessary to remove the other breast as it does not change the survival rate and there is nothing to show it will not come back, but still.. Why should I take chances and be worried about the lonely left breast when I can remove that worry and focus on the overall health of the rest of my body.l with one less anxiety inducing thing..","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-01-25T21:50:28.000-08:00","lastPublishTime":"2022-01-25T21:50:28.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:203871/message:203907","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"1509","rawBody":"
I love a bit of scientific evidence base for decision making and a research so much in my spare time. However when making surgery decisions for myself, it goes beyond quantifiable benefits/risks.
I had a cancer than would typically be removed by lumpectomy. But I chose a skin sparing mastectomy (and immediate recon).
I had a few reasons, but first and foremost was anxiety. Thankfully my care team were respectful of this being a valid reason for my choice.
I know that I only reduced my recurrence risk by a tiny amount and that the mortality rate is essentially the same with either option. But stress is scientifically shown to cause disease. No one would be able to easily quantify the overall health benefits of me sleeping peacefully each night, versus constant thoughts of doubt and worry had a chosen a lumpectomy instead. I knew the statistics, I knew a lumpectomy would be adequate, but anxiety is a fickle beast who doesn't tend to like logic!
\n
\nYes to this! 🌸 I have been reading the same that it is unnecessary to remove the other breast as it does not change the survival rate and there is nothing to show it will not come back, but still.. Why should I take chances and be worried about the lonely left breast when I can remove that worry and focus on the overall health of the rest of my body.l with one less anxiety inducing thing..","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:203907_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"CachedAsset:text:en_US-components/community/NavbarDropdownToggle-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/community/NavbarDropdownToggle-1742938040000","value":{"ariaLabelClosed":"Press the down arrow to open the menu"},"localOverride":false},"CachedAsset:text:en_US-components/messages/EscalatedMessageBanner-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/EscalatedMessageBanner-1742938040000","value":{"escalationMessage":"Escalated to Salesforce by {username} on {date}","viewDetails":"View Details","modalTitle":"Case Details","escalatedBy":"Escalated by: ","escalatedOn":"Escalated on: ","caseNumber":"Case Number: ","status":"Status: ","lastUpdateDate":"Last Update: ","automaticEscalation":"automatic escalation","anonymous":"Anonymous"},"localOverride":false},"CachedAsset:text:en_US-components/users/UserLink-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/users/UserLink-1742938040000","value":{"authorName":"View Profile: {author}","anonymous":"Anonymous"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/users/UserRank-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/users/UserRank-1742938040000","value":{"rankName":"{rankName}","userRank":"Author rank {rankName}"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageTime-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageTime-1742938040000","value":{"postTime":"Published: {time}","lastPublishTime":"Last Update: {time}","conversation.lastPostingActivityTime":"Last posting activity time: {time}","conversation.lastPostTime":"Last post time: {time}","moderationData.rejectTime":"Rejected time: {time}"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageSolvedBadge-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageSolvedBadge-1742938040000","value":{"solved":"Solved"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageSubject-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageSubject-1742938040000","value":{"noSubject":"(no subject)"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageBody-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageBody-1742938040000","value":{"showMessageBody":"Show More","mentionsErrorTitle":"{mentionsType, select, board {Board} user {User} message {Message} other {}} No Longer Available","mentionsErrorMessage":"The {mentionsType} you are trying to view has been removed from the community.","videoProcessing":"Video is being processed. 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