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Aami's avatar
Aami
Member
2 years ago

Healing Time

Hi everyone. I am new to this group. I had mastectomy around two weeks back. It's really sore and I have limited arm movement. It feels like my skin is glued to my chest wall. Any movement cause uncomfortable stretch. I would like to know how it has been with other group members. How long does it take for inner stitches to heal? When were you able to move your arm and body like normal without pain? I also have like balls under my arm which is really annoying. Can anyone suggest what they have done for that. Has any one taken any special food to heal faster? I have so many questions. Please help. Thanks
  • Hi @Aami, I didn’t have mastectomy. I had a lumpectomy and axillary clearance ( also about two weeks ago). Like you, I had very limited arm movements. I was given a set of arm exercises to do when I was discharged. I struggled to do most of the exercises as movement was uncomfortable to my chest. However, I diligently tried my best each day to stretch just a little more than the day before. I now have 80% arm movements. To be honest, I didn’t have any strength on my arm post surgery and had to use my right arm to help my left arm (surgery was on my left boots). I suspect I was traumatised by the two drains, they literally kill me whenever I make any movements so even when they were removed I suffered psychological!! 😂 

    I also have ‘balls’, I told my hubby it feels like a huge watermelon is snugged between my arm and my arm are extremely sensitive. When my surgeon saw me last week, he noticed how I was ‘carrying’ my arm and referred me to a physiotherapist who specialises with breast cancer patients. I had one session and it help me tremendously (the ball miraculously disappeared after physio but came back the next day). I do have follow up sessions with my physiotherapist in two weeks time. The physiotherapist says I may have developed minor cording already and she will be able to sort the cording progressively.

    With regards to diet, I haven’t really taken any special food. I am following a healthy diet, lots of fruits esp citrus (oranges, lemon in my water), and lots of vegetables (broccoli, cauliflower, spinach etc), fish (mainly salmon as it has omega 3) and avoiding spicy  and deep fried food.  I do have a day when I eat anything I want. I am drinking at least 2 litres of water daily. Since surgery, I haven’t had any alcohol 🍷, however my medical oncologist and surgeon think it is fine to have a glass once a week. I however just would like my body to heal sooner so am avoiding what I personally believe won’t help.I am told it takes about 4-6 weeks to heal, this is for an axillary clearance and lumpectomy. Maybe you can give your breast care nurse a call and ask her how long does a mastectomy takes to heal generally.

    I just had my Ldex taken, and shows I have some water retention (was told I need to drink more water!) and the machine says my body is still in the process of healing.

    With regards to pain, were you given painkillers? I was given painkillers but haven’t found the need to take them.

    Lastly, I am also walking at least 30 mins (5 days a week). I am not working so have found getting some physical activities beneficial to my body.

    Hope the above is helpful. 

    xx
    Gin
  • @Aami - welcome to the Blog ..... I hope we'll be able to help you as you recover from your surgery & treatment xx.  It CAN take a bit of time - you should have been given some exercises, post op, re your arm movement - just do what they told you - doing 'more' doesn't necessarily help either ... so don't 'overdo' it!  ;)   Some great tips from @GinGin xx

    Do you have a breast care nurse assigned to you?  If you do, please contact her with your concerns - or just ring your surgeon's office & get an earlier appointment.  You should be seeing him again soon, for your pathology results anyway .... so bring that appointment forward xx

    You could also ring our help line here too: 1800 500 258 (Mon-Fri) for a chat 

    take care & all the best


  • Hi @Aami
    i was on Endone for 4 weeks after my mastectomy and was in a lot of pain.
    My breast care nurse just said everyone was different.
    I got a bit better at the four week mark Ms then just took Panadol.
    I couldn’t drive for 6 weeks and my hubby did most of the cooking and other house duties ( we have a weekly cleaner).
    At 6 weeks I started seeing a physiotherapist recommended by by breast care nurse and that helped with scary issue and range of movement.
    I had reconstruction a year later and an 2 years in from that and the pain of the mastectomy is now a distant memory.

  • Thanks ladies for  nformation. I have been given excercies and when I do that, I ends up in more pain. I have been given endone which makes me dizzy and sleepy. It helps with pain but next day the pain is sane. My treatment is in public system. I don't  have breast surgeon appointment till next year. I haven't been given any specific nurse but there is a number where I can call to speak to any nurse available. Which means every time I get a different nurse. I have physio appointment next week. I am really scared and hope I will have normal movements soon.
  • Julez1958 said:
    Hi @Aami
    i was on Endone for 4 weeks after my mastectomy and was in a lot of pain.
    My breast care nurse just said everyone was different.
    I got a bit better at the four week mark Ms then just took Panadol.
    I couldn’t drive for 6 weeks and my hubby did most of the cooking and other house duties ( we have a weekly cleaner).
    At 6 weeks I started seeing a physiotherapist recommended by by breast care nurse and that helped with scary issue and range of movement.
    I had reconstruction a year later and an 2 years in from that and the pain of the mastectomy is now a distant memory.

    Hi Julez. Could you please tell me which type of reconstruction you had. Thanks
  • Hi @Aami, if there isn’t a breast care nurse attached to your hospital, may I suggest building a rapport with one of the McGrath Foundation nurses. You then call that same nurse when you have any questions. Pick one which is near you and you can drop in to see her. These McGrath nurses are fabulous and lots of empathy. I know cause I switched from public to private and so had experiences with two nurses already. My current one even calls me every two weeks to check in on how I am doing.

    Another key contact is your GP. Since diagnosed with BC, I had to find a GP I warm to as I had hardly ever been sick. My GP have also been tracking my progress and I see her when I think something is not ‘right’. 

    I had the same feelings as you. I was paranoid that I won’t get my movements back and had to be assured ( having support around you is crucial, I think my hubby is exhausted from assuring me) Physio will definitely help and more importantly you need to do the exercises at the level you are comfortable with. We will get through this and over come the negatives thoughts in our minds. I am working to overcome my other paranoia as well. :-):wink: 

    sending virtual hugs 🤗 
    xx
    Gin
  • Hi @Aami
    I initially had a mastectomy on the cancer with insertion of tissue expander and then radiotherapy.
    I had to wait at least 6 months after the radiotherapy for the reconstruction which was DIEP flex where they take fat from your tummy.
    I ended up having the other breast off and a double reconstruction - it was a big operation and recovery but the post operative pain was not as bad as the first mastectomy.
  • It took me 3mths to recover enough to have a semi normal life but I also had other underlying health issues which contributed to the slow recovery. Everyone is different and you can’t rush the recovery. If exercises is making the pain worse, then you should back off. Talk to the physio about it and adjust your regime. Lyrica is the most widely prescribed for nerve pain which you may find is helpful, plus it’s not addictive like endone. You can take it with Panadol and anti inflammatories without issue. Use heat packs regularly and generally just take it easy. 
    I feel for you xx
  • ....... Lyrica is the most widely prescribed for nerve pain which you may find is helpful, plus it’s not addictive like endone. .....

    Ooooh - not so, @Vetty ..... sure, it is a non opioid drug - but it is has shown to be just as addictive as many of the other strong opioid pain killers .....

    https://www1.racgp.org.au/newsgp/clinical/misuse-of-popular-anti-epileptic-drug-linked-to-nu

    I also read that if it is mixed with other drugs - that it can be both addictive and the cause of overdose deaths in recent years :( 

    https://www1.racgp.org.au/newsgp/clinical/thousands-of-gps-prompted-to-review-pregabalin-pre