Forum Discussion
What has helped you through your journey?
I thought I would start a post to see what has helped people through their journey, so that maybe something might help others.
I will start with:
- Ahh Bra Type tops - I found these great post op and still now, they are comfortable, and great.
- Calypo Icy poles (the mini ones) - I have found these great for my VERY sore tongue.
- Mini spray perfume - I got one of these for my Mum who was VERY self conscious after her chemo made going to the toilet smelly, She used it as a toilet spray when out. As was recommened on another post - (DO NOT use your favourite perfume smell, just buy a cheap one you can stand the smell of. If needed).
- Waterless Hand Sanitiser - I use this all the time when out. I try to keep my hands as clean as possible.
- Vitamin E liquid capsules - I use these on my scars, simply pierce one capsule and rub the contents on yuor scars (once they have healed of course), it works great, and is VERY low allergy.
So there is my first couple of contributions, I hope one or more helps somebody else, and I hope other will add too.
107 Replies
I had 6 weeks between diagnosis and surgery.....I grieved the loss of my breast and had a 'Bye Bye Booby Party". It sounds strange but it was the best thing I could have done.
I had everyone bring a plate of 'tittilating' food, lol and they had to come up with different ways of using my new fake boob.
About 12 women came and we just laughed the whole afternoon at some of the ideas. The winning idea was when the kids in the back of the car were tired they could use the prosthesis as a pillow. Another was to use the empty bra cup as a purse and getting rid of the need of a handbag....it works really well until your boob starts ringing in a shop and you have to reach into your top to retrieve the phone....few puzzled looks.
But I had the mastectomy and haven't had any phantom sensations and I am now a one-boobed unique woman.
I suck/chew on Mento's.. the mint ones and the fruit one's.... yum....
I love fruit tingles ? hadn't thought about trying them.
Jelly beans are good for the icky tastes from chemo.
Hi Vicki,
I found David Jones has soft bras that do up at the front, they are by Amoena, and are called Mastectomy bras. They are really comfortable and as I had a mastectomy they didn't rub on the scar.
Hope this helps,
Jayne
During Chemo - Donut Kings Iced coffee with oce cream not cream - soothing & tasted bearable,
Fruit Tingles - someting about the fizz in them helps with the horrible taste we get in our mouths during chemo
Yes me too. My mum in law has been making my juices and now I'm left to my own devises I've been forgetting and I'm paying the price big time. Must get a bit more motivated with my diet....
I listen to music ALL the time when I am playing on my computer. There are wonderful online jukeboxes so you don't have to have to massive files of your own, or CD collections.
Grooveshark is one, and UWall TV is another of my favourites. Grooveshark you just search for the artists you like and then pick the tunes, UWall has artists faces all over the screen and you pick the ones you want and the music plays - it's amazing !
I'm an internet junkie too - if you have Google and haven't tried Stumble then DO !! It's wonderful.
:)
KeithaI listen to music ALL the time when I am playing on my computer. There are wonderful online jukeboxes so you don't have to have to massive files of your own, or CD collections.
Grooveshark is one, and UWall TV is another of my favourites. Grooveshark you just search for the artists you like and then pick the tunes, UWall has artists faces all over the screen and you pick the ones you want and the music plays - it's amazing !
I'm an internet junkie too - if you have Google and haven't tried Stumble then DO !! It's wonderful.
:)
KeithaI can add that with the waitiing between all your tests, surgery, pathology results etc. to keep yourself as busy as possible and keep you mind off things as best as you can. It helps the time go faster as well. I was so busy I didn't have time to dwell on things which I think is good.
I love to listen to Celtic Music (Celtic Spirit as not all the music is the same) especially when I am irritated cause it will calm me and then I can listen to some meditation after that which will often send me off to sleep. I listen to Letting Go but my favourite is Sacred Flame but there is also Louise Hay, Dawn in the Daintree music, Armchair Journeys and so on. I have quite a few and depends on what my mood is like as to which one I can get in to on that day. I also use them to send me to sleep, especially Sacred Flame.
I also love to have my bath, sit in my massage chair as ways of relaxing myself.
I have also found that Bowen Therapy is a complementary therapy which helps align your body (gently) and also helps with healing. Reflexology and hand massage are also wonderful if you can get a good therapist.
Mich xo
Oh my gosh.. I have been very complacent with my 'fibre/water' over the last few days and have paid for it big time....
So... fruit..water..benefibre.. nuts.. etc.. little bits often is my 'reminder'.... otherwise it's the horrible stuff from the chemist... not pleasant!!!
