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suzieq's avatar
suzieq
Member
9 years ago

Treat post Breast Cancer vaginal dryness with the purest lubricants

Manufactured in England, the water based moisturiser is the first certified organic product put on the NHS in England available on script from doctor. Unfortunately, we don't have vaginal moisturises available on script in Australia.  From what I have been advised from BCNA Policy they do not believe worth pursuing an application for vaginal moisturisers to be made available on script here in Australia.  

For anyone suffering vaginal atrophy and unable to treat with estrogen pessaries/creams (on script) I suggest you have a look at these products.  They cannot reverse vaginal atrophy the same as estrogen but some ladies on this site have found they definitely help matters. Vaginal moisturisers are best used every 2nd or third day, the pre-filled applicators can be very expensive so if you can afford them these products are worth a try (I think they have free samples). Just check out the site.  Always remember to run list of ingredients past your doctor.

https://www.yesyesyes.org/breastcancer/

For further information this is an article written by Susi Lennox, co-founder of Yes which was published in a Newsletter for the charity, Cancer Options UK  www.canceroptions.co.uk.

You will also find some extensive feedback from customers from all over the world on their testimonial page https://www.yesyesyes.org/why-yes/customer-expert-testimonials/?cat=7

I buy direct from Yes as I think it cheaper however if looking to buy in Australia you may have some luck from the following companies:   

http://www.greenorganics.com.au/
https://organictrader.com.au/catalogue/
  • Anne-Marie.  This is the Yes site where you will find all the information you need.  
    https://www.yesyesyes.org/ ;

    Site has extensive information.  Once again, any questions you have contact them via the site.  They answer very quickly. Suex
  • Hi Anne-Marie.  Welcome. You probably need to go on to the website for information.  There is so much available information on their site.  You can also communicate with them via email.  They will answer any questions you have. Water based is generally for frequent use such as daily moisturiser.  Oil based is for intimate moments.  I hope that helps. Friends on this site for maintenance and moisturising opt to purchase individual water-based pre-filled applicators as it is quick and easy.  Can be expensive though if using every 2nd or 3rd day.  We find it cheaper if buying in bulk. They also sell large tubes but getting it internally can be messy.  There are applicators you can get to fill yourself.  It all comes down to cost and personal choice and you can make your choices once you peruse the site to see what is available and how much they cost.  I have not spoken to Greenorganic yet.  It may well be they don't have stock of what you want and have to get from England anyway.  I wouldn't imagine they would have too much stock as this product is not known in this country. 

    Paula, if you are reading this I just come back from my GP.  We hopped on the Yes site in her rooms and I showed her the important immediate information.  I also gave her a couple of samples and product information leaflet.  She was absolutely delighted to know these products exist. She too has been very dismayed at what has been the choice for women here on chemist shelves.  She has a Pharmacy located in her practice so she is going to talk to head Pharmacist about talking to Green Organic for supply for the shelves.  

    However, because there is no Aust Govt subsidy it may well be cheaper for us to continue to purchase direct from England website.  It takes about 3 weeks to arrive.

    Well, at least one Medico knows of it's existance. She is a networker and attends lots of Seminars. Hopefully, the word will spread and other women will eventually have access to these great products.

    Suexx
  • Thank you Suzie. This post came at the right time for me. I have checked it out on the green organic site. I asked them a question, what is the difference between oil based and water based. 
    Anne-Marie
  • Hi Suzie, just wanted to add that I've used Yes as well and it is a great product, it's a shame it's not more readily available here. Important discussion though as it is an issue that plagues many of us xx
  • Replense gave me UTIs as well.  When I started researching I found Replense has quite a reputation for UTIs.  However, it is the product doctors recommend, either that or Vagisil, because they are the only products readily availabe here. Doctors have no idea certified organic alternatives available and unfortunately, looks likely never will.  It pays to do one's own research!  I have appointment with my GP this morning and will show her Yes products.  She is a very switched on doctor with a large network and she does netowrk, so she will appreciate the info.  Hopefully, down the track more doctors will come to know about these alternatives for their patients.  Suexx
  • Exactly, replens gave me UTI's!!! I was using the water based but on Pams recommendations tried the VM. it is also waterbased but even better 
    Paula x
  • Hi Paula, I will check out VM.  I found Replens a terrible product which is why I went looking overseas in the first place.  You have to be careful using products like Replens as they contain parabens.  Suex

  • Ladies, I have used many products and find YES by far the most superior.  It is a bit pricy but if you buy in bulk it is a bit cheaper.  It is way cheaper and a far superior product (in my opinion)than replens.  They have a new product called VM  and I think it is amazing.
    Thanks Susie and the policy team for all your efforts helping women find these products.
    Paula x
  • Hi Kathy. I apologise, I only mentioned the matter had been raised with BCNA so it would not be re-raised. 

    When I discovered Yes organic products were listed on England's NHS available on script I thought why not us? Not knowing where to turn I asked if BCNA could have general discussion around it at next meeting (April?) with breast cancer medico's so medical profession were at least aware of it and they could offer their views. And if the product could be readily available in Aust.  I can't remember asking if BCNA would make submissions to PBAC.   

    I appreciate the work BCNA did researching cost of our general prescriptions in Australia.  

    After quickly perusing England's NHS site they have a very generous scheme over there.  Prescriptions are free for anyone over 60 so explains the cost/benefit of having these products available on script in England. It would have been nice to have had some kind of Govt subsidy here but happy to put this discussion to bed.

    Once again thank you for all your hard work.

    Sue    



  • Dear Suzie

    I lead the Policy Team at BCNA. I am sorry you don't feel we are supporting you on this issue. BCNA is very aware of the challenges in sexual wellbeing for some women as a result of breast cancer treatments. In 2011 BCNA commissioned a university researcher to undertake research with women and health professionals regarding sexual wellbeing and breast cancer. This research resulted in our booklet Breast cancer and sexual wellbeing, which is currently being updated and reprinted. You can read the research report on our website. We also write about this issue in The Beacon from time to time, most recently in the last edition as the Ask the Expert article.

    With regards to getting YES on the PBS, BCNA is not able to make a submission to the PBAC (the authority that assesses applications for drugs to be added to the PBS and makes recommendations to the Government). Applications require detailed evidence of the safety and effectiveness of products and how they compare with other similar products already available on the Australian market. They require results from clinical trials to provide this evidence. BCNA has never made an application to the PBAC, although we frequently provide submissions in support of medicines and products for which an application is made by the manufacturer or Australian distributer.

    YES is available to buy in Australia at around the same cost it would be if it was subsidised by the Government through the PBS. The current script fee for non-concession patients in 2017 is $38.80. YES is available in Australia from around $20 - $50.

    I hope this helps to explain our situation. I am happy to talk to you about this if you would like to call our office on 1800 500 258 and ask for me.

    Kathy