Taxol Neuropathy

Still got the neuropathy in my feet after five years. Slightly in my finger tips. Been told may go away at anytime, but may never go. Just affects my balance. Impossible to walk in a straight line. Have to be careful when I tutn around.
Good luck with your decision. If its thrre niw you may as well carry on the treatment.

Listen to your onc, I tried to get my Docetaxol doses reduced, but the oncologist said no, because of my pathology I needed all I could get.  Yours seems to be confident with the dosage you have had so far.

It may not help but Vitamin B was suggested to me and I found it did help a bit - a bit was still better than nothing. When my feet were more recovered, I found hot wax pedicures wonderful - made my feet feel human again and the benefit lasted for days. Still do it periodically. Little by little you can train yourself to trust your eyes rather than your damaged nerve endings. You feel you are walking on two mattresses but you know you are walking on the pavement, you learn to trust your knowledge more. I've found that you can get sudden jumps in improvement out of the blue and for no particular reason. I suddenly got the feeling in my toe tips back a year ago - still working on the middle bits : ) 

@VicRed - I am having the same treatment as you I think. My 2 tumors in my right breast were inoperable so I went straight to AC dose dense (I don't really know what that means but I think it's a lot, lol) 4 times every 2 weeks and then 12 Taxol for 12 weeks. I had my 12th Taxol on the 10th November so you are not far behind me.

But then I see you are going to rads then op. I'm being operated on December 20 with six weeks of rads to follow...

Around week 8 of Taxol they said I could stop cause of the neuropathy, but the AC had long ago turned my fingers and toes brown, practically overnight. I asked if I could have more than twelve even though by this stage, I can hardly walk and am spending all my days in bed. My nails on my feet and toes are non-existent but I find ways around not using my nails. I could see my tumors shrinking right under my nose and thought that neuropathy was something I could work with! I told the oncologist that I would not quit under any circumstances.
But here I am, weeks after the Taxol has ended, still barely able to walk due to having no balance, feeling like a golly-wog doll whose joints wont support me and suffering from what can only be described as severe and constant fatigue. But even though my toes and fingers are numb that seems to be the least of my problems.

I was told the risk of recurrence depended upon the grade of the cells found after the tumor has been removed. So that is why I don't know what my regimen will be for the next 5 to 10 years.

I feel no sense of achievement having done all 12 and think I should have stopped around 10. My brain is still not working and I feel like my nervous system has been affected beyond my fingers and toes. I should have listened more to the oncologists but in the back of my head there was a voice saying don't stop now!

I've found that one endone and 2 panadeine forte will get me out of bed and moving by midday, lol. I never make appointments for any earlier because the mornings are taken extremely slowly, one tiny step at a time.

Good luck with all of it - there are worse cancers to get.

I found vitamin B helped my neuropathy. Check with your oncologist but it's unlikely to do any harm and may help a bit. 

And yes also sooo pleased to have chemo behind me. Surgery tick chemo tick x

Let us know how you with the neuropathy I finished mine and hoping was best decision I don’t want this numbness to be permanent! I’m also having radiation over Xmas so join the club tis the season to be jolly haha. I at least get the public holidays off lol.

Thank you all for your input. The outcome for me what that I took my Oncologists advice and have stopped at 8 treatments, she did not want me to have perminant neuropathy and said it was very common to stop at this point. I then had a scan and there has been more reduction so everyone seems happy with the results. I will start my radiotherapy in a week or so, so just getting that sorted now. Christmas Radiotherapy..what a joy but I am so pleased to have chemo behind me. 

I have just finished my 12 x paxol and can’t offer much advice sorry. I have the numbness in my hands and feet never had any pain though. My oncologist did say it was up to me in the last 3 whether I continued or not which didn’t help me at all I mean they are supposed to be the experts! As much as it was annoying my head kept saying finish the treatments. I don’t know if or how long it will take to go away or if continuing would have made it any worse. Sorry I’m not much help it’s a difficult position I understand totally.

Sorry, this is June again (jgameau) - after the 7 taxol treatments, I then went onto radiotherapy x 5 weeks.  Now I am a month post all my treatment! Yeah!