Taxol Neuropathy
Hi Ladies, After surviving 4 x AC I am now 8/12 Taxol and with the numbness in my toes and feet increasing each week and now moving into my fingers and even teeth, my Oncologist thinks I should st...
Forum Discussion
@VicRed - I am having the same treatment as you I think. My 2 tumors in my right breast were inoperable so I went straight to AC dose dense (I don't really know what that means but I think it's a lot, lol) 4 times every 2 weeks and then 12 Taxol for 12 weeks. I had my 12th Taxol on the 10th November so you are not far behind me.
But then I see you are going to rads then op. I'm being operated on December 20 with six weeks of rads to follow...
Around week 8 of Taxol they said I could stop cause of the neuropathy, but the AC had long ago turned my fingers and toes brown, practically overnight. I asked if I could have more than twelve even though by this stage, I can hardly walk and am spending all my days in bed. My nails on my feet and toes are non-existent but I find ways around not using my nails. I could see my tumors shrinking right under my nose and thought that neuropathy was something I could work with! I told the oncologist that I would not quit under any circumstances.
But here I am, weeks after the Taxol has ended, still barely able to walk due to having no balance, feeling like a golly-wog doll whose joints wont support me and suffering from what can only be described as severe and constant fatigue. But even though my toes and fingers are numb that seems to be the least of my problems.
I was told the risk of recurrence depended upon the grade of the cells found after the tumor has been removed. So that is why I don't know what my regimen will be for the next 5 to 10 years.
I feel no sense of achievement having done all 12 and think I should have stopped around 10. My brain is still not working and I feel like my nervous system has been affected beyond my fingers and toes. I should have listened more to the oncologists but in the back of my head there was a voice saying don't stop now!
I've found that one endone and 2 panadeine forte will get me out of bed and moving by midday, lol. I never make appointments for any earlier because the mornings are taken extremely slowly, one tiny step at a time.
Good luck with all of it - there are worse cancers to get.
But then I see you are going to rads then op. I'm being operated on December 20 with six weeks of rads to follow...
Around week 8 of Taxol they said I could stop cause of the neuropathy, but the AC had long ago turned my fingers and toes brown, practically overnight. I asked if I could have more than twelve even though by this stage, I can hardly walk and am spending all my days in bed. My nails on my feet and toes are non-existent but I find ways around not using my nails. I could see my tumors shrinking right under my nose and thought that neuropathy was something I could work with! I told the oncologist that I would not quit under any circumstances.
But here I am, weeks after the Taxol has ended, still barely able to walk due to having no balance, feeling like a golly-wog doll whose joints wont support me and suffering from what can only be described as severe and constant fatigue. But even though my toes and fingers are numb that seems to be the least of my problems.
I was told the risk of recurrence depended upon the grade of the cells found after the tumor has been removed. So that is why I don't know what my regimen will be for the next 5 to 10 years.
I feel no sense of achievement having done all 12 and think I should have stopped around 10. My brain is still not working and I feel like my nervous system has been affected beyond my fingers and toes. I should have listened more to the oncologists but in the back of my head there was a voice saying don't stop now!
I've found that one endone and 2 panadeine forte will get me out of bed and moving by midday, lol. I never make appointments for any earlier because the mornings are taken extremely slowly, one tiny step at a time.
Good luck with all of it - there are worse cancers to get.