Gayle_Taylor
9 years agoMember
Long Term Side Effects from TAXOTERE ( Taxol Hercepton ) chemo drug
Hi All !! ... I had DCIS4 Breast Cancer, lump found Dec 2011, right breast off Feb 2012, treatment started march 2012, ceased by me in Sept 2012 after radiation due to over kill on chemo drugs... I use to be here on this page around 4 years ago. I am now in my 5th year of remission, yay! BUT... I am suffering still from the effects off TAXOTERE, ( Docitaxol ) drug. Every now and then my body goes through this stage, sometimes different symptoms, but familiar to me. I have residual effects off most of the drugs I had then, plus radiation. My Liver function test is always poor, and has been since my first round of chemo, March 2012.
My symptoms can go for about 2 weeks then I'm ok for a week or two then back into it again. This is 5 years on!! and I am still suffering! I can't work a normal job, I spend most days at home, and doing very little when I am unwell. When I have the energy I go out playing with my band ( rock chic ) and do normal stuff.
My chemo was FECU... ( The Red Devil ), Neulaster injections, another injection to thin the blood, 18 pills a day, Dexamethazone, OxyContin, Ondansitron ( excuse my spelling also ) the TAXOTERE, hands in ice for 2 hours a day! bone marrow injections, meds to stop diarrea , meds to make me poop, meds to stop me vomiting, creams, lotions and potions, all while I lived on 2 minute chicken noodles, rice cakes and milo for almost 9 months.
Today my aches and pains are; .... sore red itchy eyes, or weeping eyes ( had that in chemo & radiation ), blurry fuzzy vision ( I now wear glasses, but that doesn't help sometimes ) peripheral neuropathy numbness in the ends of my fingers and toes, very sore feet to walk on until I get going, then it's not so bad, cracked heels, skin peeling off my feet, joint pain, cramps in legs and hands. migraines, ringing in the ears, nausea on and off, disturbed sleep, wake up several times in the night, or sleep like a log and wake up feeling shit... gut aches, bowels are either constipated, or go 6 times in the morning. My libido is 0% !! I have a Haitis hernia from all the vomiting through chemo, as well as GORD, really BAD indigestion to the point of waking up with backwash ( fluid ) and having to vomit. My liver is very 'fatty'. my weight fluctuates. My mouth becomes dry, sounds like i have a cold, feels like I have the flu, I have taken to drinking bourbon every day , 2 -3 cans in the afternoon to stop feeling like shit! Sometimes I'll have one at lunch if I can't get myself together... like now :smile: and the good old tired but can't sleep syndrome!!
Anyone else feel the same???? I know my cancer has gone, my bloods are always good except for the liver test, and I eat like a rabbit!! and walk, and dance when I can. I JUST WANT TO BE NORMAL AGAIN!!!
My symptoms can go for about 2 weeks then I'm ok for a week or two then back into it again. This is 5 years on!! and I am still suffering! I can't work a normal job, I spend most days at home, and doing very little when I am unwell. When I have the energy I go out playing with my band ( rock chic ) and do normal stuff.
My chemo was FECU... ( The Red Devil ), Neulaster injections, another injection to thin the blood, 18 pills a day, Dexamethazone, OxyContin, Ondansitron ( excuse my spelling also ) the TAXOTERE, hands in ice for 2 hours a day! bone marrow injections, meds to stop diarrea , meds to make me poop, meds to stop me vomiting, creams, lotions and potions, all while I lived on 2 minute chicken noodles, rice cakes and milo for almost 9 months.
Today my aches and pains are; .... sore red itchy eyes, or weeping eyes ( had that in chemo & radiation ), blurry fuzzy vision ( I now wear glasses, but that doesn't help sometimes ) peripheral neuropathy numbness in the ends of my fingers and toes, very sore feet to walk on until I get going, then it's not so bad, cracked heels, skin peeling off my feet, joint pain, cramps in legs and hands. migraines, ringing in the ears, nausea on and off, disturbed sleep, wake up several times in the night, or sleep like a log and wake up feeling shit... gut aches, bowels are either constipated, or go 6 times in the morning. My libido is 0% !! I have a Haitis hernia from all the vomiting through chemo, as well as GORD, really BAD indigestion to the point of waking up with backwash ( fluid ) and having to vomit. My liver is very 'fatty'. my weight fluctuates. My mouth becomes dry, sounds like i have a cold, feels like I have the flu, I have taken to drinking bourbon every day , 2 -3 cans in the afternoon to stop feeling like shit! Sometimes I'll have one at lunch if I can't get myself together... like now :smile: and the good old tired but can't sleep syndrome!!
Anyone else feel the same???? I know my cancer has gone, my bloods are always good except for the liver test, and I eat like a rabbit!! and walk, and dance when I can. I JUST WANT TO BE NORMAL AGAIN!!!