Forum Discussion

Mags44's avatar
Mags44
Member
5 years ago

Does Tamoxifen get easier?

Hello,

I have been taking Tamoxifen for about 2.5 months and feel like I am increasingly feeling the side effects. I am about to return to work and concerned how to manage the hot flushes and more sensitive emotions, and not quite feeling normal. I went to a shop the other day and as soon as I walked inside unpredictably my body went into this bizarre melt down and extreme hot flush. Also finding sleep an issue. I am taking fish oil, magnesium and spoken to someone but those physical effects I haven’t quite got control over yet. 

i have been reading everyone’s posts and continue to wonder do the side effects settle down or do you just get better at adjusting to them? And how do you manage those hot flushes?

Thank you!
  • Thanks for starting the thread, I have been trying to get more information as to when the Side Effects starts /last and in another thread. I am on my second month of T after shifting from 9 months of AI.
    Hot flushes - I have started sleeping last week by using a pedestal fan which throws air at me directly and is much cooler than the ceiling fan. Getting tired now- not sure if its to do with usual routine management or T kicking in . The layering of clothes help me. The linen clothing in a slightly bigger size also helps. I try to walk and the cool air is really calming . Have cut down a lot on carbs- somehow that helped. I am doing Intermittent fasting so water intake went up- I do believe that helped.
  • thank you @JulieVT11, I really appreciate you sharing your experience and tips. I think I need to work on the sleep thing so may need to look at getting some extra help with that. I can see similar experiences happening back in my office 😀.

    Cheers again, 
  • @Mags44 I don’t think it gets easier but I think you have to just learn to live with the side effects and find the best way to manage them.  I have been on tamoxifen now for about 20 months and it has been hard work coping mentally and physically.  The hot flushes are so draining especially now heading into summer, I now have a packet of wet wipes, a small hand towel and little fan that go with me everywhere.  I choose cotton clothing and sleepwear whenever I can as well.  Another tip was to get good regular exercise - think it helps my mind more than body.  My oncologist has started me on a low does anti-depressant to see if that helps but all it has done is help me sleep better which is a bonus.  I work in an office and have managed the flushes ok - you just have to take control of the air con haha, the guys tend to disappear when you get hot and flustered and the women get you a water and have sympathy.  I thought 5 years was just going to be hell but I’m nearly 2 down so can’t complain.  Good luck with your return to work and staying well🙂

  • Thank you @TonyaM and @Garnet70 for such great tips. I will definitely explore them as that transition back to work next month is definitely playing on my mind. 

    Thank you again, 
  • I'm 3 mths in with Tamoxifen. The flashes are the pits. It gets embarrasing at work at times, as I will literally start dripping has happened a few times when talking to a customer.
     At home I am using a "chilly towel" (found it at the chemist) that helps, as does the moisture wicking sleepwear, not waking up in damp sleepwear and having to get changed. It alleviates it somewhat, and is worth the money - especially as I live in the tropics. I also have ginger "Travellers friends" (from Buderim Ginger) that I have to help with the occassional nausea. These are individually wrapped and easy to have on hand (handbag etc)
  • The only way I got through 4yrs of Tamoxifen was to take a very low dose antidepressant called Endep 10mg. It helps with hot flushes, low mood and sleep. At such a low dose,it had no side effects for me and it really helped. I sleep with a tiny desk fan on my bedside table and roll towards it if I have a hot flush coming on. I carry a hand fan and a bottle of cold water with me at all times in summer. Nip a hot flush in the bud before it escalates by fanning and drinking water. You shouldn’t have to suffer so talk to your doctor.
  • Actually, my attitude fluctuates - sometimes it is terrible 😑 but I am aware that so far I’ve had it pretty easy. There are lots of ladies on here whose lives are severely impacted by hormone blockers. I was expecting it to be awful and so far have been pleasantly surprised. 
  • Thank you @ddon you have an amazing attitude and viewpoint. I really appreciate you sharing this.

  • My precious husband found me a little hand held fan that runs on a rechargeable lithium battery and it has saved my sanity. I keep it close and it gets me through the hot flushes. I have been on tamoxifen only 3 months and I wake nearly hourly now at night, and am a lather of sweat for much of the night. I cope with it by the peace of mind it brings when I think that my body is suffering the effects of oestrogen and progesterone withdrawal, and that means that the cancer cells should also be suffering. The hot flashes are mostly in the evening.
     Emotion - wise: I have felt not normal long before the tamoxifen started. The chemo set that off, so I guess I am used to it and actually I am feeling a lot more settled now than I was. 
    All these treatments come with side effects that aren’t fun but cancer is not a small thing and so I know I just have to expect and understand that the treatment has to be reasonably harsh. This isn’t a disease that can be treated with some Panadol after all 😫
     I feel like it’s easier to cope with side effects and keep on with treatment when I assure myself that’s it for survival. Hang in there - menopause also brings these same effects and we all have to go through no matter what.