Forum Discussion

  • AllyJay said:
    Are frogs waterproof?  Do bears poop in the woods? Sorry about that, but sometimes black humour is all that stops me from just pulling the plug. Sleep for me, is something that other mythological creatures do, but not me. I do retire to a horizontal padded sleeping platform, that I believe some call a bed. I call it my padded torture rack. But seriously, after forty years of marriage, my husband and I now sleep in different rooms.  When I finally decide that tonight is another of those rinse and repeat, rinse and repeat nights, I just put on the light and either read or knit. If I feel any hope of drowsiness coming on, I try again. I think that for me it's a mixture of past bad insomnia, along with current stress and discomfort. Fortunately my GP (new GP) is very compassionate and prescribes me sleeping tablets...three different kinds which we rotate as I become accustomed to them.
    Sometimes we just have to do and say what we want  to keep us sane. I use to care what people say and think about me. Now it’s whatever keeps me sane. My health my sanity. I do the the same, my husband and I sleep in seperate rooms. I get up so much, maybe up to 10 or more time a night . I get very agitated , so watch a movie, go on you tube. Wish you all the best.  
  • Superzap said:
    Hi does anyone have problems sleeping all night, since I started chemo. 2 down 2 to go.
    Ugh it's the pits right! Are you on steroids also? I feel like they were my cause of sleepless nights during chemo. I just made sure I slept when I could, 6am - 9am was my time but sometimes nothing works. 
    I used an over the counter short term medication for sleep but only with my oncologist approval. You're half way there! Good job 
    Oh yes steroids, yes I think I need to check them out, thank you so much, hope you are good.
  • Chemo often causes insomnia. It did with me. Beg your doctors for sleeping pills if you're OK with taking them. When I finally got some I treated myself to them once a week. Still need them sometimes. K xox
  • Caz1 said:
    @Superzap   For me, it was the steroids they give you at the time of chemo to minimise nausea that kept me awake. I spoke to my onco and she reduced the dose by two thirds (!) which really helped me to sleep and cut down on my hyper behaviour. Might be worth considering if this is a cause and ask your onco about your dose. Caz x
    Thank you will check that out, on 27 th.
  • @Superzap   For me, it was the steroids they give you at the time of chemo to minimise nausea that kept me awake. I spoke to my onco and she reduced the dose by two thirds (!) which really helped me to sleep and cut down on my hyper behaviour. Might be worth considering if this is a cause and ask your onco about your dose. Caz x
  • Superzap said:
    Hi does anyone have problems sleeping all night, since I started chemo. 2 down 2 to go.
    Ugh it's the pits right! Are you on steroids also? I feel like they were my cause of sleepless nights during chemo. I just made sure I slept when I could, 6am - 9am was my time but sometimes nothing works. 
    I used an over the counter short term medication for sleep but only with my oncologist approval. You're half way there! Good job 
  • Are frogs waterproof?  Do bears poop in the woods? Sorry about that, but sometimes black humour is all that stops me from just pulling the plug. Sleep for me, is something that other mythological creatures do, but not me. I do retire to a horizontal padded sleeping platform, that I believe some call a bed. I call it my padded torture rack. But seriously, after forty years of marriage, my husband and I now sleep in different rooms.  When I finally decide that tonight is another of those rinse and repeat, rinse and repeat nights, I just put on the light and either read or knit. If I feel any hope of drowsiness coming on, I try again. I think that for me it's a mixture of past bad insomnia, along with current stress and discomfort. Fortunately my GP (new GP) is very compassionate and prescribes me sleeping tablets...three different kinds which we rotate as I become accustomed to them.
  • Hi @Superzap Sleepless nights are part of the course I am sorry to say. I finished what they call ‘active’ chemo in Oct 2018, continued with Herceptin until August 2019. I still have many sleepless nights. Once a week I take a restavit which turns my brain off so I can get to sleep. Lack of sleep isn’t really helpful when your body wants to heal. Try mindfulness, aromatherapy or whatever you think might work for you. My psych told me to do the abc game as it works to turn off your brain from other things but it just frustrated me and kept me awake for longer. Sending big hugs.