Achy hips

Will send a message, @Sue_w

@arpie, what is the 'magic oil' please?

Sorry - the aches & pains with the AIs - like you, it targets my hips mainly, plus shoulders ..... and sadly a lot of Oncs?GPs don't really appreciate or understand the depth of the pain - 24/7 .... so I've had 3 changes of AIs - now on Anastrozole (after Letrozole and Exemestane) and I've been better off on this last one.  After that, my only choice will be Tamoxifen!

Try & keep moving .... tho I must admit I have been using some magic oil for 2 years ... I had a 3 month break recently & went all achy again, so will be getting back onto it again!   The relief is 'gradual' - but you really know about it if you stop it & the aches & pains come back

If you have continual aches for more than a month - request a bone scan from your Onc.  I did this last year & it put my mind at peace, coming back as 'normal'. ..... 

Take care xx

Hi everyone, Just a suggestion and it very well might not work for others but it has for me - before I was diagnosed with cancer, I was getting a lot of aches and pains in my legs, back and hips. I could not walk any distance without pain in my back and hip, shooting down my leg and burning down my shin. I could not stand for any time either. I also had pain when lifting anything with my arms outstretched. I decided to change my diet and exercise to try and help. I reduced my gluten intake by about 95% and my refined sugars by the same. I also started going stretches on a morning and night, and also tried to walk a couple of km's a day. 
It did help! I've lost weight, I'm not always hungry and over the course of a few months the pain in my arms went, the pain in my back and hips is minimal. Gluten and sugar are said to be drivers of inflammation, and for me, reducing them has had BIG benefits even though I don't have a sensitivity to gluten. I've just done my first chemo round and haven't started hormone blockers yet, so I don't know if it will be of benefit for that or not.
Just a suggestion that might help. 

I’ve learned a lot more about my body since the original post. The oncologist allowed me to go off the medication for two weeks. As a trial to see if the aches subsided. It improved slightly and I chose to remain with the anastrozole rather than change to a similar drug. Since then the pain resolved in my hips, appeared in my wrists, ankles,knees, shoulders, etc. Each time the pain resolved with physio, exercises, turmeric, fish oil tabs, stretches, and anything else I could throw at it. My GP says I have skeletal and joint issues. It’s just me. Recently I had a dodgy knee and couldn’t kneel on it for 6 months. I wasn’t happy because I do a lot of romping around on the floor with my little grandchildren. One day the pain didn’t happen! Party time! The kids got on my back for a horsey ride and we were all singing.
My recommendation would be to live life to as close to normal as possible. Bodies change their mind about how injuries will affect us. Use everything at our disposal to get through the night, to get us out of bed in the morning, and to help us enjoy the day we’ve been blessed with. 

I’ve been on femera \letrazole for 6 months and found it caused joint pain ( aggravated hand arthritis as well). I have  pre existing osteoporosis . All the hints listed above by others sound very helpful - I keep walking daily where possible, I’m seeing a exercise physiologist , and my oncologist has me on glucosamine . 

@LBUSH

I know what you mean, I have thought of stopping treatment too. But I realise, that my chance of recurrence will be minimal if I stay on it. Gentle stretching helps me too. ohh and when I sleep on my side, I use a pillow in between my legs it helps with my hips.

And well done for doing 3 years on the AI , I am only up to six months and really thinking of ceasing it 👍👍🙂💊

hi , I am new here.. I am having hip problems as well .. the ache is constant especially at night in bed… my GP  did an X-ray and it did show some minor degenerative changes.. My oncologist has now done a scan for further details I guess …. My hips have definitely got worse since taking Aromasin… I love walking ,trying to rid myself of the Kgs I put on during treatment but it seems to aggravate my hips.. I have put my bike up on a trainer and have been riding it instead of walking. I am also doing gentle stretching.. It helps a little.. I am also taking fresh tumeric daily .. anything to get off some of my many pills 💊🤣🥴 . I to would love to know what actually causes the  joint pain, my wrists are incredibly sore and one is very swollen. I hope this might help a little Bravo 

Ditto all of the above aches and pains and @Bravo's question. Why do hormone blockers aggravate joint issues? In my case, the post-surgery bone scan findings were 'active facet joint disease' plus arthritic uptake pretty much everywhere. However, before taking AIs I was not suffering much discomfort. Now I feel 80 years old. I'm 55.
Good list, thank you @Jen2019. Panadol Osteo, if all else fails.
Agreed @Sister, exercise does help. I recently had a Personal Trainer write me a program at my gym (included in the monthly fee, but you can pay for a PT to train you). I cannot tell you how surprised I was to feel the pain in my lower back and groin/hip(?) significantly diminish after using the 'machines' for exercising abductor and adductor muscles in the hips and thighs. So much so that it's enough to motivate me to go to the gym! Finally. I also do Body Balance classes sometimes. Unfortunately, the gym exercises have not improved my shoulder, wrist or hand pains so far, but they may in due course. Surgery side gets inflamed with exercise. Also, be careful re lymphoedema significant risk timeframe in the first 12-18 months post-surgery. Avoid hot baths, saunas, spas and strenuous exercise in hot weather.

Always learning. L x