TrenzaloreACT
5 years agoMember
Metastatic de novo diagnosed 20 July
Hello, I was diagnosed on 20 July with grade 2 stage 4 De novo BC. As many of the ladies on this forum have mentioned regarding their own experiences , it’s been a wild roller coaster ride. The diagnosis of BC was confronting in itself, to find out it had already spread to my hip, well I was just gobsmacked. I’m 58 and keep very fit by running and going to the gym. I run around 40km per week and just couldn’t believe I had it in my hip. I’ve absolutely no pain, and ran in a 10km race the day before my diagnosis. Well, I could deny it all I wanted, the fact is, it’s in my hip. The next complete shock was to be told there is no cure. In the interval between the original BC diagnosis and the PET scan(which showed the hip lesion) I’d been reading and researching everything I could on the various treatments etc. and preparing myself mentally for surgery, chemo etc. to then be told that none of it was for me, as it’s metastatic, well that was just devastating. However, I’ve now received some good news. My health team has recommended an aggressive approach to treatment. Since the hip lesion is small and is the only evidence of BC outside of my breast, and I’m young (😂) and fit with no other health issues, they are going to try for cure by starting with hip replacement surgery and radiation, Two weeks post surgery I will start on Chemo for 5 - 6 months and will then undergo a mastectomy. It’s terrifying, but also gives me hope. It’s been 3 weeks now since diagnosis and I just want to get on with it. I see the orthopaedic surgeon on Monday and hopefully have surgery the following week. I’ve found the comments and discussions on this forum to be such a help, inspirational really, so a big thanks to everyone.