Metastatic de novo diagnosed 20 July

Hi @PV123, My diagnosis was 3.5 years ago (Stage 4 Lenovo). Had muscular pain but had quite a few mets in hip. I have a PET & CT scan every three months to make sure treatment is working. I am a public patient, so oncologist is not concerned about me having to pay for scans although she does have to work within the hospital guidelines. My guess is you are a private patient. My friend who had Stage 4 was a private patient only got CT scans once a year. In my view, that isn't enough - I believe that small progressions are easier to treat. If the progression is large, the overall tumour burden makes treatment more difficult. Is your CA153 marker an accurate reflection of your status and how often do you have it measured? I am also having circulation tumour DNA tested once a month and the level is reflected in PET scan (ie if DNA level increases new spot will be detected on PET). So, as you can see, I am very closely monitored and very grateful for that. xx