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TabooGal's avatar
TabooGal
Member
8 years ago

Here Goes

 Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?

On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.

So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.

I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.

I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?

I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.

Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?

I have so many questions. When will I start radiation? Will someone contact me or do I contact them?

I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.

It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.

Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.

Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.

Any insights would be wonderful.


 

365 Replies

  • @TabooGal
    one thing Breast Cancer does is teaches us to ask for help to get through this ride.... 
    Great to see your BC nurse is on the ball and got your my journey pack organised for you. 

  • thank you @Kiwi Angel and @soldiercrab. the Breast Care nurse organised the My Journey Pack for me and it arrived on Friday. I have been reading reading reading. I do live alone with both of my children living in Melbourne but I have an incredible amount of support from my work friends. and other local friends. I feel blessed in that way. Asking for help is another thing. stubborn? Even though I live in Vic (Wodonga) my treatment will be just over the border in Albury. We have a fantastic new Cancer Centre there. So again I am blessed as to not to have to travel far. Thank you for making me feel so welcome.
  • @primek
    might be able to answer some of those questions you have posted.... 
    my advice is take it one day at a time .... please know that the forum is a supportive and inclusive group who will support you, accept any tears or ranting and help you work your way through the Roller Coaster ride called Breast Cancer..
    Do you live alone ?
    you might need a bit of help
    There are local support groups your breast care nurse should be able to help you there. 
    Will  your treatment be in NSW Or Vic ? 

    never feel scared to post in this forum 
    Soldiercrab
  • hi TabooGal 

    sorry you have need to be here... 

    Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet. 

    It can be a a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time. 

    The what and how thread.

    http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 

    Breast Care Nurses

    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 

    My Journey Kits and other resources. 

    https://www.bcna.org.au/resources/

    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further information or support please call 1800 500 258.  The Helpline is open Monday, Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am till 9 pm EST.


  • @TabooGal so sorry u have to join us here. It sounds like u have a lot of questions and @SoldierCrab will be along soon with a list of resources for u. I would definitely make a list of all the questions I have and would definitely let all your medical team know about the rod. All these hormones can make a difference with your cancer. I would also get a big folder and keep copies of all your medical records and pathology. Thinking of you and sending big hugs. U will find a huge amount of advice and support here. xoxox