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sue_lonie's avatar
sue_lonie
Member
12 years ago

Xeloda

Hi,

Today I started on Xeloda and am worried about side effects. Earlier this year I found I had more metastes in my hip and collar bone. The Oncologist put me on Everolimus and I was unable to tolerate it. I ended up in hospital for 10 days. I would love to hear from other people who are on Xeloda.

54 Replies

  • Hi Sue, I was on xeloda for about 14 months, my markers went down dramatically as well. Unfortunately my oncologist had to stop it because my feet, arms and legs were so red and painful I could hardly lie in bed or shower as they stung so much. I also got the runs pretty bad. My oncologist decided that I developed a toxicity to it. So I am now back on Iv chemo. Having said all that, I know quite a few ladies on xeloda and apart from some hand and foot syndrome they are tolerating it very well. I hope the same goes for you. Stay positive Ps I also found moo goo terrific.
  • Hi Sue, hope you are doing well.

    I was on Xeloda for ten months and tolerated it well. My hands and feet turned really red, sore and began to peel. I highly recommend good foot creams, foot massages, tonnes of slippers and gloves. My hair did thin as well but not too bad. My tumor markers went down dramatically but I stopped Xeloda because I m now on a trial drug. Good luck and wish you all the best xx

  • Hi Sue

    I've been on Xeloda for a few months now and haven't looked back.  I haven't had any of the side effects so far.  I do have the odd day of feeling blah but they are few and far between.  My Cancer Cell count has dropped drastically and my Oncologist and I are extremely happy with that,  I started using MooGoo Udder Cream straight away in case my feet and hands became red and peeled etc as the information sheet had it as a side effect.  So far so good, no redness or peeling anywhere.  I hope you have as much good luck as me on this drug :)

  • Hi Sue

    I've been on Xeloda for a few months now and haven't looked back.  I haven't had any of the side effects so far.  I do have the odd day of feeling blah but they are few and far between.  My Cancer Cell count has dropped drastically and my Oncologist and I are extremely happy with that,  I started using MooGoo Udder Cream straight away in case my feet and hands became red and peeled etc as the information sheet had it as a side effect.  So far so good, no redness or peeling anywhere.  I hope you have as much good luck as me on this drug :)

  • Hi Sue

    I've been on Xeloda for a few months now and haven't looked back.  I haven't had any of the side effects so far.  I do have the odd day of feeling blah but they are few and far between.  My Cancer Cell count has dropped drastically and my Oncologist and I are extremely happy with that,  I started using MooGoo Udder Cream straight away in case my feet and hands became red and peeled etc as the information sheet had it as a side effect.  So far so good, no redness or peeling anywhere.  I hope you have as much good luck as me on this drug :)