Forum Discussion
arpie
7 years agoMember
WOW! @Brenda5 Good find!! How did you learn about this one? I've never head of this trial ...... I will definitely mention this to my surgeon on my 1st review on Tuesday!
How wonderful if it was available cheaper & back when you are first diagnosed? Then there is something to compare it with, after surgery & any active treatment is completed.
I can see this being a wonderful test for ALL cancer sufferers!
Apparently, only a tiny amount of the the BC research money is used specifically on Mets (in the USA it is about 7% of what is raised, spent on Mets.) :( This really needs to be addressed.
I wonder how long our pathology samples are kept before big biffed? Most medical records only need to be kept for 7 years (I went looking for Keith's Specialist allergy tests at Westmead, to find it they were biffed 6 months ago. :( )
If someone is diagnosed with mets further down the line, the researchers would really need access to the original tissue as well as the Mets tissue, to compare the changes ..... and it could be way more than 7 years before being 'needed'?
How wonderful if it was available cheaper & back when you are first diagnosed? Then there is something to compare it with, after surgery & any active treatment is completed.
I can see this being a wonderful test for ALL cancer sufferers!
Apparently, only a tiny amount of the the BC research money is used specifically on Mets (in the USA it is about 7% of what is raised, spent on Mets.) :( This really needs to be addressed.
I wonder how long our pathology samples are kept before big biffed? Most medical records only need to be kept for 7 years (I went looking for Keith's Specialist allergy tests at Westmead, to find it they were biffed 6 months ago. :( )
If someone is diagnosed with mets further down the line, the researchers would really need access to the original tissue as well as the Mets tissue, to compare the changes ..... and it could be way more than 7 years before being 'needed'?