Hi pink sistersI feel like it’s time to own up to my stage 4 liver Mets that I was diagnosed with 12 months agoI can’t say I’ve been paddling in that Egyptian river.... de-Nile.... denial (get it? :smile: ) but I have been avoiding owning up to it. I guess I’ve been wishing it’s all just a bad dream... alas!Here it is: I was diagnosed in Sept 2010 with early triple positive with only one mode involved... oh yeah and I was 25 weeks pregnant.Mastectomy, 15 months chemo.. 3 with a baby on board - then 6 weeks rads and then two reconstruction surgeries all with a newborn and a 2 and 4 year old.A blissful 7.5 years on Tamoxifen with the knowledge that I was completely cured... until Feb last year.My liver was full of it... not your normal solid tumors but a spiders web like covering of the liver.Lots more chemo with which I did not enjoy during liver failure... ended up in hospital each time but almost unbelievably I can say I’m NED for 6 months! Crazy crazy times!So that’s my Mets story but I’m much more than that!I’m a full time mumma to three. I’m slowly working my way through a history research degree. I love sewing, bushwalking, talking to random strangers, tracing my family tree and chocolate (more than most things!).So I just popped in to say hello and that i plan on hanging around here for a long time if that’s okay.I’m currently enjoying herceptin and perjetta every three weeks and hope to be for a long time to come.Kim :)

Hi Kim , Thank you for sharing . Reading your story I feel hope through your written words. You has also given me the courage to write my first post.

Oh ladies... I hate this disease with a passion. There are some others here with mets but it's good to see your voices, loud and strong. My very best wishes to both of you.

Inspirational both of you. You got back to some normalcy in life at least and even though it is back now in a different form, it does sound treatable so that is very good. Keep on posting. We care about you. <3

Hi and welcome @Kim2010 and @Bagnara This really is a sneaky shit of a disease; I'm so sorry find yourselves back on the cancer train. Wishing you both the best of luck. Mxx

@Bagnara and @Kim2010 is great to see you both on the main forum. Many on here are aware a Mets diagnosis is possible down the track for those with early bc.Your voices on here are important not only for yourselves but for others.If we have a chance of defeating this disease we need to be open and out there amongst ourselves and others.No doubt there may be times the privacy of the Mets group maybe what you need but when not we all welcome a chance to spend some online time with you as we fight our way through this.We stand with you.And maybe also we can have a bloody good chat! PS @Kim2010 for starting something I hope will continue

Time to own up to mets | BCNA Online Network

23 Replies

Blossom1961
Member
7 years ago
Thank you ladies for sharing your stories. I had treatment with a single mum who has Mets in her bones and and ? I keep in contact with this lady and we go out fairly regularly. One of her children has autism. I have been able to relate your stories to her and it has given her hope after a very bleak prognosis from the doctors.
Giovanna_BCNA
Member
7 years ago
Hello @Bagnara thank you for your question.
You have been posting in the general forum which is not private. Please let me know if you would like any of your posts edited. I have just now accepted your request to join the private living with metastatic breast cancer group. Once you accept the request you will be in the group and can start posting there. Please let us know if you have any further concerns.
Zoffiel
Member
7 years ago
In addition to my last post, people with metastatic and late stage cancer are certainly not confined to the private groups. There are categories--Kim has put her original post under metastatic cancer-- which help sort topics, but individual threads can go madly off course.
Zoffiel
Member
7 years ago
Hi @Bagnara
Comments on the public forum can be seen by anyone. In addition to the 'Members'--who can post and contribute--anyone, anywhere in the world at any time can view the conversations by signing in as a 'guest'. We sometimes forget that, which is why it's important to maintain some degree of cybersafety here. There are are 6 anonymous guests sitting here observing as I'm typing. Hello guests.
In addition to the public forum there are private groups. These groups are members only and you have to apply for entry. There are community members who moderate and manage the groups in conjunction with BCNA; they are switched on and will only allow genuine people in. Sometimes there are glitches with the software and as those who do the approvals are volunteers, there can be delays. It will get sorted as the mods were tagged in the last comment.
Mxx
kmakm
Member
7 years ago
Hey @Bagnara. This is the open forum and any comment made here is public. They can come up in Google searches. Anything written in the private groups (eg Metastatic Breast Cancer, Choosing Breast Reconstruction) remains private, not searchable. I found it all a bit confusing at the start as well. K xox
iserbrown
Member
7 years ago
@Giovanna_BCNA
Can you assist @Bagnara please

Or perhaps @Riki_BCNA
Bagnara
Member
7 years ago
Thank you everyone and especially to Kim for your caring and encouragement .
Kim2010
Member
7 years ago
Stargirl - that is exactly the kind of fight that I love to hear about. Crazy life with little kids! Keep smashing the beast and I hope to hear more good news as life rolls on. Thanks for sharing :)
StarGirl
Member
7 years ago
@Kim2010, I can totally relate to that. I think denial is underrated! It’s a great survival tool. I was diagnosed in 2015 with MBC de novo with extensive liver mets (not a spider web though, I’ve not heard of that before, just multiple fairly large tumours) at that time I had a 2 year old and a 4 year old. Did chemo etc and haven’t had a day of trouble with my liver since. Like you I’m on 3 weekly Herceptin and Perjeta since 2015. Wishing you all the best x
kmakm
Member
7 years ago
We did!