Forum Discussion
Time to own up to mets
Hi pink sisters
I feel like it’s time to own up to my stage 4 liver Mets that I was diagnosed with 12 months ago
I can’t say I’ve been paddling in that Egyptian river.... de-Nile.... denial (get it? :smile: ) but I have been avoiding owning up to it. I guess I’ve been wishing it’s all just a bad dream... alas!
Here it is: I was diagnosed in Sept 2010 with early triple positive with only one mode involved... oh yeah and I was 25 weeks pregnant.
Mastectomy, 15 months chemo.. 3 with a baby on board - then 6 weeks rads and then two reconstruction surgeries all with a newborn and a 2 and 4 year old.
A blissful 7.5 years on Tamoxifen with the knowledge that I was completely cured... until Feb last year.
My liver was full of it... not your normal solid tumors but a spiders web like covering of the liver.
Lots more chemo with which I did not enjoy during liver failure... ended up in hospital each time but almost unbelievably I can say I’m NED for 6 months! Crazy crazy times!
So that’s my Mets story but I’m much more than that!
I’m a full time mumma to three. I’m slowly working my way through a history research degree. I love sewing, bushwalking, talking to random strangers, tracing my family tree and chocolate (more than most things!).
So I just popped in to say hello and that i plan on hanging around here for a long time if that’s okay.
I’m currently enjoying herceptin and perjetta every three weeks and hope to be for a long time to come.
Kim :)
I feel like it’s time to own up to my stage 4 liver Mets that I was diagnosed with 12 months ago
I can’t say I’ve been paddling in that Egyptian river.... de-Nile.... denial (get it? :smile: ) but I have been avoiding owning up to it. I guess I’ve been wishing it’s all just a bad dream... alas!
Here it is: I was diagnosed in Sept 2010 with early triple positive with only one mode involved... oh yeah and I was 25 weeks pregnant.
Mastectomy, 15 months chemo.. 3 with a baby on board - then 6 weeks rads and then two reconstruction surgeries all with a newborn and a 2 and 4 year old.
A blissful 7.5 years on Tamoxifen with the knowledge that I was completely cured... until Feb last year.
My liver was full of it... not your normal solid tumors but a spiders web like covering of the liver.
Lots more chemo with which I did not enjoy during liver failure... ended up in hospital each time but almost unbelievably I can say I’m NED for 6 months! Crazy crazy times!
So that’s my Mets story but I’m much more than that!
I’m a full time mumma to three. I’m slowly working my way through a history research degree. I love sewing, bushwalking, talking to random strangers, tracing my family tree and chocolate (more than most things!).
So I just popped in to say hello and that i plan on hanging around here for a long time if that’s okay.
I’m currently enjoying herceptin and perjetta every three weeks and hope to be for a long time to come.
Kim :)
23 Replies
- @kmakm. I absolutely meant mets but my peripheral neuropathy loves a good stumble and I figure you’d all know what I mean! 😂
- @Bagnara and @Kim2010 Just wanted to say a big Hi and welcome to the forum none of us expected to be in but hope you get as much out of it as I have with all of these inspirational members supporting us on our bad days and making us laugh on others. Good luck on your treatments. xo
- Hey Kim, did you mean to type 'mets' in the title? If so, @Giovanna_BCNA will be able to correct it I'm sure. :)
- @Bagnara and @Kim2010 is great to see you both on the main forum. Many on here are aware a Mets diagnosis is possible down the track for those with early bc.Your voices on here are important not only for yourselves but for others.If we have a chance of defeating this disease we need to be open and out there amongst ourselves and others.No doubt there may be times the privacy of the Mets group maybe what you need but when not we all welcome a chance to spend some online time with you as we fight our way through this.We stand with you.And maybe also we can have a bloody good chat!
PS @Kim2010 for starting something I hope will continue - Welcome @Bagnara & @Kim2010 ,sorry to see you here ,but great to have you just the same. Your stories are both inspirational to the ladies that have mets .
There is so much support here for you any time of day or night ,sharing stories ,families ,laughs , love & caring . Along with experiences of treatments & medications.
Hugs to you both xx - Hi ladies - goodness what can I say! There's a dedicated group for mets, private, whereas this forum is public that you may want to join with others in a similar situation - if you haven't already joined
Best wishes for your ongoing treatment
Take care
http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer - @Kim2010 and @Bagnara I am so glad you found this forum. It has been a lifesaver for me. Feel free to voice both your pain and your joys as well as the many frustrations we all face. We are here to support each other and love sending virtual hugs. xxx
- Wow ladies! Such powerful posts ... welcome to the forum @Bagnara and @Kim2010 although I am sorry to see the change in circumstances.
Your posts are inspirational to all of us. Long may you be NED, Kim and @Bagnara - you’ve kept them guessing for 22 years ...... here’s to another 22. Xx
Take care ladies xxx - Inspirational both of you. You got back to some normalcy in life at least and even though it is back now in a different form, it does sound treatable so that is very good. Keep on posting. We care about you. <3
- Hello @Kim2010 and @Bagnara. While I'm deeply sorry you're here I'm glad you've found this forum and I hope you find it helpful. And how's that Kim, your bravery led someone else to speak up and get support! In the face of this f******g disease, that's pretty cool. All strength to you both. K xox
