Forum Discussion
max1ebob
12 years agoMember
Secondary breast cancer
Hi this is my first blog,
I have been living with mestatic breast cancer for 4 months now, well that is when I found out that the cancer had spread to my skull, spine, pelvis, ribs, throat, chest wall and 2 weeks ago I was told that it is now in both my lungs.
I am still working full time, now that the pain has been managed, it's amazing the treatments they have out now, I thought I was going to be bed ridden with the pain.
Though I think the best medicine is having a positive mind, faith and HOPE. I know there is no cure for my cancer now, but there is always HOPE as new treatments are coming out that will prolong my life. I could still be around for many more years to come, well I am going to be around for many more years to come, that's better thinking.
I praise the Lord for helping me with his courage, spirit and wisdom.
64 Replies
- LLSMemberI think I echo Gaylene's thoughts in welcoming you to this group while acknowledging that it is one to which we all wish we didn't belong. Nevertheless welcome and I hope that the group helps with support, information and a place to chat with others with similar experiences. I was diagnosed 5 years and don't often talk about it. I had been working part time up until July when I fell and broke the neck of femur. Fortunately this was not the mets deciding to become active again, just clumsiness combined with a slate floor and a bit of bad luck. Well done on being at work full time and I am pleased to hear the pain is under control. Be kind to yourself and maintain your hope.
- Deb_FMemberYou give me hope that I can actually do this, thank you. Xxoo
- GayleneMemberWelcome to the group. Although its a group we all wish didn't need to exist. Yes positive attitude goes a long way. Glad to hear that things are stabilizing for you, and the pain is under control. I have been living with Mets for two years and try to not think about it too much. Though I was recently diagnosed with brain mets as well so life has been a bit hectic for the last month or so. But now at the typical wait and see stage. Which is when life goes back to our new normal. Yes it's not curable but many people live with life threatening diseases for many years, we will be no different. And it's amazing what new treatments are found every day. Glad to have met you.
- GayleneMemberWelcome to the group. Although its a group we all wish didn't need to exist. Yes positive attitude goes a long way. Glad to hear that things are stabilizing for you, and the pain is under control. I have been living with Mets for two years and try to not think about it too much. Though I was recently diagnosed with brain mets as well so life has been a bit hectic for the last month or so. But now at the typical wait and see stage. Which is when life goes back to our new normal. Yes it's not curable but many people live with life threatening diseases for many years, we will be no different. And it's amazing what new treatments are found every day. Glad to have met you.
- Cat18MemberI'm coping, thankfully I have dark moments now not dark days, and I think my brain has gone into protective mode and doesn't let me dwell too much on it but I also have 2 boys 7 & 14 who need a functioning mum, I refuse to give in to this disease but also my initial early bc diagnosis was nearly 3 years ago so I guess I had some processing time previously, I also regularly talked to a counsellor at the cancer council when I was first diagnosed who helped me learn some coping mechanisms
- Cat18MemberI'm coping, thankfully I have dark moments now not dark days, and I think my brain has gone into protective mode and doesn't let me dwell too much on it but I also have 2 boys 7 & 14 who need a functioning mum, I refuse to give in to this disease but also my initial early bc diagnosis was nearly 3 years ago so I guess I had some processing time previously, I also regularly talked to a counsellor at the cancer council when I was first diagnosed who helped me learn some coping mechanisms
- gorgitaMemberI am 41. Found out four months ago, stage iv from the get go. Am devestated
- max1ebobMember
Wow, about the same time I got my diagnosis, how are you coping? I am so glad to hear that you do not feel alone any more. It is hard when friends and family do not fully understand the emotional, physical and spiritual change that we face. So Happy that you are feeling supported.
- max1ebobMember
Thanks so much for your advise, although I am positive I do have though dark days and do need to grieve properly. I think I have onl let myself cry three times since I was diagnosised.
- max1ebobMember
Hi, you sound like an amazingly strong woman, I am so glad you messaged me. You have had to deal with so much in such a short time. Yes it can be managed, just to encourage you, my last scan two weeks ago, came back with mildly less promident in two sections of my skull, less promindant in my thoraic spine, stabilised in my pelvis and rest of spine. The lesion in my chest wall had halved its size. Although this is not curable we need to stay positvie and fight this battle together, there are treatments that can help us stablise and manage our pain, each one of us is individual and remember if you are not happy with your treatment plan then dont be afraid to speak to someone else. I was getting no where and then when I spoke up my treatment starting happening and look at the last result. Stay positive and stay strong, easier said then done, but I alread know that you are strong by your post .