Forum Discussion
Secondaries
I am dealing with secondaries...I'm not going to lie to you it is shit! planning your own funeral...crap! Telling your kids you won't see them grow up! totally, utterly gut wrenching crap!
Dealing with the fact that cancer is going to kill me! utterly, completely CRAP!
People telling me I should just stay positive "wanting to punch them in the face" CRAPPITY CRAP CRAP CRAP!!!
46 Replies
Hi ladies, THANK YOU so much for your support...I asked one of the leading Breast cancer Oncologoists in Australia about Avastin and she said she doesn't think it will work for me as I have not to responded to the other 4 types of aggressive hormone suppressing therapy they have tried so she doesn't think it will be of any benefit to me :O(
I am loving having hubby home! Although he is ready to go get a job...any job! LOL After 2 weeks of being a house husband! LOL He said to me "I get no time for myself! it's all just cooking, cleaning, washing and cleaning up mess!" ahhh yeah! Welacome to the last 10 years of my life! :D
Have been trrying CMF for the last 4 months with mixed results...my WCC isn't recovering well and the last CT results were mixed...chest, lung & pluera mets stable and some have shunk! YAY! BUT Liver mets have increased in size and number...but the large one I had 7.5 cm (ran through the lung and into the liver) in November is gone....very puzzling?...so I am having an ultrasound this week to see what is going on...Am switching to weekly Abraxane next week,...not looking forward to losing my hair for the THIRD time in 3 years! It really upsets my girls...my son (he's 10) thinks it's cool cause I look kinda army LOL..
So since I am losing my hair soon...had some family photos done on the weekend...it was so lovely, gorgeous location, photography was lovely, beautiful spirit :O)....Just enjoying the gorgeous Brisbane weather we had and enjoying each others company :O) ,
Have also been diagnosed with mixed connective tissue disease/Lupus and auto immune arthritis :O( ..BUT the silver lining is that the Dr's currently think that at least 2 of the liver tumors and some of the chest ones may be benign tumors linked to thte Lupus...we shall see....
Enjoying each day with my family and friends as best as I can :D
.LOVE TO YOU ALL m Pink Sisters xoxox
yeh that's true.
Right know St George Hospital is providing that trial.Im on it. IT WORKS!!!!!!!!!!!!!!!!!!!!! Almost no side effects. That drug is for HER positive BC and if u had only 1 line of Tykerb+Zeloda and multiple lines of chemo. If interested message me Ill send u more info or I may ask my trial coordinator what do u need to do to be qulified for this trail
yeh that's true.
Right know St George Hospital is providing that trial.Im on it. IT WORKS!!!!!!!!!!!!!!!!!!!!! Almost no side effects. That drug is for HER positive BC and if u had only 1 line of Tykerb+Zeloda and multiple lines of chemo. If interested message me Ill send u more info or I may ask my trial coordinator what do u need to do to be qulified for this trail
Hi Belinda
I'm fighting that secondary s*** almost 6 years. Never give up!Never! Since then i had a stroke, developed diabetes, Im spending as minimum a week each month in hospital... yeh it is exhousting it is not a good life,but it is still a Life... I wanted to die when I had a stroke I though this is the end.. but then why i would so easy give up...? im wishing u all the best. keep fighting for u and for ur kids.
Might be worth a look. Hope you are feeling OK, you are often in my thoughts.
Still praying
Laraxx
- Hi Belinda I am a fellow ABCer and also have young children. I understand where you are coming from. Enjoy your family and (where possible) cut out those who stress you out. Be kind to yourself. Amy x
- Hi Belinda I am a fellow ABCer and also have young children. I understand where you are coming from. Enjoy your family and (where possible) cut out those who stress you out. Be kind to yourself. Amy x
- Hi Belinda I am a fellow ABCer and also have young children. I understand where you are coming from. Enjoy your family and (where possible) cut out those who stress you out. Be kind to yourself. Amy x
Hi I saw a report on this drug the other day on a show cant remember which one, It may not be available here or even be an option for you and I hope the link will work, the story showed women who had done the trial with no chemo side effects at all, and their comments where that they didnt have that raw on the inside, being poisoned feeling, is only for HER positive I believe but worth a look at least, dont want to get your hopes up on anything, but who knows there may be a trial here in Oz
http://www.sciencedaily.com/releases/2012/06/120604094115.htm
All the best for some happy times soon
Cheers Narelle xox
What on earth is going on in this world where someone as young and beautiful as you has bc secondaries.I don't know how the bc fundraising money is dispersed for which research but it should be targeted to young women like yourself. I can't begin to imagine facing secondaries when my girls were so young.It's just bloody wrong,wrong,wrong.Yes you have to be realistic but keep hope alive.Celeste has wise words in that the right chemo combo maybe just around the corner for you.Love and hugs to you.
Tonya xx
