Forum Discussion
Recent MBC - sternum
I was diagnosed with MBC on 5 November, (first diagnosed with BC in August 2016). I have been told that it's detained in the sternum and no other areas of the body and it is thought that it was there when the breast tumour was removed in Sept 16. The suggestion is that I stay on Tamoxifen or as I am premenopausal that I have my ovaries removed and I would then have access to either Palbociclib or Ribociclib. I could have a monthly ovarian suppression injection rather than have them removed.
I am currently looking into the options presented and will see the medical oncologist in two weeks time.
I am just wondering if there are any others here on this network that have experienced the same thing?
I am currently looking into the options presented and will see the medical oncologist in two weeks time.
I am just wondering if there are any others here on this network that have experienced the same thing?
13 Replies
- @Palmbeachprincess I will chase up tomorrow with the developers as some network problems it seems
- Riki_BCNA
x - Hi
where did you send the invite to?
X - Hi @Palmbeachprincess I have sent you an invite to the group. Please let me know if any problems
- @Riki_BCNA
hi
Could you accept me into the private group.
whenever I try to log in it cites permission denied.
Thanks x - Hi @Mazzi that is wonderful news. it would be great if you would consider sharing your story (i.e. in the stories board) in the MBC private group for newcomers that would really value your experience.
- Thanks @Mazzi for your amazing story. Yes, there is always hope. <3
- I wanted to just pop in and say hello... I was diagnosed with mets in my sternum in 2005. I have always been in the public system and they have looked after me well. Mets in bone only still after nearly 15yrs. Have been on herceptin for all this time. Just wanted to let you all know that anything is possible.. there is always hope.. love to all <3
- Fortunately, my costs have been minimal to date. All of the drugs I have been on are either on the PBS or supplied by a pharmaceutical company by way of trial. The Amebaciclib I am on now is supplied as part of a trial. I am very lucky to have an oncologist who is an active, world renowned, clinical researcher, so if she can't get me access on a trial she will most likely will be able to get me compassionate access. The denosumab injection I have monthly is on the PBS and costs about $40/month. I had my ovaries removed privately, but the surgeon works in the public system as well and agreed to do it for me at public prices. He even organised for the anaesthestist to do the same! I used to feel bad if offered something for free, but have learned very quickly to accept the offer if made! It certainly makes things easier given that I am not working.
- @Georgie17 i
i havent added up my costs but on no where near lisa’s amount yet
they will be reviewed at a future date
just on tamoxifen, oz mep for reflux, ant inflammatory and pain relief
was on targin but that script is finished
blood test this week so we will see
i just ask questions at each visit. ( go with my list and my 2nd set of ears)
need her as my brain mush doesnt go away. These days.Good luck with your decision. I find it hard to decide things for myself i have to trust them to make the right ones for me.
