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Lisajane72's avatar
Lisajane72
Member
11 years ago

Now they say it's in the spine!

For the first time in the 5.5 weeks since diagnosis, I have been absolutely rocked to the core. I visited my oncologist on Thursday and saw her locum as she was on leave.

At the end of the routine appoitnment she said, ooh here's a sealed envelope in your file - let's have a look.  Long story short, it was my bone scan report showing two spots, one on my spine and one on my ribs.  She was terribly embarassed however she explained, too quickly, that instead of having beat cancer, I now have cancer for life.

I have now processed what little info I have and am going back next week with more questions however would love to hear from anyone in a similar situation?  I have spent almost the past 48 hours on google and am yet to find an indicative prognosis, ie how long do I have?  Can anyone help?  Thanks so much.  xxx

anxiety

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  • Michelle_R's avatar
    Michelle_R
    Member
    11 years ago

    I am so very sorry to hear your news.  Sending you a big cyber hug and every positive wish for a good prognosis.  When does your own Oncologist return? Try not to go to Dr Google too much - he can be an idiot and full of misinformation.  The last few days must have been beyond description for you.  Stay in touch and let us know how you are going - we are here for you.   Michelle xxxooo

  • Julie_Bache's avatar
    Julie_Bache
    Member
    11 years ago

    And Lisa, to find group of those living with secondary, go to 'my groups' on the right hand side and then you put in key words for options. I hope that works!! 

  • Julie_Bache's avatar
    Julie_Bache
    Member
    11 years ago

    And Lisa, to find group of those living with secondary, go to 'my groups' on the right hand side and then you put in key words for options. I hope that works!! 

  • Julie_Bache's avatar
    Julie_Bache
    Member
    11 years ago

    I have been living with bone mets for 7 years! Yes, there are challenges along the way but I go about my business as normally as I can. There are some great treatments that can keep things relatively stable. To some degree it does depend on type of bc you have but there seems to be alternate options as each drug stops doing its job. Hang in there and enjoy all the good days. xx

  • Julie_Bache's avatar
    Julie_Bache
    Member
    11 years ago

    I have been living with bone mets for 7 years! Yes, there are challenges along the way but I go about my business as normally as I can. There are some great treatments that can keep things relatively stable. To some degree it does depend on type of bc you have but there seems to be alternate options as each drug stops doing its job. Hang in there and enjoy all the good days. xx

  • Deanne's avatar
    Deanne
    Member
    11 years ago

    So very, very sorry to hear this. There is never a good way to find this out but very upsetting to hear it the way you did. I can only imagine what you are going through right now.

    But I do know that there are a few ladies on here who have been living well with secondaries for a number of years. If you do a search on Cellbird you will find that she has had very good results with her treatment so far and I am sure she is not the only one. There are a range of treatments that often work well for extended periods of time.

    Keep in touch. Will be thinking of you and hoping that you get some better information and answers next week. Take care. Deanne xxxxoooo