November 27th is almost here..... 🥳🥳
Metastatic breast cancer (MBC) is treatable but incurable. No one knows how many people are living with MBC not just in Australia, but around the world, something that BCNA has been advocating to cha...
Forum Discussion
I think mets patients are treated like second class citizens. I had to fight for a mets nurse. My treating hospital have breast care nurses but they only support stage 1 to 3. Wtf. That's actually discrimination.
I have been advocating for metastatic nurses at this hospiral. I met with their executive and finally to cut a long story short, they are currently having their breast care nurses do the mcgarth training.
This should not happen. I am sick. I needed help. I found my own mets nurses and i am thankful for that but i dont want other mets patients to go through this.
When a person with mbc finds out about progression it is so traumatic. It's like a complete restructure to ones life, everything changes for you, the treatment, the side effects, tge treatment cycle etc. Plans get changed and everyones life in the home is changed too. It's enormous change for everyone.
Support for all with metastatic disease is critical. It is hard enough and very lonely but support helps.
Thanks Cath62, you’ve raised such important points - if metastatic patients aren’t properly counted and recognised, it makes it harder to allocate resources and ensure the right support is available. Every person living with metastatic disease deserves to receive the right care that reflects their needs, especially as it can affect so many other areas of life as you mentioned - accurate data is key to driving that change. Thank you for speaking up!