Hi everyone, yesterday I got the bad news that my early breast cancer diagnosis of 4 years ago has spread, I was devastated, I have changes in my pelvis and lower spine and a growth push against my kidney tube hence that kidney not working correctly and a stent is going to be inserted and a biopsie of the growth to see if it’s still the same cancer I was diagnosed with originally then we know exactly what we dealing with, I will say I’m frightened, worried, scared as hell, panicked, nervous, and all the other emotions that come along with that diagnosis, I walked out of the oncologists office and hopefully not in the hearing of the other patients there dropped the F bomb a dozen times, what the future holds for me now I don’t know what I do know is I will be fighting this all the way.

I love how we can get on here, say how we feel and everyone is encouraging they might be going through their own journey of shitty days then happy days it’s such a roller coaster but I’m so happy we can get on here and there is always somehere with encouraging words to keep us going. A huge Thankyou you to everyone I dont know you but feel like I do and that is appreciated 😃

Hi Glynnis, how it it going with you? YOu had your next stent change okay? Yes, I wasn't totally confident going into hospital in May for the stent change, but it was okay. Not a good time for hospital. I am on the clinical trial for a new drug so have to go up to the cancer clinic in Sydney each month and every 2 months to the hospital up there for scans. I am pleased to be on the trial though as it is having a good effect on bringing the tumour markers down and no real side effects.

Just a follow up, had urologist post op check today. Op went well no blockage but the urethra is a bit thick in places so that’s been the problem. Stent will get changed every 6 months for that I’m happy 😃

@Glynnis You have so many virtual hugs coming from so many lovelies that you won’t be able to feel anything else. Stacks on!

Newly diagnosed with mets | BCNA Online Network

77 Replies

iserbrown
Member
7 years ago
@Glynnis
If you put Kisquali in the search above you will find posts on the topic or click on Metstatic cancer in the category listing - lots of encouraging info

Have you joined the private group

https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer

Best wishes. I have to say I shuddered and still do when I read your post. I'm 4 years end April

Hope the collective positive energy helps

Take care xx
arpie
Member
7 years ago
I am So sorry to hear this, @Glynnis ..... my heart goes out to you xxxx

I hope the meds regime they put you on will stabilise your mets, stop the pain & give you the quality of life that you deserve. xxxxx

big hugs coming to you xxx
AllyJay
Member
7 years ago
I have no words @Glynnis...but my thoughts are with you at this truly horrible time. (((hug))).
Glynnis
Member
7 years ago
@iserbrown, oncologist talking about putting me on Kisqali and a Estrogen block as well
Glynnis
Member
7 years ago
Thankyou @sister
Sister
Member
7 years ago
Such devastating news @glynnis. No words can make anything better but thinking of you.
iserbrown
Member
7 years ago
My heart goes out to you with a sigh! I do hope this next phase has been caught early and zapped to oblivion
Take care

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Newly diagnosed with mets

77 Replies

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