Forum Discussion
New to the group with spinal mets
@FYONA1 posted
hi everyone
i really would like to hear from someone who is going through mets to the spine I was diagnosed a few weeks ago and did radiation and am currently doing letrozole and ribociclib
am feeling very scared and worry about some of the frightening side effects that I may experience
if someone can plz tell me how they're feeling that would be very much appreciated
hi everyone
i really would like to hear from someone who is going through mets to the spine I was diagnosed a few weeks ago and did radiation and am currently doing letrozole and ribociclib
am feeling very scared and worry about some of the frightening side effects that I may experience
if someone can plz tell me how they're feeling that would be very much appreciated
26 Replies
- Hi @SoldierCrab
thanks for helping me out
I'm new to all this so I'm finding it hard to cope with everything
I just needed some advice on how to cope and staying positive - Hello @SoldierCrab
Thanks for adding your post and tagging in some other network members who may be able to assist FYONA1.
I spoke with FYONA1 today, she is a member of the MBC group, I suggested adding her questions to the main discussion forum for a response or comment. - Thanks Alice. As you will find @FYONA1 we all have our strengths, you will find yours too. Mxxx
- hi FYONA1 sorry you have need to be here.... @wendy55 @Tilly45 @KeelyB Ladies can you help Fyona out here ?
Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet.
It can be a a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time.
The what and how thread.
http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey Kits and other resources.
https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258.
The Helpline is open
Monday, Wednesday and Friday from 9 am till 5 pm EST
and
Tuesday and Thursday from 9 am till 9 pm EST.
living with metastatic cancer https//onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer
- Hello @FYONA1. I'm so sorry that you've joined us here with such a bugger of a diagnosis. I hope you find this forum as helpful and supportive as I have.
There is a closed group called Metatastic Breast Cancer you might like to join. Scroll down to the list of groups below and follow the prompts.
I am about to start Letrozole next week and am scared and worried about that mile long list of side effects myself! However I do know that lots of people have hardly any or none. We just have to hope that we fall into that lucky group.
The other thing that's handy to do is use the search bar at the top of the home page. Pop in whatever you're wondering about and you'll find stacks of info.
Hang in there hun, big hug. K xox - Hi @FYONA1 I'm not in your position so can't help you with the details of your treatment. I have, however, been on and off the breast cancer bus for over a decade and remember very well how confronting diagnosis can be.
@SoldierCrab is your go to person for links to everything BCNA. There are many here who are living with metastatic disease, they can, and wil,l help you with managing the next few weeks. Marg xx
