Hello Girls,Went for my 'restaging' scans on 06/01/17 & my bloods were taken today to measure my tumor markers, my oncology appointment is 27/01/17.So.... now the wait begins again, no sleep, lots of anxiety, nervous nausea, all the fun things.I dont get why they restage??? isnt metastatic bc stage 4??? isnt it incurable??? so how can it be restaged to another stage???Oh how I have this journey at times. I think I will cheer myself up with new Lorna Jane activewear & a run!!!Cate

Cate, I must admit I don't know about the restaging, but am sure others can jump in. I totally hear you, the anxiety can be unbearable especially in the waiting process. I like that you know the things you can do that not only seem to settle you, but also nurture the person you are. I think this is half the battle really through all of this journey, is finding the things that help. I dont know about you, but I find such peace in the quiet stillness sometimes, just being. Keep us updated! Hugs Melinda xo

Hi CateThis is Kathy from BCNA's Policy Team. What a worrying time for you. I think these scans and tests are pretty routine after a period of treatment and are done to see what has happened to your cancer over the course of that treatment. Has it shrunk (hopefully), has it stayed the same or is it growing. They will use this information to help decide what to do about your treatment - continue with it, change to something else, or perhaps you can have a break if it is all looking good.It is a long time for you to have to wait and worry until 27 January. Could you ring your medical oncology clinic or breast care nurse (if you have one) to see if they can get you in any earlier? Tell them you are anxious about the results and having trouble sleeping.Enjoy your running in the meantime!Best wishes, Kathy

Hi cate I've just had scans last week and my onconlist put restage I don't understand it either I know it's a long wait for you but the fear is soo over whelming I'm thinking of you lots of hugs Sam xxxxxx

@sammy1970 thanks, the fear is so consuming. Whilst I was stable etc in my last scans I know there will come a point when I am not & I am forever fearful of that time.Cate

I only have bone mets and it 4/years my scan I had last showed a tumor on front rib which I had a feeling and because my tumor markers slightly had all the other ones to check it hadn't gone any where else but they were clear the fear is sooo scary my body is soo tied I think from stress but staying on falodex for know this is soo scary knowbody knows what we are going threw it is something we know have and if it appears they can always help us never forget that there are new treatments all the time I know that's how I live I wish I could you soo much with the fear I felt it last week but I'm here for you if you need me and my breast nurse is on holidays at the moment but they sure help understand I just like to jump on and try and help please I'm here if you need me wishing you all the best ❤️

NEARLY THAT TIME AGAIN!! | BCNA Online Network

32 Replies

Kathy_BCNA
Member
9 years ago
Hi Cate
This is Kathy from BCNA's Policy Team. What a worrying time for you. I think these scans and tests are pretty routine after a period of treatment and are done to see what has happened to your cancer over the course of that treatment. Has it shrunk (hopefully), has it stayed the same or is it growing. They will use this information to help decide what to do about your treatment - continue with it, change to something else, or perhaps you can have a break if it is all looking good.
It is a long time for you to have to wait and worry until 27 January. Could you ring your medical oncology clinic or breast care nurse (if you have one) to see if they can get you in any earlier? Tell them you are anxious about the results and having trouble sleeping.
Enjoy your running in the meantime!
Best wishes, Kathy
melclarity
Member
9 years ago
Cate, I must admit I don't know about the restaging, but am sure others can jump in. I totally hear you, the anxiety can be unbearable especially in the waiting process. I like that you know the things you can do that not only seem to settle you, but also nurture the person you are. I think this is half the battle really through all of this journey, is finding the things that help. I dont know about you, but I find such peace in the quiet stillness sometimes, just being. Keep us updated! Hugs Melinda xo

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