My first post
Hi everyone, this is my first time to reach out to anyone out there who maybe able to help me. I was diagnosed with breast cancer in May 2010. Had mastectomy, chemo, radiotherapy. In March thru to Ap...
Forum Discussion
Hi DeniseP, if you are on 3wkly treatment, you will be up to your second dose of Caelyx (also called doxorubicin or Adriamycin)now, and may have more answers etc that you had at time of your first blog. But I wanted to supply you with a couple of links I thought you might find helpful.
First, about caelyx:
What liposomal doxorubicin is:Liposomal doxorubicin is the chemical name for the chemotherapy drug. It is also called by the brand names Caelyx, Myocet or Doxil. Doctors use it to treat some types of cancer, including breast cancer, ovarian cancer, multiple myeloma and a type of sarcoma called Kaposi’s sarcoma.This drug contains the chemotherapy drug doxorubicin (Adriamycin) wrapped up in a fatty covering called a liposome. This allows the doxorubicin to stay in the bloodstream longer, so that more of the drug reaches the cancer cells. It has fewer side effects on healthy cells than regular doxorubicin, because the fatty covering acts as a barrier.
Second, about support for Stage 4 breast cancer patients, which I recently discovered is something those of us who are not Stage 4 cannot properly provide, even though we care deeply and really do our best to understand and to be with you.:
There are 3 groups I have come across that are made up of people in Stage 4, and thus more likely to know answers etc.
1)The first is PYNKS advanced if your are in WA, a professionally run group with excellent guests and kind, lovely members:
rochelle.hook@bcrc-wa.com.au
2)The second is on the US site breastcancer.org Stage 4 group, I will give you the link for people with bone mets. This Stage 4 group seem to mostly be a really close and supportive group which may be what you are looking for :
https://community.breastcancer.org/forum/8/topic/789492
3)The third is the US HER2 cancer support organisation, who are lovely and have a great forum of kind, intelligent, supportive cancer patients with a lot of info about research, and personal experience.
4) The fourth item is a booklet for metastatic breast cancer patients written by metastatic breast cancer patients on HER2.org that may answer your questions in a helpful way.
http://her2support.org/images/phocadownload/BreastCancer_101/Metastatic.pdf
I hope you are travelling well, and finding success at dealing with the pain and the other unpleasant realities of life.