Liver mets - treatment options
Hi everyone, I was dx Stage IV in Sep 2016 with Mets to the Omentum and bones (spine, pelvis). This was 7 years after my initial diagnosis during which time I had been on tamoxifen. So I was put on af...
Forum Discussion
Hi Flozza, welcome to this discussion thread but sorry that you find yourself here.
I am also on the oral chemo capecatebine (Xeloda) and am taking the tablets for 14 days and then 7 days off. I started on 4 tablets (2000mg) each morning and night.
Just before Christmas (21 Dec) and on day 10 of my third cycle, I had to go to the Northern Cancer Institute to get my Xgeva shot. I was having a lot of pain walking due to the ‘foot’ syndrome from Xeloda. The nurses scheduled an appointment with the oncologist registrar that day and she directed me to stop the cycle that day, take the 7 day break and start again on 3 tablets (1500mg) morning and night. I have just finished a 14 day cycle at the reduced dose with no problems in the feet, although the skin on the ends of my fingers keeps peeling - so much so that my phone no longer recognised my finger print for online banking!
My oncologist ist said I should get 12 months out of Xeloda before progression, so fingers crossed for a year or more!
I think you should ask your oncologist or bc nurse if you should reduce the dose. These se can be permanent so don’t put up with it - seek advice
i was prescribed the anti nausea drug metoclopramide which I take one tablet morning and night when I’m taking Xeloda. I also take a Vitamin B6 tablet morning and night while I’m on the Xeloda - B6 is supposed to help with the hand and foot syndrome. I don’t take either of these on the 7 days off ( I try to give my body a drug break and only continue with Exemestane, insulin and metformin on my 7 days off)
Metformin did not help alone with my diabetes so now I inject 30 units of insulin each night and take 1000 mg of metformin. This seems to be regulating things somewhat. My oncologist said it is the cancer that is blocking the insulin pathways.
Anyway, I’m now planning to walk the Camino de Santiago , all 800kms of it! I am doing it with my 3 sisters who are all in their 70’s. We start on 17 August and are only going to walk 15kms a day, so it will take us longer than most, but the aim is to reach Santiago de Compostela , not break down trying. We start in St Jean Pierre de Port in France . I’m really looking forward to this!!
Please let me know how you get on with Xeloda Flozza. I hope you get relief from the HFS.
Cheees
Judy
I am also on the oral chemo capecatebine (Xeloda) and am taking the tablets for 14 days and then 7 days off. I started on 4 tablets (2000mg) each morning and night.
Just before Christmas (21 Dec) and on day 10 of my third cycle, I had to go to the Northern Cancer Institute to get my Xgeva shot. I was having a lot of pain walking due to the ‘foot’ syndrome from Xeloda. The nurses scheduled an appointment with the oncologist registrar that day and she directed me to stop the cycle that day, take the 7 day break and start again on 3 tablets (1500mg) morning and night. I have just finished a 14 day cycle at the reduced dose with no problems in the feet, although the skin on the ends of my fingers keeps peeling - so much so that my phone no longer recognised my finger print for online banking!
My oncologist ist said I should get 12 months out of Xeloda before progression, so fingers crossed for a year or more!
I think you should ask your oncologist or bc nurse if you should reduce the dose. These se can be permanent so don’t put up with it - seek advice
i was prescribed the anti nausea drug metoclopramide which I take one tablet morning and night when I’m taking Xeloda. I also take a Vitamin B6 tablet morning and night while I’m on the Xeloda - B6 is supposed to help with the hand and foot syndrome. I don’t take either of these on the 7 days off ( I try to give my body a drug break and only continue with Exemestane, insulin and metformin on my 7 days off)
Metformin did not help alone with my diabetes so now I inject 30 units of insulin each night and take 1000 mg of metformin. This seems to be regulating things somewhat. My oncologist said it is the cancer that is blocking the insulin pathways.
Anyway, I’m now planning to walk the Camino de Santiago , all 800kms of it! I am doing it with my 3 sisters who are all in their 70’s. We start on 17 August and are only going to walk 15kms a day, so it will take us longer than most, but the aim is to reach Santiago de Compostela , not break down trying. We start in St Jean Pierre de Port in France . I’m really looking forward to this!!
Please let me know how you get on with Xeloda Flozza. I hope you get relief from the HFS.
Cheees
Judy