In Sept 2018 I was diagonse with liver mets from breast cancer I had in Sep 2015. Six months of chemo saw good results until Wednesday when a routine CT scan revealed liver cancer returning and also mets in the brain. I was devastated as I had no other symptoms. I start full brain radiation Tuesday week, for 5 days and then 2 weeks later back on chemo. I could have handled the liver coming back but the brain mets is very frightening especially with the limited survival rate. I worry so much about my 2 girls (19 and 21 as well as my husband) There is so much out on the Net and not enough that is positive when you are just getting over the shock. Please help me feel better or suggest what to read or do much appreciated and feeling very frightenedCanisha

Hi all though I might let you know how things are. Had my 5 radiations and all went smoothly. Just got tired and hair now failing out but that's OK as not the first time. Tuesday had first chemo and that went well on the day. By then that night my legs started to swell, but had that before all the fluid. Now wearing compression bandages and keeping feet up. Finding myself very fatigue and uncomfortable with swollen liver but I know the chemo will help shrink the cancer and I can't wait that kicks in. If you are going through this stay positive and I know it is hard but try and walk outside even for 5 minutes it makes a huge difference. Thinking of you all and best wishesCanisha

@Canisha that is terrible news and of course you are frightened. This is a shit of a disease. It is so bloody unpredictable. I guess that's why none of us want it. The unpredictable bit can also work in our favour--some people do beat the odds.I think I speak for many who read your post and don't respond--WTF can we say? I don't do hugs or prayers but you are in my thoughts tonight. Marg xxx.

My mum died 10 years ago when I was 17 from lung cancer, about 11 months after diagnosis. I mirror what kmakm said, you’ve raised them well and whenever you do leave this earth, they will be okay. Yes it’s awful not having a mum particularly for my own cancer journey, plus the big things like my wedding day. But I’m sure you’ve taught them to be strong, lively women and trust me they will appreciate life in a new way. Ive seen a few women on a FB BC group who are living well 4 years after initial stage 4 diagnosis including brain mets. As a nurse, I’ve seen a lot of patients survive past their expectancy. Advice from both my personal experience losing my mum.. Just enjoy your time. Take holidays with the girls between treatment when you can. Tell them stories you never have. My biggest regret is not asking my mum more questions. I hope the new regime goes well and doesn’t leave you feeling too shit. Xx

Hi Canisha,I am new here. I am from Romania also diagnosed with breast cancer in October 2017.I am very sorry for what it is happening to you and all of us but also I think that you are strong as you already gone through this and your family too. My mind and heart are near you. If you think I might be of any help, I am here for you

Hi Canisha. I can certainly relate to what you are going through. I was initially diagnosed with Stage 3 Breast Cancer back in 2015, which then metastasised to my Liver in September 2017 and last month discovered it had progressed to my Brain. I too have had Brain Radiotherapy, which went quite well and start on another Chemo next week. I have a daughter who is 16 and I too worry about her and my husband, but found that getting organised and prepared for the future (without me), helped a lot. I’ve updated my Will, had an Enduring Power of Attorney prepared, made a list of important information and contacts, made a list of my favourite recipes and done a bunch of other stuff that will help make life go a little easier for my family and friends. It gave me a sense of satisfaction that I was able to get all this sorted, although some people may find this a little too confronting. It doesn’t mean you’ve given up, it just puts things into place for the future.I’m also a big believer in getting professional counselling through a qualified Psychologist who specialises in this field. Both my husband and daughter see Psychologists and I will too.please don’t hesitate to contact me if you have any questions or just want a chat. I will be thinking of you. Lynne 🌹

Liver and Brain mets | BCNA Online Network

34 Replies

lrb_03
Member
6 years ago
@Canisha, as @Zoffiel said, wtf can we say, except that we're here for you.
There is site originating in the US, with members from all around the world, called Inspire. There a many different groups on the site, one of which is for "advanced breadt cancer". There's a lady on there who has metastases. She had brain mets, has had a number of treatments of gamma knife, or targeted radiotherapy and is still alive a number of years later.
Thinking of you xo
Zoffiel
Member
6 years ago
@Canisha that is terrible news and of course you are frightened. This is a shit of a disease. It is so bloody unpredictable. I guess that's why none of us want it. The unpredictable bit can also work in our favour--some people do beat the odds.
I think I speak for many who read your post and don't respond--WTF can we say?
I don't do hugs or prayers but you are in my thoughts tonight. Marg xxx
.
Canisha
Member
6 years ago
thanks so much for your support
arpie
Member
6 years ago
OMG @Canisha - you surely have a lot on your plate and I feel for you. xx All the best with the radiation treatment and chemo .... I sincerely hope it works in reducing the size of the mets and gives you a better quality of life, for you and the family xxx take care - my thoughts are with you xx

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Liver and Brain mets

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