Forum Discussion
like a kick in the guts
It's been a few days and though yesterday Wednesday was in comparison a good day with little pain I thought today would be better but I instead it proved to be a really painful afternoon on both sides of my ribs. I even made plans for the weekend but I realiased I have to be patient. A lot more patient. It's disheartening and sometimes I cry a little because it does hurt . I'd rather lose a leg than have to go thru this. Anyway I look forward to recovery and I hope that it comes real soon. Thanks for reading thanks for sharing. Distressed Donna
29 Replies
I'm so very sorry to read about your diagnosis and predicament. It seems like you've had a very rough ride, but I'm glad to read that you have a strong and loving husband who is by your side at this difficult time.
You have definitely come to the right place with your questions. I am unable to answer them but I know someone on this network will have the answers you are looking for.
I just wanted to let you know that your are not alone. Everyone who writes here has walked at least part of your journey in their own lives. Please stay in touch and let us know how you are doing.
Sending strength, hugs and healing energy your way.
xxx
Jeanine
I'm so very sorry to read about your diagnosis and predicament. It seems like you've had a very rough ride, but I'm glad to read that you have a strong and loving husband who is by your side at this difficult time.
You have definitely come to the right place with your questions. I am unable to answer them but I know someone on this network will have the answers you are looking for.
I just wanted to let you know that your are not alone. Everyone who writes here has walked at least part of your journey in their own lives. Please stay in touch and let us know how you are doing.
Sending strength, hugs and healing energy your way.
xxx
Jeanine
Hi again, I forgot to ask my new chemo is caelyx, has anyone had this, big thanks again, Denise xxx
Hi There - how do I join the advanced site? I was diagnosed with breast cancer 5 weeks ago, had a lumpectomy and it went to my lymph nodes. I found out yesterday it is in my ribs and spine so am now secondary. It's been a whirlwind 5 weeks. I love this site but I find it a bit tricky to navigate....Thanks & regards. lisa
- Just you don't love the way everyone makes you feel less alone love and hugs to every lady that responds to a blog, where would we be without you.xxxadean
- I'm so pleased to see that you have had responses from ladies going through the same experience as yourself. I hope this makes you feel less alone, and helps you realise that there are solutions to your pain and now you can go and ask for them. Thinking of you and wishing you only good health and freedom from pain. Remember that if you do too much, it won't matter how many pain-relievers you have, you will be in pain. Rest! Sending more hugs, Jeanine xxx
- I'm so pleased to see that you have had responses from ladies going through the same experience as yourself. I hope this makes you feel less alone, and helps you realise that there are solutions to your pain and now you can go and ask for them. Thinking of you and wishing you only good health and freedom from pain. Remember that if you do too much, it won't matter how many pain-relievers you have, you will be in pain. Rest! Sending more hugs, Jeanine xxx
Hi Donna.
I have been living with bone mets for 7 years now. Had some ups and downs with pain, most severe because of a femur fracture for which I have had 7 lperations! pain is well under control now and I take very few painkillers. However, I have three weekly injections of xgeva ( denosamub?) and previously 4 weekly zometa intravenously. These are both types of bone strentheners and I believe help with the pain as an added benefit. Perhaps you could ask your oncologist about these? I was on tamoxifen for 5 years and then femara, both hormone suppressors. since they stopped working I am now on xeloda. All of these drugs play havoc with your body in some way! I try not to let it fet me down and focus on making the most of every day. It does get better!! Though the rollercoaster keeps on rolling!
Hopefully you can get that pain managed soon so that you can get back to enjoying each day.
Hugs to you, Julie. xx
Sorry that your mets are giving you grief at the moment.. It is so damn hard to just keep on moving when there is such a consistent and level of pain going on.. If you mind your Medical Team are not enough relief to be getting around comfortably.. Perhaps speak with your GP or BCN (if you have one) about referring you for specialised pain management assessment and treatment.. Getting that sorted out and reduced will make a huge difference..
I do understand also the issues with Tamoxifen and with Hormone + (I did them for 7 years) they usually place you on one of them as even though the cancer grows indepentendly of the horemones.. It eats them for breakfast and grows more quickly because of them.. So hence the tablets to murder our innocent little hormones!!!.. Post menopausal ones can be fun too.. I am currently on Femara..
I hope you get some relief soon and get to do some of those things that you love doing.. It is amazing when you get little wins just how great you can feel.
Also, if you are interested in the Advanced Group, I am a facilitator for it and would be happy to add you in.. Just let me know..
cheers, Sharon (aka Pink66)Sorry that your mets are giving you grief at the moment.. It is so damn hard to just keep on moving when there is such a consistent and level of pain going on.. If you mind your Medical Team are not enough relief to be getting around comfortably.. Perhaps speak with your GP or BCN (if you have one) about referring you for specialised pain management assessment and treatment.. Getting that sorted out and reduced will make a huge difference..
I do understand also the issues with Tamoxifen and with Hormone + (I did them for 7 years) they usually place you on one of them as even though the cancer grows indepentendly of the horemones.. It eats them for breakfast and grows more quickly because of them.. So hence the tablets to murder our innocent little hormones!!!.. Post menopausal ones can be fun too.. I am currently on Femara..
I hope you get some relief soon and get to do some of those things that you love doing.. It is amazing when you get little wins just how great you can feel.
Also, if you are interested in the Advanced Group, I am a facilitator for it and would be happy to add you in.. Just let me know..
cheers, Sharon (aka Pink66)
