Frustrated
It is bad enough trying to cope with diagnosis, feeling unwell, only having limited capacity to walk and still maintain some kind of family life, but I would just like a doctor in my court fighting ...
Forum Discussion
Thanks for your support.
I don't understand why you can't know or request an oncologist in a clinic - afterall we need to build a relationship with a doctor we feel comfortable with. When I go to a general practice clinic I can request which doctor I want to see. Does anyone know why that isn't the case in hospital clinics?
It makes me think that it might be helpful to imagine what the system could be like.
I guess I envision a system where people with secondaries are immediately connected to a clinic that allocates a case manager/advocate who coordinates all the different specialists and services that we need, that can provide information, strategies and support to allow us to live as well and as long as we can.
I would also like it to be a badge of honor for clinics how long and well people live with secondaries.
I think change requires a dream and vision of what things could be like.