Faslodex / Xeloda / Ribociclib with Letrozole
Hi All Tomorrow my oncologist wants to talk about a new drug as others not working, she has pretty much given me 2 options Faslodex (non PBS) Or Xeloda (which I believe is a chemo drug) There i...
Forum Discussion
Hi @sunandsaltwater, nice to see you back, I had wondered how you were and how you were doing on the palbo combo,
so you have had 2 years, thats fantastic,so now its time for xeloda, well I can say I have been on xeloda for 28 months!,
and there is another lady here who has been on it for 5 years!, although like you the xeloda is not working quite as well as it did initially and my markers are rising slowly,I have scans on July 21st then the results on the 26th, xeloda is doable, it takes a while to adjust to the side effects but I learned to live with and manage them, you may not have any at all.
As you have experienced fatigue, being on xeloda wont change that, I am on a 12 days on 9 days off regime, that is what suits me, some are on 14 days on and 7 days off and then some 7 days on and 7 days off,like you I too have bouts of anxiety so have been seeing a pyschologist as well and am also on an antidepressant, my happy pills I call them,I have slowed down as well and enjoy my days now in the slow lane.
Life goes on,my oncologist has discussed several options for me when I need to change drugs and like you as well am not looking forward to have having iv chemo, BUT we do what we have to do, I have my beautiful new rescue dog laying beside me as I type this and then I have an appointment with an exercise physiologist,so all is good, be better when they find a cure for this rotten disease!!! keep in touch and when you start xeloda let me know how you are going, I have lots of tips and tricks for some of the side effects.
Once again, lovely to hear from you and how is the swimming going?
Wendy55
so you have had 2 years, thats fantastic,so now its time for xeloda, well I can say I have been on xeloda for 28 months!,
and there is another lady here who has been on it for 5 years!, although like you the xeloda is not working quite as well as it did initially and my markers are rising slowly,I have scans on July 21st then the results on the 26th, xeloda is doable, it takes a while to adjust to the side effects but I learned to live with and manage them, you may not have any at all.
As you have experienced fatigue, being on xeloda wont change that, I am on a 12 days on 9 days off regime, that is what suits me, some are on 14 days on and 7 days off and then some 7 days on and 7 days off,like you I too have bouts of anxiety so have been seeing a pyschologist as well and am also on an antidepressant, my happy pills I call them,I have slowed down as well and enjoy my days now in the slow lane.
Life goes on,my oncologist has discussed several options for me when I need to change drugs and like you as well am not looking forward to have having iv chemo, BUT we do what we have to do, I have my beautiful new rescue dog laying beside me as I type this and then I have an appointment with an exercise physiologist,so all is good, be better when they find a cure for this rotten disease!!! keep in touch and when you start xeloda let me know how you are going, I have lots of tips and tricks for some of the side effects.
Once again, lovely to hear from you and how is the swimming going?
Wendy55