Forum Discussion
sunandsaltwater
7 years agoMember
Hi All If it's any help, I did well with palbociclib (same drug as ribociclib, a cdk inhibitor) plus Faslodex for 24 cycles. Now it is losing effect, so just yesterday I began cycle 1 of Xeloda. My oncologist said Xeloda could work 'for up to 6 months'. Has anyone here been using it for longer than 6 months (I ask hopefully)?
I've been successfully putting off chemotherapy for 3 years already, so I shouldn't be still expecting more more more time, but there you go. I'm only human! And still living alone very well and living almost the same active life as always. Except the fatigue has slowed me down a lot lately. I keep losing my phone and keys and water bottle, and try to pace my days so I can still do something really active or pleasurable every day. I'm 66. I've been lucky so far with side effects of all the millions of treatments eg Surgeries, chemo then radiotherapy in 2012. Then different hormones until I went to Macau to get the magic palbociclib in 2016.
My hair did thin out but noone else seemed to notice, then it stopped thinning after about 20 months of palbociclib.
I have anxiety but also a great psychologist provided by my cancer clinic - for free. Aren't we lucky to have Medicare !?
And aren't we lucky to have this online community too.
Hi @wendy55 after I've had 2 years off this site (but in touch with BCNA people) how're you doing now?
I've been successfully putting off chemotherapy for 3 years already, so I shouldn't be still expecting more more more time, but there you go. I'm only human! And still living alone very well and living almost the same active life as always. Except the fatigue has slowed me down a lot lately. I keep losing my phone and keys and water bottle, and try to pace my days so I can still do something really active or pleasurable every day. I'm 66. I've been lucky so far with side effects of all the millions of treatments eg Surgeries, chemo then radiotherapy in 2012. Then different hormones until I went to Macau to get the magic palbociclib in 2016.
My hair did thin out but noone else seemed to notice, then it stopped thinning after about 20 months of palbociclib.
I have anxiety but also a great psychologist provided by my cancer clinic - for free. Aren't we lucky to have Medicare !?
And aren't we lucky to have this online community too.
Hi @wendy55 after I've had 2 years off this site (but in touch with BCNA people) how're you doing now?