Forum Discussion
Endone
Is anyone taking Endone (for pain) and what side effects are you experiencing?
My Oncologist prescribed me Endone for shoulder blade pain. I didn’t take it because a friend who had hip surgery had hallucinations when she was on it. As it so happened, the pain went away when I had T11 tumour ‘radiated’. That was last July. Now I have pain in my ribs so I got a ‘script from my GP yesterday for Panadeine Forte in case it’s a just a pulled muscle. But if it isn’t and PF doesn’t work (it did when I pulled a muscle last time), I’d like to know what to expect if Oncologist suggests Endone when I see her in two weeks. Naturally if PF kicks in before then I won’t need it.
My Oncologist prescribed me Endone for shoulder blade pain. I didn’t take it because a friend who had hip surgery had hallucinations when she was on it. As it so happened, the pain went away when I had T11 tumour ‘radiated’. That was last July. Now I have pain in my ribs so I got a ‘script from my GP yesterday for Panadeine Forte in case it’s a just a pulled muscle. But if it isn’t and PF doesn’t work (it did when I pulled a muscle last time), I’d like to know what to expect if Oncologist suggests Endone when I see her in two weeks. Naturally if PF kicks in before then I won’t need it.
31 Replies
- Thanks @iserbrown
Mosley’s tips are all sensible but I’m doing most. I suspect valerian works most on the brain (I’ve taken it so I should sleep!). Early exercise is the stumbling block - I have never, ever been a morning person, COVID lockdowns have made late rising much easier and I hate the thought, particularly the thought that he’s right! Perhaps a limited trial.......... - @kezmusc You should hear my rheumatologist's disgust over the difficulty in prescribing codeine for patients who need it. I can't take a whole range of painkillers due to allergy.
- I note that Insomnia has been mentioned in this discussion. This was on SBS recently
"Dr Michael Mosley's 6 tips for a better night's sleep" https://www.sbs.com.au/news/insight/dr-michael-mosley-s-6-tips-for-a-better-night-s-sleep - Endone worked for pain for me. But it gave me terrible nightmares :#
Used to love mersyndol too, helped with menopausal tension headaches! Once my gp sent me home and told me to go to bed for 3 days and take mersyndol.......back then ‘‘twas like a holiday from everybody and everything. Heaven. - Valerian has me thrashing in witchy Neverland. Does not suit.
- I know exactly how you feel. I also have warm chocolate before bed and I don’t even like milk. I’ve even resorted to sleeping tablets but getting a script from my GP is like pulling teeth. You’d think I was asking for Cocaine the way she carried on. That’s why I was surprised when my Oncologist so willing gave me the Endone script. Without discussing the side effects.
- It’s my own version of drug surfing!! Valerian works as well as anything, and sometimes I sleep pretty well with nothing but cold milk! When I get too many bad nights, I use Temaze but my last prescription (25 tablets) lasted 16 months so I am being careful! Luckily I don’t mind being awake in the wee small hours, sudoku has surprisingly narcotic qualities!
- @Afraser, oh my goodness. I’ve tried everything under the proverbial kitchen sink for my Insomnia. If Natures Own didn’t work, I don’t know what I would do.
- Reactions to things are so varied. I have been a poor sleeper for decades (nothing to do with cancer, no problem dropping off, wake and can’t get back to sleep). Nature’s Own gives me nightmares, I’d be delighted if it worked!
- @LucyDee I took mersyndol as a teenager for severe headaches and only stopped in my thirties when it stopped working as well. Then when I started getting migraines in my forties (once a year) I started taking them again for the three day recovery process. I also found they were the only thing that helped with period cramps. They are not currently in my house as I do not want my body to stop responding to them if I need them again. However, when I had BC, I made an exception.
