Hello,
I am on both 'indefinitely', started in 2018.
I've been told that I can have a six week break if I want to go on a holiday or some such thing....
I was also told that Herceptin is fully funded by the PBS and you can stop and start it as needed...however Perjeta is only funded once...once you are on it, you can stay on it as long as you like, but you only get one crack at it (can't stop and start like Herceptin)... Hope that makes sense ;)
My oncologist says that the company that manufactures it, has a compassionate access scheme where they have provided it to women who stopped for whatever reason, but needed to start it again...but there are no guarantees that the scheme would continue into the future, or that they would extend it to me should I decide to stop at any point in the future...
So I think if its working, people tend to stay on it....indefinitely...
He also mentioned something about the lack of studies regarding what happens to people once they stop...another argument for the 'if its working stick with it' thing I guess....
(oh, and my cancer was in my liver...but the combination treatment seems to have shrunk it to nothing...last CT showed 'nothing of significance').
I often find it hard to wrap my head around the fact that I may be doing this for the rest of my life, however long that may be...its quite strange...
Best Wishes!
