@Kattykit oh my gosh, a nail! I'm really glad that this drug has helped you and I hope you get a long time out of it.
Regardless of the studies and stat's the truth is when you have a disease like this you will try anything and that's completely fine to do. Any benefit is better than none. Our view with mum when she tried it, was that even if it doesn't improve overall survival, it would delay more toxic therapies such as chemotherapies, and so that was sufficient to convince us to pay the $5k per month for it. Sadly it wasn't meant to be for us.
But I do think there's a lot of confusion out there between progression free and overall survival, when the same results may be achieved with other meds etc (in some cases).
It's a very individual disease unfortunately so one set of treatments don't yield the same results for everyone.
I'm not so much frustrated anymore, more residing to this fact of life. But I still believe there's much work to be done for MBC patients such as yourself and I hope a light can be shone about it xx