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Sister's avatar
Sister
Member
5 years ago

Letrozole - Is there a light in the darkness?

I'm very, very cautiously expressing hope that things may get better on Letrozole.  Some of you may know that I have been one of the unlucky ones to have very severe side effects from the AI.  Joint pain, soft tissue pain and injuries have been hugely debilitating for almost the entire time I have been on it (ticked over 2 years at the beginning of August).  Well, I hesitantly say this...  I got home from work on Thursday, got out of the car and thought, "that's weird - almost no pain".  Now this is the time of day that I am usually struggling really badly and hobbling into the house as quickly (joke) as I can to medicate.  No need to hurry.  I am still feeling that way.  And it can't be due to warm weather because it has been freezing here.  I am not abandoning the medication that has taken the edge off the pain enough to make it manageable, but I am hoping that I have turned a corner.  I have to admit that I'm also in slight state of disbelief and a bit suspicious that things could change so radically.  My oncologist said a couple of appointments ago that often after about 12-18 months pain settles down but I think we were both disappointed and resigned that this wasn't happening for me.  Given I am on this for at least 8 more years that's no minor obstacle.

I realise that it might get bad again but I can now hope that it will also get better and maybe this will also give others hope for the same.
  • That is just terrific, @Sister - how brilliant is that!?  To suddenly 'not feel pain' when expecting it 24/7 - is a huge corner to turn.  Long may it last!

    I have found that just having the 'edge' taken off the aches & pains has made SUCH a difference in my own case ... and if it enables us both to remain on our medication for the 10 years - all the better!

    Snug up in this cold snap - hard to believe so much snow is around in the middle of Spring!!!

    take care xx  All the best xx